u/Usual_Marzipan_9234

I have NF and Scoliosis - Damage from Back Brace

My NF was a spontaneous case, no family history of it and they believe that my scoliosis was due to my NF.

I’m wondering if anyone else has had any issues from extended back brace wearing. For context I’m 35 and wore a back brace for scoliosis for several years when I was an early teenager. Middle school through most of high school. I basically had to wear it all day every day. It was a Boston brace, with part of it covering up my left hip/buttocks.

Once I was cleared to stop wearing my brace, I noticed that my left hip/buttocks area was very (for lack of better words) squishy and had low muscle tone.

I’ve spent the last decade or so being super self conscious of how “weird” my left hip/buttocks area looks compared to the rest of my body.

No matter my weight or how in shape I am, the left hip/buttocks area doesn’t change.

Looking to see if anyone has had a similar issue

I don’t want to sound like a jerk or come off as insensitive but the best way to describe what it looks like and feels like is the flabby skin areas that result in extreme weight loss.

reddit.com
u/Usual_Marzipan_9234 — 6 days ago

Muscle Atrophy from Back Brace

I’m wondering if anyone else has had any issues from extended back brace wearing. For context I’m 35 and wore a back brace for scoliosis for several years when I was an early teenager. Middle school through most of high school. I basically had to wear it all day every day. It was a Boston brace, with part of it covering up my left hip/buttocks.

Once I was cleared to stop wearing my brace, I noticed that my left hip/buttocks area was very (for lack of better words) squishy and had low muscle tone.

I’ve spent the last decade or so being super self conscious of how “weird” my left hip/buttocks area looks compared to the rest of my body.

No matter my weight or how in shape I am, the left hip/buttocks area doesn’t change.

Looking to see if anyone has had a similar issue

I don’t want to sound like a jerk or come off as insensitive but the best way to describe what it looks like and feels like is the flabby skin areas that result in extreme weight loss.

reddit.com
u/Usual_Marzipan_9234 — 6 days ago