u/Verosat88

The history of ME: How “mass hysteria” helped shape the way ME is viewed today
▲ 18 r/cfs

The history of ME: How “mass hysteria” helped shape the way ME is viewed today

If you're interested in the history of ME, I really recommend watching this video. It gives a really good overview of how ME has been understood and treated over the years, and how we ended up where we are today.

One thing I found particularly interesting is the history of the idea that outbreaks of ME were a form of “mass hysteria”, especially because many of those affected were women. That history is important for understanding why ME has been viewed through a psychological lens for so long, and why some of those attitudes still persist today.

Definitely worth watching if you want to understand where some of the stigma around ME comes from.

It's 27 min long. And for those that can't look at screens, I just listened to it like an audio book, I didn't feel like I missed anything.

youtu.be
u/Verosat88 — 3 days ago

Projector vs TV with light sensitivity/screen intolerance

Hi! So I have ME, POTS and migraines (mostly silent and vestibular). I am pretty light sensitive and can't really watch TV now because of it. Days get pretty long with just audio books for entertainment. Had anyone had luck changing out their TV for a projector? I don't have any experience with projectors, but I struggle way more with direct light then indirect light, so it makes sense to me that it might work better.

***Whats your experience?***

reddit.com
u/Verosat88 — 9 days ago

Projector vs TV

Hi! So I have ME, POTS and migraines (mostly silent and vestibular). I am pretty light sensitive and can't really watch TV now because of it. Days get pretty long with just audio books for entertainment. Had anyone had luck changing out their TV for a projector? I don't have any experience with projectors, but I struggle way more with direct light then indirect light, so it makes sense to me that it might work better.

Whats your experience?

reddit.com
u/Verosat88 — 10 days ago
▲ 258 r/cfs

170 thousand $ donation for ME research 🤩🤩

Celebrate with me! 🎉🎉🙌🙌🤩🤩

Norwegian influenser Sara Emilie Tandberg who had severe ME in her teens, yearly donates 10% of the profits from her clothing company Careless to ME research. She just announced that this year that equates to 1,7 million Norwegian kroner which is just above 170 thousand dollars. The money goes to the ResetME study in Haukeland university hospital in Bergen, Norway. The Haukeland team is doing some really ground breaking work (6 out of 10 patients in the pilot study are significantly better, some even in complete remission 4 years later), and unfortunately the Norwegian government is not covering any of the cost. So they are very dependant on donations. This donation will go a very long way!

Btw, if anyone wants to donate to said study, this is the international link

https://www.me-foreningen.no/om-oss/stott-me-foreningen/me-fondet/english-me-fund/

me-foreningen.no
u/Verosat88 — 2 months ago