Biochemical incomplete response.
I had half my thyroid removed in February last year pathology came back as follicular carcinoma so in April we removed my other side. I did I131 in June and my doctor every appointment since has made it sound like everything was normal. My tumor marker test as he calls it has gone up and down every appointment until this last one it went up again. He then labeled me as biochemical incomplete response and told me I do still have cancer somewhere but too small to be picked up on scans. He wants to keep my thyroid suppressed but everytime I bring up being so damn tired and for the first time in my life I'm taking naps or how I'm always cold like my bones are frozen even when its hot outside. He says its not related.
I feel like I'm going insane and there is no actual plan or an end date for this. I feel like actual shit about complaining to family or friends because my mom also has stage 4 lung cancer and is actively going through chemo treatments. I just don't know how to handle this or how to approach my doctor about any of it. He blames the cold on me losing weight and the tiredness on sleep apnea when I've told him I've had sleep studies and I don't have sleep apnea. I'm 5'7 and 192 pounds so I feel like he shouldn't be blaming everything on my weight. My next appointment with him isn't till February and doing nothing for that long is going to drive me up the wall.
I don't know if this post is for advice or just to bitch. I guess it is what it is.