Newly diagnosed
Hi everyone,
I’ve been lurking here for just over a year whilst I’ve been going through the diagnosis process with two of my children. My 15 year old recieved his endoscopy results today confirming a diagnosis of coeliac disease. We were seen immediately after by a dietician which was fantastic as I’d expected to be put on a waiting list. However the dieticians advice on may contains contradicts everything I’ve read over the last year.
He advised that they now don’t tell patients to avoid may contains anymore and they are fine to eat. I probed further and he said he went to a conference a couple of years ago which was attended by many professionals as well as coeliac uk, and they all agreed that the risk of being glutened by a may contain is very small and that companies mostly add those to cover themselves. He said there was a study that tested foods with a may contain and foods without them and the results were both similar. And as the may contain is voluntary for a company to add it could be possible for two different companies to make the same product on the same line and one would have a may contain rand the other would not.
I appreciate that guidance changes and of course being able to include may contains in my sons diet would make the transition easier and less restrictive, but after spending a year reading they should be avoided I’m reluctant to accept they’re okay.
He did say that they advise its okay to eat may contains as long as their bloods continue to decrease and if in a couple of years they were not within normal limits or just above then he would advise to cut them out.
Has anyone else received the same advice?
My other son is awaiting second blood tests to confirm his diagnosis and when he does I’ll have the opportunity to speak to his doctor and potentially another dietician so I’ll ask them about it but in the mean time I’d appreciate any advice!