r/CoeliacUK

I’ve just been diagnosed with coeliac (1 week) and I’ve found that a lot of the food tastes of cardboard. How did you get round this difficulty as it’s making me really want to stick to gluten (but I know I can’t because of the risks)

So my blood tests have come back positive for Coeliac (I don't know the exact numbers) but from what I can gather I need to have an endoscopy done to confirm this.

I wondered if anyone has had Coeliac confirmed through a blood test but the endoscopy doesn't show it? Or does this not happen?

Grateful for any experiences people have had or advice. My mind has been completely blown today!

I got diagnosed with Coeliac disease when I was 10 and really struggled accepting it throughout my teens. I'm now 26 and felt more content until recently. My husband and I now have the means to go on holidays abroad but I really struggle with eating and anxiety about being glutened. This is making me feel really down and like I have taken a major step backwards.

Has anyone found any gluten free/coeliac safe hotels in Europe that don't cost an arm and a leg to go to? We want a relaxing holiday by the beach/pool but I am struggling to find anywhere that states gluten free food is available.

Any advice or suggestions welcome, thank you!

I have been gluten free since the start of 2025, and I’ve really struggled with the fact that so many comfort foods are now off-limits.

There’s a few reasons I’m struggling, but the main one is that I’m autistic and really particular about taste and texture- even when I could eat gluten I could always tell if a recipe changed for example, so this gluten free thing I really don’t think I’m cut out for- the textures are wrong, the tastes are wrong, and I’m sick of these fake foods and miss the real versions. I like savoury snacks like pasties, pies, sandwiches etc… whereas the fake versions are far too sweet for me. I don’t want to feel like I’m eating cake. The only sweet things I cared about were biscuits… but oops, can’t have those either.

Not only that but I have also been long-term struggling to find employment, and I had a family bereavement last year and food was the only bit of routine I had left… it’s had a lot of knock-on effects on my life in that I can’t just grab a quick convenient snack from a Costa when I’m out and about anymore…. So it’s had yet another routine change.

I’m tempted to go back to normal… there has been rare accidental consumption and not once have I ever had any additional side effects… so part of me wonders if I’ve been misdiagnosed. All my home comforts have been stripped away and I need control over my own life back.

I don’t even care if going back to gluten kills me- at least I’d regain control over my own life and die happy rather than live miserably.

I just want to know if other people have the same experience or if I'm being paranoid.

Yesterday I got my first gluten free food prescription (I was diagnosed over a year ago but have since moved from an area that doesn't prescribe to one that does) and I was excited that it included products made with gluten free wheat starch because I thought they'd be particularly good and I googled around and only found confirmation that it's completely safe.

I ate two Juvela bread rolls at lunchtime and a few hours later, the cramps hit. I had the gluten-typical catastrophic evacuation and today I'm still sore, queasy, and very brain foggy and depressed. I struggle with my mental health in general so the way that glutening affects my mental health is my main concern.

Sensibly, if I want to know for sure if it was the gluten free wheat starch, I should try the bread again. But I don't want to take a further toll on my physical and mental state. I wondered if anyone else has this experience or if everyone is finding these products just fine? I'd love for the answer to be that everyone else is finding them fine and the gluten snuck in somewhere else. (However I haven't eaten outside of home in over a week and have eaten nothing else new in the last few days.)

I'm so confused because this is literally the food I got on prescription from the doctor!

Hi everyone,
I have two children that have been recently diagnosed with coeliac.
During the diagnosis process I had my ttg IGA tested because after researching coeliac it made so much sense that I have it. I’ve had textbook symptoms from at least 7 years old and with two of my children having positive blood tests and at the time were a high probability of having it, I thought my test would be positive but it wasn’t. My ttg IGA was <1. I requested my total IGA to be done which came back right in the middle of the normal range. I did ask for my ttg igg to be tested but she refused and said the bloods were reassuring enough that I didn’t have coeliac disease.

At this point I’m aware there’s a good chance I don’t have it but had read about seronegative coeliac disease and wanted to rule this out so I battled with my gp for a referral to gastro and she eventually agreed.

Fast forward to my telephone appointment with the gastro consultant last Friday. I explained my symptoms and history, said my concerns about coeliac and he said your blood test is negative so it won’t be that. I said but that’s not 100% is it and he said yes it is. I then said about seronegative coeliac and he said that wasn’t a thing and I was getting confused with non coeliac gluten sensitivity, which I already know about and wasn’t confused with, then he just went on to explained what that was and the difference between that and coeliac.

He did say he would do an endoscopy and colonoscopy and take some biopsies from my small intestine to “look for anything else”. So now I’m unsure if coeliac will even be tested for. Does anyone know if it’s something that’s automatically done for all biopsies?

Whatever happens I will be cutting out gluten after the scopes as I do think this is causing me my problems whether it’s coeliac or an intolerance but I would like to know either way.

Any help would be much appreciated!

So I’ve just got back from Starbucks where I got a normal tea with cows milk and I feel SO SICK. It’s definitely a gluten related sickness, but I have no idea where the gluten has come from? My best guess was the mug hadn’t been properly cleaned and previously had a drink with gluten containing ingredients in. Has anyone else had a similar experience? There is 0% chance that I would have been glutened from anywhere else.

We recently went on holiday via Gatwick and I was struggling to find anything for my coeliac daughter to eat (I had bought supplies but my husband wanted to eat there). We saw Wagamama and, given how good they normally are, we got a table.

My word. The worst and rudest experience I have had eating out with her. Firstly on the door we were reassured there were gluten free options. Sitting down, however, a young, really rude guy came up and shoved an iPad in my face, barking at me to read the allergy wavier and sign it! I asked him about their gluten free options and he was very vague, obsessed with his waiver being signed which, when I looked, said about contamination. Eventually he said that all food is cooked together and they don’t separate anything.

I have never, ever in my life been asked to sign a waiver for my daughter and I’m pretty upset about the experience.

For a chain that prides itself on being allergy friendly (we often eat at our local and they treat my daughter like royalty), it would be far better if they just outright said they can’t do it at Gatwick instead of asking people to sign away their health. Or just get the staff to say it’s not safe, not have an iPad literally shoved in my face.

A note on Gatwick north - we found nothing suitable for my daughter to eat. Luckily I had lots of nice things for her that I brought with me but really not a good experience there.

Sorry, the title is kinda misleading im not dating but thats not super relevant.

Hi! So i've never really posted on reddit and i dont ever use it so i apolpgise if this isnt formatted correctly!

This has also probably got to be one of the most cringe things ive ever put on social media so no judgement please!!🤐

So im a teenager(18) with coeliac disease and ive started talking to this boy,he doesnt have coeliac disease and i think he eats gluten regularly, me and him have a bunch of hangouts planned and on the offchance that there could maybe be like a connection or whatever and we like kiss or something.. i need help,is it safe? If its not how can i make sure that im safe as can be and comfortable..? Is there anything i should know,should i do anything?

ANY advice is welcome!! I just need advice!! Feel free to ask anything aswell!!

Always loved beer, recently found out that coeliacs aren’t really meant to drink gluten free beer!
I drink socially every now and again, but love a good beer sometimes. I never have reactions, do you know how harmful they are or how safe they are to drink? Does anyone here drink gf beer?

Hi all, I’m travelling to a few places later this year that aren’t as aware of coeliac disease as the UK. I’m doing as much research as possible to find good restaurants and things to eat there but I’m well aware that I will probably be glutened whilst there because of the lack of awareness/signposting there. Because of this, I’m trying to get together a bit of a ‘glutened emergency kit’ to take with me. I was wondering if you could share some of your tips and tricks that you do if you get glutened.

For reference, if I get glutened my symptoms primarily consist of diarrhoea (for 4-8 hours after, starting about an hour after eating it), brain fog & fatigue. The one I’m really worried about is diarrhoea (I’m sure you can figure out why lol).

If you have any advice, products you use (medication, certain foods/drinks), or hacks then I’d love to hear about them.

We've been going to Zizzi's for years. My 4 year old is coeliac and they have a broad GF selection.

HOWEVER I discovered this evening that they boil their GF pasta in the same water as they do their regular pasta. Their allergen matrix says their pasta is gluten free. I don't really think this counts as cross contamination. It's not that there's a chance it has gluten in it, it 100% has gluten in it.

Is this widely known? Am I really daft for not realising?

This has really ticked me off. I don't think I'll trust GF pasta in a restaurant again.

Hey! I was just wondering if this has happened to anyone else,
Last night I went to Wagamama for a meal.
Told them about coeliac and they were attentive, they know me as I go semi regularly.
This time however, after I’d eaten like 70% of my edamame I’d noticed there was a noodle at the bottom.
I understand it was probably a gluten free noodle as all the gf products are boiled in the same water but it was very jarring.
I ending up telling them and they were very kind and took most my food off my bill, gave me a discount and gave me £30 off my next meal.
I was just wondering if this has happened to anyone else and if they have been glutened by it?
I’m feel a bit unwell (semi silent coeliac) so I’m unsure if I’ve got a bug or if I’ve been gluten.
Thank you so much for reading :)

Hi All,

Just got my TTG IGA back at >128 U/ ml with a ULN of 6.9 U/ ml so have been told I'll need a biopsy. Anyone had any luck with getting a no-biopsy diagnosis?

Don't really want to do the biopsy cause I'll need to take at least one day off work cause of the drug and alcohol policy. I'm a member of BUPA and based in London if anyone has any particular guidance?

Hi there

I'm getting a coeliac bloods done at my GP in about a week and just wondering what kind of symptoms folk were having prior to diagnosis and whether mines sounds like coeliac potentially

I do have Crohn's which complicates things and I am working in a high pressure callcentre job so stress is rampant which complicates things but nothings improved over the last few years regardless

Symptoms I've been having

-alternating diarrhea and constipation with urgency on some days usually loose movements

-skin issues rashes that have been persistent and won't heal last few years

-bloating is a major one every few days regardless I seem to be extremely bloated person at work says I look like I've gained weight when it happens recent months it's almost daily

-Coughing or passing up phlegm/mucus and gas symptoms

-Tiredness even if I have slept adequately

-stomach grumbles and trapped air at times

Is there any tips or guidelines prior to the bloods I am consuming gluten as instructed

Thanks

Anyone know a good supplier for pizza dough / dough balls in the UK ?