r/CoeliacUK

hello everyone,
i just wanted to see if this is normal or if i have a right to be upset.

I had a blood test done well over a year ago as i was having issues with iron, and when i got the results the called me to say something had come up that suspected coeliac disease, i had a tTG IgA of 116.7, my iron levels were improving after medication and diet changes but then levels decreased from 58 to 18, which i believe could be a symptom of malabsorption from coeliac.

i was referred to gastroenterology on the 27th november 2025, so it is coming up to a year. i had not really experienced any symptoms then, but i believe now im starting to.

i then received a letter a week prior that i had a telephone appointment on the 29th September last week, but i could not attend it that day so i requested for it to be rescheduled. they proceeded to send me an email the day before reminding me about the appointment so they clearly had not listened, so i called them again telling them i cant attend it and i need to reschedule. they didn't end up calling but also have not discussed rescheduling the phone appointment, let alone waiting to get an endoscopy.

the situation is causing me worry and i just want it over with