u/Junior_Raisin_5966

Getting glutened symptoms?

I‘m recently diagnosed (2 weeks) and looking for some advice. I’ve heard/seen a lot of people say that their reactions to gluten get much worse after adopting a strict gluten free diet. I‘d be interested to know if this is people’s general experience? And what symptoms do you get?

I’m finding navigating cross contamination/eating out or on the go a bit overwhelming and it would be good to know what other people’s experiences have been!

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u/Junior_Raisin_5966 — 8 days ago

Newly diagnosed and need recommendations

I received my coeliac diagnosis today having had a gastroscopy and biopsies last month. I know I need to start a strict gluten free diet now. I could do with some recommendations in terms of the best gluten free alternatives - particularly bread!!

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u/Junior_Raisin_5966 — 25 days ago

Gastroscopy ‘looked normal’ but bloods positive?

Hi, I’m looking for a bit of advice - not a diagnosis. I recently had bloods come back showing mildly elevated tTg, along with a positive EMA and a few deficiencies (ferritin, bit D). My GP seemed sceptical about me having coeliac but referred for a gastroscopy after I pushed for it. I had the gastroscopy yesterday and the consultant said it looked normal and that the villi didn’t look blunted. i was surprised he could see the villi on camera! I am feeling a little deflated (not that I want a diagnosis, but it would help me manage my symptoms if I knew the cause!). I wondered if anyone has experienced anything similar, and had positive biopsies come back despite a ‘normal’ gastroscopy? My GP also seems to have completely disregarded the positive EMA result and hasn’t mentioned it in my referrals to gastro. Would really appreciate hearing others‘ experiences and any advice for advocating for yourself!

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u/Junior_Raisin_5966 — 2 months ago
▲ 1 r/Celiac

Gastroscopy looks normal - advice on advocating for self?

Hi, I’m looking for a bit of advice - not a diagnosis as I know that’s not what this subreddit is for! I recently had bloods come back showing mildly elevated tTg, along with a positive EMA and a few deficiencies (ferritin, bit D). My GP seemed sceptical about me having coeliac but referred for a gastroscopy after I pushed for it. I had the gastroscopy yesterday and the consultant said it looked normal and that the villi didn’t look blunted. i was surprised he could see the villi on camera! I am feeling a little deflated (not that I want a diagnosis, but it would help me manage my symptoms if I knew the cause!). I wondered if anyone has experienced anything similar, and had positive biopsies come back despite a ‘clear’ gastroscopy? My GP also seems to have completely disregarded the positive EMA result and hasn’t mentioned it in my referrals to the gastro team. Would really appreciate hearing others‘ experiences and any advice for advocating for yourself!

reddit.com
u/Junior_Raisin_5966 — 2 months ago