u/Werewolf-Gimmick

Hello all!! I’m a physically + mentally disabled philosophy student and I just got confirmation that I’ll be involved in my school’s Thesis program. I want to write my thesis on Critical Disability Theory, specifically on the definition of Ableness. Who gets to define it, the parameters of it, and the fact that the way we define ableness now just serves to socially other disabled people, as well as keep it difficult for those who are disabled to even get support for it.

I’m in the extremely early phases of my thesis which means im in the research and reading stage, which is why I’ve turned to you all!! If any of you have read (or written) something about disability that you find interesting, I’d LOVE to get the recommendation. While my focus is in books/articles/essays that have a foot in theory, if there’s a fiction book that centers disability in a relevant or interesting way, I’d love to know about those as well!

Yeah. So I just want to complain about this because I feel like I’m going fucking crazy. So in April I was hospitalized because I had an episode that just presented itself (and felt) like a stroke. I had half body paralysis, my words were slurring, my vision was going, I felt like I was going to die. So I get treated at the hospital, they do two cat scans and two mris, tell me that I didn’t have a stroke, gave me tons of specialist referrals and then discharged me. Since I was discharged I was getting stroke-like symptoms and had no idea what was happening, and I already had a chronic disability so all of this just compounded. I use a rollator now and just existing in a human body feels fucking impossible, thinking is hard, complex activity is impossible, my brain and my body felt out of my control and I had no idea why—well!!! I’ve been seeing these specialists and I learned that when I was hospitalized they found that I have early onset osteoarthritis and a fucking CYST in my brain.

I’m 19 years old, and like??? Jesus fucking Christ it would be awesome if I was told over a month ago when they FOUND out that I have arthritis and a fucking sack of fluid in my brain. No wonder I feel like shit everyday LMAO. I think I’m just exhausted because I have to commute for like 8 hours total every week to go to these doctors and the news never gets better. Anyways I got the 5th appointment next week and I’m getting an eeg so hopefully I’m not also getting seizures. Shits fucked, god bless this amazing country 🦅🦅🦅