u/West_Chapter_7380

New food concerns for flares
▲ 50 r/MCAS

New food concerns for flares

Sharing this https://www.theguardian.com/us-news/2026/oct/10/fda-toxic-chemicals-food-analysis article about regulatory changes to our foods that could impact sensitive people like us. It could means changes to your “safe” foods so I wanted people to just be aware of it.

“The proposed rule states that “any substance used in food (both directly or indirectly added) will be exempted from regulation as a food additive” if there is “no appreciable risk to human health”.
Advocates say the problem lies in the definition of “appreciable risk”. Chemicals like perchlorate, some phthalates, some bisphenols, some Pfas “forever chemicals” and some flame retardants are not classified as carcinogenic, but they can cause harm at doses far lower than 0.5ppb. These could in theory be used as TOR ingredients, as could chemicals that are neurotoxic, cause brain damage, attack the immune system, harm the microbiota or give rise to any number of other adverse health impacts.”

u/West_Chapter_7380 — 5 days ago
▲ 6 r/MCAS

Adrenaline “dump” and new meds?!

Can someone please just tell me that I’m not crazy and possibly wth is going on? I will start a new medication and feel like it is working and helping and then, after a few doses or days, I will get an “immediate reaction” when I take it that I always thought was anaphylactic, but I know understand to be more of an “adrenaline dump.” Immediate nausea and heart racing and feeling sometimes like there are ants in my throat. But no swelling or breathing issues, which is why when I go to ER they say I’m not having a reaction.
But then I am afraid to take the medication again, even if it was working. This has happened with liquid children’s Allegra after a few doses (allergist said it was probably the sweeteners they add) and again yesterday with nasalcrom after almost a week of test trials with little puffs.
Is an adrenaline dump an early indicator of a later reaction if I keep using it? Totally unrelated?
Anyone else have these with new medications, and get through them for successful long term usage? What is going on?!

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u/West_Chapter_7380 — 18 days ago
▲ 5 r/MCAS

Low histamine vs AIP diet?

I am really confused about dietary approaches to try and how the autoimmune protocol diet differs from the low histamine diet, and which one is preferred to help when you are trying to calm down a flare up and determine your triggers. The differences that confuse me specifically are around rice, oats, eggs, which are some of my safe foods but not on the AIP diet.
Is the low histamine diet “enough” for MCAS, or preferred? Thanks for any advice!

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u/West_Chapter_7380 — 18 days ago
▲ 7 r/MCAS

FYI on long Covid research

I just wanted to share this newer research on long COVID symptoms due to overlapping symptoms and comorbidity with MCAS.

https://www.thelancet.com/journals/eclinm/article/PIIS2589-5370(25)00639-X/fulltext

Long COVID, a persistent condition following SARS-CoV-2 infection, exhibits diverse symptoms across multiple organ systems. This study aims to summarize the existing clustering and classification approaches to support the management of Long COVID.

Hope some might find it interesting or useful.

reddit.com
u/West_Chapter_7380 — 18 days ago