u/Wooden-Muffin-3658

Long time lurker first time poster. It took me about a year to find my cause(seronegative sjogrens). I had a mri of my brain, thoracic spine, cervical spine, and loads of bloodwork. I have biopsy confirmed SFN, and tilt table proven pots.

Once the cause was found it took me about 6 months of being denied and appealing for IVIG. It then took about a month of battling with insurance to send me proof that they received the independent medical review paperwork and to then send me authorization. My first infusion is in a couple weeks.

TLDR - don’t give up on finding your cause and advocating for treatment.

Also would love to hear tips regarding IVIG or your experiences with it. Thanks for reading.