If you started, mod or participate in a medical sub what would you change or make sure to include when starting a new sub?
I’m going to start a new sub on a specific subject of a fairly rare syndrome. There is an existing sub on the disease and it serves a good purpose as a catch-all for the syndrome. The issue is that, at least in my mind and others, the sub has become too huge and overrun with “do I have this” posts and people looking for a diagnosis. For those of us actually medically diagnosed posts get lost in all the static. Just the nature of the umbrella type sub. This will not be a huge sub and I can see 5k members as huge with active participants in the low hundreds at best.
My idea is to start a new sub strictly for those officially diagnosed,or their caregivers, to discuss what we do to control this as it varies greatly from person to person. With many GP’s not really understanding it leaving us mostly on our own, outside of some general guidance and the few specialists that exist. There is no cure, only control.
My plan is to make this a bit rule heavy, with no medical advice ask for or given (only “what works for me posts), no AI at all allowed, no politics and strong anti-harassment and judgement control. I want none of the “mines worse than yours, grow up”posts. I’ll be modding this pretty tightly to start but at the same time allowing things to evolve if it benefits the users so rule exceptions will be in place as needed.
There will be scheduled posts for certain topics to keep them contained. Post flair will be required to help users hit points of interest.
I want to encourage links to medical references and actual publications as much as reasonable on posts when making a claim.
As always seeking official medical help before any changes will be strongly encouraged.
I’m planning a strong wiki with links to resources and good help guides.
OK, so now that you have the idea of what I want to do - if you have run, started or even actively participated in a medical sub what would you change, do differently or make sure to include.
Thanks for any and all suggestions and comments.