u/Wrong_Replacement996

▲ 17 r/PVCs

This page perplexes me.

So I recently joined this page within the year after finding out about my condition. I have a burden of over 20% and climbing even on meds, despite these recent changes I still live a pretty darn normal life, aside from the meds and cardio appointments my life itself isn’t all that affected much. For anyone concerned about me/my health it’s not really the point of this post, my health is being monitored by professionals from all angles.

My view of this page has been slowly souring as I thought this would be a place to get information about and hear about others experiences with high burdens and ablation experiences. Yet I have been more than let down with this page and am curious if there are any lurkers out there who feel the same.

I seem to come across an abundance of posts of people that seem to “want” to have PVC’s?? It sounds confusing worded that way but seriously, I’ve seen an alarming amount of posts from individuals whose cardiologist has assured them their “1% burden” is not of concern. Yet they post to this page explaining their Dr is clearly wrong and the PVCs are effecting their entire life and well being. While that *may* be the case, as someone with 20% perspectively, one out of every four of my beats is a PVC. I’m on a heavy anti-arrhythmic medication and it’s still climbing, ablation is the next step. All that said and I still wouldn’t freak out and tell my Dr he’s wrong, nor would I say even at this high of a burden does it “ruin” my life.

All that to say, I personally believe either medical anxiety is running rampant on this page and spreading like wild fire or the misinformation regarding PVCs and related conditions is spreading just as fast. A lot of the days on this page feel like I’m reading the same story of someone freaking out about their less than 5% burden and criticizing their Drs for not treating it, when it would be extremely irresponsible to disregard the risk vs reward of the medication side effects vs the risk of having a burden so low.

That’s my rant. I apologize in advance of it feels as if I’m targeting a specific person, I assure you this is not a targeted post as it’s the majority of the posts on this page. Nor is this post created to belittle anyone, or their experience. I’m just genuinely perplexed and a little saddened that I haven’t found much relatable content of people in similar situations to mine.

Side note: Any other peeps over 20% who’ve also been on/currently on Amiodarone or similar meds. And/or those who have had ablation or are awaiting ablation please do share your experiences, either on this post, to me directly, or please please make your own post and use my post as a push to share your experiences.

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u/Wrong_Replacement996 — 2 days ago

I know the title is weird as heck lol. Just needed to get it out there to see if this is somewhat common.

So I have a huge fear of my roaches, my bf had to help me unbox my colony and sort the babies out even though I had made a sorting bin so it was quite a simple process. I get a physical reaction to them more than a mental one, I kid you not my whole body gets hot and sweaty and it feels like my skin is crawling. I’m itching right not just writing this.

Now I know the roaches can’t hurt me, trust me I understand. I actually find them kinda interesting, and don’t mind taking care of them, it’s actually fun for me to make little “salads” every couple days. They keep to themselves for the most part but if one tries to come within it a foot of touching me I feel like pooping my pants. 🤢

Onto the dreams, I’ve been dreaming about them almost every night since I got them a few weeks ago. They’re either always loose running around my house and I’m trying to catch them, or they’re just gone out of the bin and I’m freaking out in my dream. In my dreams it seems like I’m not scared of them but they’re always in danger lol. I have a lot of pets and I don’t dream about any of them that often.

Any other roach keepers that are scared of roaches, out here dreaming about them every night? 😂

Sorry if this is the dumbest/weirdest post you wasted your time on today lol.

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u/Wrong_Replacement996 — 17 days ago

I’m generalizing a bit in the title as we do have shared interests and have conversations that I very much enjoy participating in. The main issue for me is my BF seems to get stuck on topics that seem extremely unimportant to me and plain pointless in my eyes.

For example he will interrupt a “normal” productive conversation to tell me about something he saw on social media and get kind of stuck on it until I validate him. He rarely seems to be able to hold a conversation about real life and just reverts to talking about some random topic that doesn’t directly effect either of us, sometimes even stopping an important personal conversation to do so.

Yesterday evening he kept obsessing over the head shape of this wrapper, I kid you not. I tried to “ya haha” it off like I usually do but he just kept shoving pictures of him in my face for a few mins talking about his head shape non stop. I stopped engaging so he’d maybe take the hint that I don’t care about a literal strangers head shape. I told him I have no clue who that wrapper is and went back to working on my laptop.

He proceeded to ask why I’m in such a bad mood? I told him my mood is fine but that I don’t know who that wrapper is and that I really don’t care what his head is shaped like. It doesn’t matter to me. He then went silent on me and pouted more or less.

My question is, is the behavior I’m exhibiting considered rude? If he wanted to talk about his day or life or his friends, literally anything with actual depth I would love to continue the conversation. It does seems like he’s stuck on having surface level conversations about topics that don’t effect either of us and quite honestly don’t interest me whatsoever. I do lack the understanding of how he believes those topics to be interesting and important enough to have a drawn out conversation about it.

*Possibly important info but we’ve been together for 8ish years, this isn’t necessarily a new thing but can amplify if his friend haven’t been by to visit that day vs not so bad if he’s had others to vent at.*

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u/Wrong_Replacement996 — 22 days ago