Underlying Cause
Hi everyone!
I was diagnosed with SFN last October after having a QSART test. I also had a tilt table test, which was my second in the last decade, but both were negative.
Anyway, I saw an autonomic neurologist in March and he ordered me a bunch of tests. I had previously had a blood test for Sjogren’s, but it came back negative. He told me the blood tests are not very good. So I had the biopsy, but I scored 0; yet if I understand the results correctly I do have some sort of chronic inflammation. I have all of the symptoms of Sjogren’s and had a relative with it. But everything keeps coming back negative or inconclusive. Yesterday I had the final series of tests he ordered, which included the Schirmer test. I scored a 5 in one eye and a 9 in the other. The eye doctor said he thought the dryness was neuropathic in origin.
I follow up with the autonomic neurologist at the end of June, so I will have to see what he says. But I feel sort of confused and frustrated at the moment. Has anyone else not been able to find the cause of their SFN?