u/Ylva89

Woke up and everything was on fire.

This heat is killing me. I’m a cat sitter and I’ve been out running around between 4 or so houses all day long the last few days. I’m only outside when walking from my car to the door and vice versa, but even that is enough to make me feel terrible.

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u/Ylva89 — 1 day ago

Injury and SFN

I slipped down some stairs last weekend and banged up my tailbone and the back of my hips/pelvis.

My autonomic nervous system has been extra angry since then. Anyone else have that happen after an injury?

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u/Ylva89 — 1 month ago

Underlying Cause

Hi everyone!

I was diagnosed with SFN last October after having a QSART test. I also had a tilt table test, which was my second in the last decade, but both were negative.

Anyway, I saw an autonomic neurologist in March and he ordered me a bunch of tests. I had previously had a blood test for Sjogren’s, but it came back negative. He told me the blood tests are not very good. So I had the biopsy, but I scored 0; yet if I understand the results correctly I do have some sort of chronic inflammation. I have all of the symptoms of Sjogren’s and had a relative with it. But everything keeps coming back negative or inconclusive. Yesterday I had the final series of tests he ordered, which included the Schirmer test. I scored a 5 in one eye and a 9 in the other. The eye doctor said he thought the dryness was neuropathic in origin.

I follow up with the autonomic neurologist at the end of June, so I will have to see what he says. But I feel sort of confused and frustrated at the moment. Has anyone else not been able to find the cause of their SFN?

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u/Ylva89 — 2 months ago