u/akosgi

Hey y’all! So after years struggling with this disease, I have one specific trigger that has very reliably caused flares for me.

It is wetting my skin.

A sprinkle of water is fine. But a shower, pool, and even sweating heavily to where sweat starts beading/dripping, causes me to immediately flare slightly. If I have an active weekend where I sweat multiple times throughout the weekend, and add a shower - I’m completely flared by Monday.

I shower now once every two weeks. I can clean extremities and not flare, but I can only wash my face and neck occasionally- they seem like the “genesis point” for a flare. I can shower at this frequency and not flare terribly - but my skin does feel a little bit of discomfort for a day after showering. Both cold and warm, both short and long showers - although the least impact is experienced when it’s a short, cold shower. My skin has gotten WAY better and under control after I realized this and live this way.

Luckily, I’ve found ways to stay fit and healthy without sweating profusely. But sadly, I love swimming and surfing, but can’t do it more than once every couple of weeks.

Has anyone else had this experience? How have you solved this? Any specific products that help? Please note that I’m on Dupixent and am on allergy shots - and I moisturize every night before sleeping.

Hey guys - coverage question.

I was on BCBS HSA. Didn't pay a cent for my Dupixent. I had a MyWay card at the time, but apparently it wasn't actually being used because BCBS was covering everything.

Switched jobs, now on UHC HSA. They seem to be using the MyWay card to discount their OWN responsibility to cover the prescription, until it's exhausted, and claiming that none of that counts towards my deductible. Then, once they took all the discounts from the copay card, they start billing ME until I hit my deductible. After deductible, they're covering 90%, but that still leaves me with a $500+ copay.

Has anyone else dealt with this? I thought the point of the MyWay account is for it to be a copay card - so patients don't have insane copays for this insanely expensive drugs with prices set on the basis of a rigged payer/provider/pharma collaboration to get patients hooked on expensive drugs and then create a cycle of high dollar exchanges to pad stock prices at the expense of the American consumer?