u/aliasme141

Good morning my friends. We are practically shutins here on the east coast of U.S.A on this hot July 4th. I am basically immune to the idea that this is a holiday. All I can think about is my scan on Monday, as my title says. My onco repeatedly said, "glad it isn't in your organs" until it was this past March, my liver. I am on my 5th round of Enhertu. I so want to just get on with my days leading up to Monday without these constant mixed thoughts. Maybe it is working, maybe it's not. I am not sure what I am even looking for here. I suppose I should have tagged this venting. I have been in treatment for MBC for over 5 years. I had a robust response to vibrance and falsodex for almost 5 years and then fail after fail. Enhertu is my 4th treatment since. Lordy this is so hard though I know others have it so much worse. Yeah I know that others suffering doesn't diminish mine but I feel so overwhelmed for all of us and scared.

I am a week away from my fourth infusion of Enhertu. #3 has been the worst! My GI system seems furious. My moods are up, down and all around. I am thinking about asking for a reduced dose. The other thing I will be trying is Olanzapine which is supposed to help with these side effects especially nausea and food aversions. I am curious if any sisters out there have tried this. I am looking for whatever experience you might like to share. Thanks in advance.

Edit: posted by mistake before I was done.

Hope it’s okay to ask this here because I’m mainly looking for fine-hair advice, not cancer support advice.

My hair has thinned and changed texture from chemo (Enhertu), but it’s not falling out in clumps. It’s become very fine, wispy, flyaway, and straggly-looking again about an hour after styling.

It’s currently a little below chin length and just barely makes a tiny ponytail, but summer is here and I hate hair on my neck. The tricky part is that my hair is naturally wavy — and actually gets wavier when it’s a bit longer. If I cut it very short, the wave mostly disappears, and I really don’t want to go back to a pixie after finally growing it enough to cover my ears again.

For people with fine/thinning wavy hair:

Did a blunt bob help?

Better to stay slightly longer for wave/texture?

Any products or styling tricks that help with stringiness and flyaways without weighing hair down?

What about slicking it back with gel? Looks good for a bit but then starts sticking out in small pieces

Any suggestions would be welcome. And thanks!

It is Monday night and I will be asleep soon only because I took a helper. My enhertu infusion is Wednesday and starts with 7 am labs. Anyone else start freaking out beforehand? It’s only my third I was angry all day. How are you before treatment? I have 2 months to wait for pet/ct to see if it is working. I do have a ct of lungs tomorrow cause of pneumonitis. Any ideas of how to get through? Thanks all for your ongoing support.

I came her for advice about groups. Y'all here on Reddit are my favorite group on the lonely internet. I do not do Facebook anymore for the most part for various reasons but I use it sometimes for groups like plant advice and things like that. In a more serious mode, can you recommend one of the many MBC groups please? I seem to feel the need for more support when changing treatments. Thanks!