Finding an interventional neuroradiologist
I feel so defeated. I’ve been waiting months to meet with an interventional neuroradiologist only to learn the imaging center they use is out of network. So my out of pocket cost would be ~$33k before I even get a diagnosis or treatment. They require a whole gambit of tests to diagnose and treat, and I was declined when I asked if we could go one by one and rule things out as we go to try to keep costs low.
I really don’t know where to go from here. I don’t want to keep spending time and money on doctors who can’t help me (an ENT and neurologist so far) and who won’t order more imaging or tests despite having an MRI that suspected IIH. My vision is OK (fortunately) so nobody knew what to do with me. I’m fairly certain it’s vascular (stops with compression) so feel I need an INR, I just can’t find one who would be covered by insurance!
At this point, I’m ready to throw the towel in and just hope it’s nothing serious. Trying to get help is more stressful than my actual PT. I wouldn’t even want to get a stent unless someone told me it’s life or death. I can live with this, it’s fortunately quiet and not 24/7 - I just don’t want an underlying cause to kill me one day.
I know many of you are managing the same battles, and I hope everyone gets help with as little stress and financial burden as possible. Please take care!