u/angelberries

I was under the impression that fatigue was part of the entire process but after asking a nurse to delay treatment for a week, she ‘told me off’ for not informing them of my extreme fatigue, and told me it’s not normal.
After day 4, I sleep almost 24/7 unable to wake up for very long, unable to take care of myself and barely get to the toilet. I assume this is because I’ve finished the three day course of steroids, and my body just drops. This lasts for about 4 days, then I can do more. I’ve told other nurses and the oncologist this, and they haven’t been bothered. Did/does anyone else just sleep like this, should I really be concerned? I’ve gone through three rounds like this already FFS 🙄

Also full body pain and aches… they’re not bothered about that either!

Second question- how many days of steroids did everyone else receive? I had three days for month one and two, but only two days month 3… this has been the worst month for fatigue. I asked why I only got 2 days, and the oncologist was adamant I was issued 3 days… I absolutely know I wasn’t. 💀 am I allowed to ask for more?
(I’m UK based. I’m finding the nurses on the phone very snippy and dismissive, on the verge of rude when I have a day before consultation with them. They get pissy when I say I can’t attend at a certain time, let alone do something like ask for extra steroids…. 😬)