u/anime_loser12

before i got diagnosed i would lose my balance pretty easily in public and i always wondered whether something was wrong with me or not, but when i got diagnosed and put on medication i stopped losing my balance as easily

although in the mornings, even if i've been in bed for awhile, if i get up and start trying to get ready i will sometimes lose my balance and nearly fall on the floor.

is this normal for iih or is this something else not related? (sorry if this is the wrong flair)

i've seen some stories where people really suffer with IIH and the side effects of their medication, but i am someone who hasn't really had that crazy of side effects with my diamox and my IIH symptoms just seem plain? i'll have days where it feels awful but then i'll feel completely fine for the rest of the time.

i feel like im lying about having this illness even though i have been diagnosed and given treatments for it (i know treatments isnt really the right word but i dont have another word to use).

the worst thing for me is probably the fact i get splitting headaches more easily and my lumbar puncture leaving me with back pain, hip pain and weak legs from what i think was the doctor hitting the nerve.

at most i could probably get handicapped parking in the future? but i feel like i should be worse off and since im not then im lying about my illness.

im sorry if this post upsets anyone at all, i just want to get my feelings out about all of this, i feel like i havent been able to process any of it since i got diagnosed back in september of last year.