Advice needed from EVERYONE on toughest spot of my life and what to do
I will try to keep this as short as possible. I would love input from partners and those with BPD. Thank you very much in advance!
I (40, m, teacher, codependent but working very hard the last few months) have colorectal cancer. I had 4 rounds of chemo, and have tumor removal surgery next week, followed likely by 8 more rounds of chemo.
My wife (35, f, charge nurse at large hospital) with BPD has really struggled with my diagnosis. She is absolutely positive I will die and that I care more about the cancer than her. She has had two inpatient stays in May (usually has about 2 per year), and I've made one police call and one welfare check since May (hadn't done either before). We've been dating six years and married for two, with a blended family (I have one 11-year-old bio daughter and one 8-year-old step son). Neither exes are in picture (one lives halfway across country, one passed away)
Okay. So. Yesterday I had my pre-op appointment, and we did all the right things before we went. Took anxiety med, read through DEARMAN, REST, discussed coping thoughts and strategies, etc. We were both in a good place and holding hands and smiling on the way in.
We got to appointment, and my wife became obsessed and angry with coming to PACU (where patients go directly after surgery) to be there when I wake up and in case something goes wrong. Every single person she asked said it wasn't something asked often, but they didn't see it as an issue. I just needed to talk to my surgeon. Wife was very upset they wouldn't put something in writing... They all made it clear they don't have control over that, but it should be no problem and they would put it in their notes.
As we got in the car and drove away, my wife told me that they don't give a shit about me, that I should go back in and tear up all paperwork I had just signed. I told her that would cancel my surgery, and I wasn't willing to do that. While at the stoplight of a busy intersection, she said "well, you don't care about me because you won't do the one thing I ask you. Bye" and got out of the car and walked away.
I was worried about her and was calling and driving around for her (not the greatest part of our city, and heat index was 106 yesterday), but she would not answer calls. She would just text that I don't care about her, I would fight for her if I loved her, I should pack up my stuff and go, she's at peace with that and will go on without me, that she would only come back if I tore up the paperwork and sent a picture.
She eventually answered my call, and I asked her "everyone here said it won't be a problem. But what if you can't go back to PACU? What if you meet me in my room? What's the worst-case scenario?" I was trying to understand her thinking. She responded "Then you don't have the surgery and we call every PACU in the state. If no one allows me back, then I guess you don't have the surgery at all." I told her "this is life-saving surgery. I will die if I don't do this." She responded "I guess you will".
I was dumb-founded. I parked in the hospital parking lot and cried, just... stuck. I had no idea what to do. Somehow, she found our car and got in. I did my best DEARMAN, especially Negotiate. I told her I want her back just as much as she wants to be back (true), but I have a different way of doing things (she wants me to get angry and insist on things). She agreed to my proposal, and we left the hospital.
Not one minute later, she said "*When* I get kicked out of the hospital, what will you do?" When. Not if. When. I told her this felt like she was testing to see if I would say the right thing. She said "Damn right. You go AMA, and they take you by ambulance to another hospital."
The afternoon and most of the evening was good. We even got in writing from the surgeon's team that she can come to PACU right away. We watched part of a movie, chased the kids around, and my wife recommended getting ice cream at 8:30 in our pajamas. This felt very much like a manic episode, but I was thrilled she was happy. After we put the kids to bed and all day yesterday, though, she has been so angry with me. I spent literally all day trying to talk to my surgeon, get connected with the hospital's online portal, get recent blood work results, etc. All the while, my wife was texting me from working saying "You are so passive and just sitting around assuming they care about you. No one gives a shit about us. Call 100 times if you have to. Get angry! Record the calls and send them to me." She also kept checking the cameras she installed (to watch me in case I fell down or had an emergency during chemo) but this time to see if I was actually contacting people. I spent ALL day doing that, and got basically every task completed.
She came home last night and had to go straight to her online DBT therapy. Afterward, she was angry at me for getting dinner for her, angry that she couldn't hear the therapy well with us in the house, just angry about everything. Luckily, she does a pretty good job of taking it out on me and not the kids. Not saying it's okay that it's me, just that I understand what's happening and the kids do not. She went to bed quiet and as far on her side of the bed as possible.
Thoughts and comments from both sides are greatly appreciated.
From people with BPD, what is she going through, feeling, and what could be her path out of it? I know she is terrified of this surgery, she is positive I'm going to die and "abandon her", so she's getting ahead of the game and doing it herself. This is what she's told me.
From partners of someone with BPD, have you experienced anywhere close to this situation? What did YOU do? I am at a place in my life now that I know I can't "fix" anyone else or say some magical words. This is her responsibility, but she's my wife and I want to do whatever I can to help. I also know that this is literally my life on the line. I am not willing to cancel surgeries or rip up papers because she has asked me to. I will literally die without this surgery, and it will be long and painful. I am also not willing to go AMA moments after my surgery. Again, this is literally my life.
Sorry for making you read this whole thing, and I sincerely hope I get a bunch of responses so I can work this all out. Thank you in advance!