u/barefootwriter

Hi folks,

I just wanted to ask those of you with uterine fibroids if you feel like POTS flares subsequently flare your fibroids?

I don't have a lot of data points and didn't keep good notes, but it feels like significant fibroid flares have now, at least a couple times, followed closely on the heels of POTS flares (of a few days or more in duration) after I've managed to start pulling myself out of them.

It's very not great, because then I get anemic from the bleeds and that makes my POTS feel worse and harder to manage.

Hi folks,

My fibroid flares are becoming more frequent and less controllable with meds. I plan to discuss possible embolization with my doctors, but I will be undergoing radiation therapy soon for DCIS, and, well, one thing at a time!

I was just hoping to get your best tips for recovering from anemia, as it's a lot to deal with on top of having POTS. I am trying to keep my blood volume up so my body fills it with new red blood cells, and taking iron, folic acid, and B12, but I am wondering what else folks recommend for recovery.

Just like many folks here dislike the term "POTSies," I am no fan of the term "bedrotting." It just feels so disparaging.

So I am wondering what other terms folks have heard used for this sort of rest. I use "horizontal time" for briefer periods, but there's no reason it couldn't be used for longer stints.

I've been having a rough couple of days trying to figure out the source of a flare I'm having, and it occurs to me I might have overdone the hydration/sodium; it can be hard to tell sometimes whether the high BP originates from that or hyperadrenergic stuff or some of both.

I recently replaced my fitness watch and we have a scale that hooks into that system too, and that got me to wondering if weighing myself more often would help me home in on the right amount of hydration for me.

Anyone else doing this successfully? Tips? Caveats?