u/beary_feelies

I had a venogram done ~3 wks ago where I had stents placed in my left and right iliac veins. I was told that my left vein was almost completely compressed and the right was only slightly better. My left renal vein was also severely compressed and has affected my left ovarian vein and caused collaterals. All of this has contributed to PCS.

I feel like I'm fully recovered from the procedure now and I have had no reduction in symptoms whatsoever yet and I'm wondering if I will given the untreated NCS. I am symptomatic for NCS with severe left flank pain and hematuria. My Dr wants to see if I get any relief from the stents before referring me out to treat the renal vein.

I had my follow-up with the NP today and she said that I wouldn't likely have any reduction in symptoms by treating the left renal vein if I don't have any improvement with the stents. This seems incorrect, especially given my symptoms and what was found during my venogram.

The pain I'm in is disabling and I feel like my life is just passing me by. Just trying to figure out if I need to keep pushing or if I need to give it more time.

I have been diagnosed with MTS and suspected NCS through MRV. I've been seeing an Interventional Cardiologist for this. I am scheduled for a venogram in June where I was told they will likely stent my iliac vein. When I asked about allergy testing prior to the procedure the np said it was unnecessary as the stents they use are newer and aren't likely to cause reactions. Is this true or should I push for testing? I've never reacted to nickel as far as I know but I do have frequent skin reactions to other things so it makes me nervous.

I'm also a bit nervous about the stenting and whether I should be treating MTS before figuring out the NCS. I am very symptomatic with severe flank, pelvic, and leg pain as well as bladder issues, bloating, headaches, gi issues, dizziness, etc. No swelling or significant varicose veins. However, I also have Endo that was excised ~6 months ago so some symptoms could definitely be attributed to that.