u/bidoville

Just curious.

I was just diagnosed with PMBCL lymphoma about a week ago. Two of my parent’s siblings had blood cancers: follicular lymphoma and leukemia.

Was wondering how many of us here have these running in our families.

Edit: sorry about the shitty club we all belong to.

Hey folks. Nearly four weeks to the date since my health issues started, now with a fresh PMBCL diagnosis.

About a month ago I went to the ER for a sudden back right shoulder pain: sharp as hell, burning, and made worse with full or deep breaths. Hurt with shallow. Spouse thought I was having a heart attack and we went to the ER.

I was pretty confident I was not having a heart attack, but was shook up the pain wouldn’t subside.

ER ran my first ever CT scan and treated the pain, which was still dull and achey upon discharge. While there was no reason for the pain I was in, a mass about 5cm was incidentally found.

Edit: pain in my right shoulder was gone within 36 hrs. We suspect phrenic nerve referred pain.

Hearing the ER physician say I had a tumor in my chest was a surreal experience. He called three different specialists and referred me directly to a thoracic surgeon.

A week ago I had a surgical biopsy. Unfortunately the tumor is not in an easy to access area, requiring full surgery (including lung deflation). It was a robotic assisted surgery, so I have three incisions plus a cut for the chest tube (probably the worst part of surgery).

I have felt completely asymptomatic overall. Bloodwork is normal. PET scan showed the tumor and at least one lymph node were hyperactive.

Never had any complications for my health.

I feel fine.

Not so fine now that I’ve had surgery with a complication, but I’m still so shell shocked that my entire life has been flipped upside down.

Late 30s female. Waiting on the oncology referral. Guessing I’ll have EPOCH?

Sounds like PMBCL is pretty rare among lymphoma, but I’ve appreciated reading other experiences here.