u/bittergingergin

▲ 1 r/MSPI

Still having symptoms? Is something else wrong?

Apologies in advance as this a bit long and rambling! Little one is 12 weeks old and from 3 weeks old has had mucusy nappies, extreme pain / colic resulting in feeding refusal and dropping weight percentiles (started on 80th and dropped to 40th). No skin or respiratory issues. She's been on nutramigan for 3 weeks now after asking the GP if this could be CMPA.

We've had some reduction in pain but she still has green runny mucusy nappies, arching until she's rigid, and sometimes screaming in pain after feeding. She throws up about 50% of the time after feeding. Sleep is non existent as she wakes every hour at night and will only nap in the pram.

We were initially put on omprazole for the reflux but saw no improvement so were advised to stop a week ago. She is combi fed so I've been dairy free for 4 weeks and recently cut soy in the last week as well.

At first I wondered if the continued mucus poops / pain / arching was just happening as her system was still healing but several health professionals have now said they'd have expected for that to subside by now.

Has anyone else had a similar experience? I've had to really push hard and advocate for my baby and we've not had much support unfortunately. We revisited the GP today and they've now prescribed Aptamil 1 but said only to come back if things get worse!

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u/bittergingergin — 2 days ago