r/MSPI

For those of you that need a safe dairy/soy free meal, this is what I’ve found to be safe for me.

- Panera’s strawberry poppyseed salad (the holy grail!!!). I’ve had this 4 times since discovering it was safe and it’s so good and has so much fruit and I just can’t recommend it enough! If anyone finds out that it is actually not safe please don’t share 😂 but even the dressing doesn’t have soybean oil. They even allow you to put your allergens on your order so they can take extra care with it.

- chipotle! Basically everything aside from cheese/sour cream at chipotle is safe. I get a bowl and a tortilla on the side, make a burrito for now and save the rest of the bowl for later.

- five guys without a bun. Kind of expensive for what it is but it scratches my French fries itch

-tropical smoothie for a smoothie

Amazingly all of these places are right by my work and it has made my life a lot easier.

Also note that I am not too concerned about cross contamination. My baby didn’t have a very bad reaction before going dairy/soy free but it has definitely helped her!

If anyone has any other suggestions drop em below!

I’ve been dairy free for two months now after seeing a small amount of blood in my infants stool when he was under a month old and noticing his poops weee pretty mucusy. He’s 3 months old now and poops are still mucusy. Haven’t seen any blood in the stool since but that seems to be the literal only change since eliminating dairy.

And I swear my pediatrician said something about reintroduction around 1 year old 😳 basically I’m fully questioning being dairy free.

Would you question this if it were you ?

Doctor gave the ok to introduce dairy via the ladder. Benefit of the doubt, my husband's first language is not English, he misunderstood. He gave the baby a friggen piece of cheese- no ladder, no processing through breast milk. Straight string cheese nibble into baby's mouth! But, 12 hours later and nothing severe. Pediatrician says good to go, everyone can have dairy, but I'm nervous. How long do I wait for symptoms? She hasn't had a BM yet, so I'm assuming I should wait to see how that is. And would you still do the ladder, starting with me and my milk first? Anyone else accidentally rip the bandaid off after 6 months and it was ok?

Background, she was diagnosed by the pediatrician in her first month after being super fussy/ reflux and having mucus and blood in stool. I stopped dairy and we had huge improvements, but no further testing.

Hi, my son is 9 months old and has non IgE mediated CMPA. His symptoms are predominantly extreme diarrhoea with mucus and horrific nappy rash. He is exclusively breastfed and I’ve excluded dairy since he was 8 weeks old/ he hasn’t eaten any dairy since weaned bar a couple of minor slip ups on my end (and the intentional dairy challenge!). We have him 1/4 of a malted milk biscuit as his first step on the milk ladder at 9 months as instructed by Paeds. Omg has it been a disaster- we’ve had 48 hours of non stop diarrhoea and his bum is raw. How long do I wait to restart the milk ladder? Some sources seem to say a month but his symptoms are so bad when they come I can’t be going through this every month! Has anyone experienced the same and how long did you leave it before trying the milk ladder again?

Hi all,

My LO is 4 months old. Been dairy free for 1.5 months, soy free for three weeks, beef free for 2 weeks, and tree nuts free for about a week due to blood and mucus in stool, trouble with bowel movements, gassiness and trouble with sleep because of these symptoms. Blood in stool is seemingly gone (at least to the naked eye) but he continues to arch his back and struggle all night, up every 1.5-3 hours. Been dealing with these symptoms since he was 6 weeks old. I've only had a long stretch once (5 hours) that feels like a total fluke. I'm just so tired, and I have already had to extend my self funded maternity leave for an because going back to work with extreme brain fog and exhaustion feels total unfair and unethical to my clients (as a therapist), and I'm also terrified of running out of money.

I guess im asking when sleep improved for others with elimination diets? Is there something that doctors can offer little ones to help with gas or passing stool in the interim? Pediatrician was not very helpful to be honest.

need advice, my baby was diagnosed with CMPA after diarrhea and fussiness the past couple days. I’ve been completely dairy free for 48 hours, but baby is still miserable. We are stuck in a loop where she wants to comfort nurse, but then is in pain from the milk. It feels wrong to not let her nurse, but I don’t want to make her discomfort worse! any advice?

My baby is confirmed CMPA.

I highly believe is confirmed SOY as well - breaks out in rash on both Nutramigen and Puramino.

We tried Alfamino and she broke out in red blotches that spread for ten mins then vanished during feeds.

We settled on neocate a long time ago but she gets significant gas pains and stomach cramps when she drinks it. She’s also constipated on it. This is her main symptom of cmpa (constipation). We don’t know what to do. We have tried to thicken her milk to see if it helps with the gas pains but it doesn’t. She only gets these pains on amino acids. Anyone have any advice, I’m struggling to get her to drink enough. I’m thinking she’s coconut sensitivity too at this stage.

These are the only formulas I can access where we live so I’m really lost.

We are waiting to get a gi and allergy referral from paeds and it’s going to take some time.

My son has been a terrible sleeper since he was born. I thought it was all due to digestive discomfort but now he is 9 months, and he sleep is getting EVEN worse. He is so restless. Wakes every hour at night, and rarely naps longer than 40 mins. He so tired with dark circles and so restless at the same time.

I cannot eat beef due to his mspi so I’m wondering if he could have low iron levels. Anyone have experience with this?

Hey all!

Looking for some safe dairy and soy free snacks, desserts, restaurants recommendations since I’ll have to be soy and dairy free for a while 😓

just saw it on a different Reddit thread:

https://cps.ca/en/documents/position/dietary-exposures-and-allergy-prevention

”When cow’s milk protein formula has been introduced in an infant’s diet, make sure that regular ingestion (as little as 10 mL daily) is maintained to prevent loss of tolerance.”

Am I reading this correctly? My daughter was in nicu and had milk protein formula like 3 times and then we switched to ebf. Could that have caused her intolerance? Or am I misunderstanding? No one mentioned any of this to me in the US.

based on this, wouldn’t eating more dairy actually help to prevent intolerance? does it mean that breast milk has too few and too many proteins at the same time if the baby has a reaction to the breast milk?

I'm just here to rant/hopefully get some solidarity. This is so hard. I cut dairy at the beginning of this month since I'm exclusively breastfeeding and would like to continue but it's starting to feel impossible. We had a bunch of graduation parties and it already sucks not being able to eat most of what's there but then when you think it's safe only to find out it's not 😭😭 I feel like such a bad mom because I'm trying so hard and being so careful and it's still not enough. Chic fil e nuggets have dairy which I should have known or at least looked up beforehand but I didn't and now it feels like all my hard work is for nothing. I'm so tired of having to be hyper vigilant but want to do the best for my baby.

Hey all!

Looking for some safe prenatal, vitamin d supplement, dairy and soy free snacks, desserts, restaurants recommendations since I’ll have to be soy and dairy free for a while 😓

Hey all!

Looking for some safe dairy and soy free snacks, desserts, restaurants recommendations since I’ll have to be soy and dairy free for a while 😓

9 weeks PP. My pregnancy was a breeze. Absolutely no complications, minor nausea, and I lost almost all the weight within 3 weeks PP. Birth was straightforward and I felt so close to my son for 2 weeks. Nursing, cuddling, etc, even with sleep deprivation and c section recovery.

Week 3-7 were then the worst of my life. Discovered at week 7 he has cow milk protein intolerance after bloody diapers and 3 straight weeks of scream crying almost all day, 9 am -8 pm. He never napped more than 20 minutes, screamed after every feed for 30-40 minutes (aka every 2 hours, 40 minutes was scream crying) and screamed non stop during every witching hour (6-8 pm).

I had a mental breakdown by week 6 and considered checking myself into the hospital just to sleep. My mom saw me in this bad state and called in every person I knew to take shifts with baby. I mean anyone: coworkers, aunts, neighbors. Our house is a parade of visitors.

I stopped breastfeeding and baby takes hypoallergenic formula. He still fusses but the screaming has stopped, mostly because I can see when he is overtired.

But…something inside me broke. I don’t feel bonded anymore. There have been 2-3 day periods where I only did overnight feeds. Daytimes were his grandparents, dad, or neighbors. I’m grateful for the help but I don’t even feel like he’s my baby anymore. He’s a person I need to keep alive and it doesn’t matter whether it’s me or a neighbor, he’s happy if he’s fed.

Anyone else feel this?

My daughter is 6 months and started purées a month ago. A few weeks ago I gave her oatmeal and she was really fussy after but I assumed it wasn’t related. Just to be safe I stopped giving it to her. Today and yesterday I gave it to her for breakfast and today she’s been screaming the entire day. That’s her only symptom. Could this just be a coincidence. I’m not sure if this matters but she’s always used Aveeno oat body wash and has never had a skin issue from it.

I’m feeling quite emotionally exhausted and at a loss on what my next steps should be so I’m posting here in the hopes that someone else has had a similar experience to my own.

We determined my baby boy had CMPA at 8 weeks old after he was exhibiting some classic symptoms: silent reflux, baby acne/eczema, excessive gassiness and arching of the back during feeds, and mucusy stools.

We put him on Nutramigen for 2 weeks and noticed all his acne started clearing up, he was sleeping longer stretches, no more mucus in stool, gassiness seemed to be getting better and he was no longer arching his back during feeds. He continued to have reflux symptoms such as excessive spitting and hiccuping but he was no longer fussy and miserable so we were happy with the progress.

We were hopeful that Nutramigen would continue to work, but then at 10 weeks he got his 2 month vaccines including his rotavirus live vaccine and noticed his excessive gas was back, he had trouble sleeping, and was pooping 7-8 times a day. Initially we thought it might be him recovering from the rotavirus vaccine, but almost a full week later he was still having trouble with excessive gassiness and poops that ended up causing his open sores on his butt.

I started reading that Nutramigen can cause horrible butt rashes on some babies, and between this and the ongoing reflux, we decided to switch to Alimentum RTF as I had read positive experiences in this community.

We are 5 days in transition now on 25 Nutramigen and 75 Alimentum and we’ve noticed his butt sores have completely healed, pooping 3-4 times a day, reflux symptoms are gone, and gassiness is much better. HOWEVER, now we are starting to notice a return in acne/eczema on his face and body.

Should I continue to stick it out with transitioning to Alimentum RTF for the full 2 weeks? He seems happier on Alimentum aside from the acne/eczema but I’m afraid it’ll continue to get worse once we make the full transition. It took us weeks and multiple formula trials to get to the conclusion that our baby has CMPA and now it feels like I have to choose between the lesser of two evils: butt sores or acne/eczema.

If you’ve made it this far thank you for reading, I’m pretty much just venting into the void at this point trying to find any possible answers for my LO.

Hi everyone, I’m looking for advice or experience from people that have had a second child with or without CMPA. My daughter is 6 1/2 months old and I’m due in December. I’m obviously very anxious about going through this again. We didn’t get her sorted out until she was five months old. She’s on Neocate and waiting to re-introduce at nine months. I know that if I’m in the situation again, I will have the knowledge and can figure it out sooner but I just wonder if anyone has gone directly to formula out the gate or if breast-feeding exclusively at first is best? My daughter did not become symptomatic really until we started weaning breastmilk at five weeks and adding in formula. I’m just scared and know that it’s essentially a toss up if this next one will have it or not!

Help! I am just lost & frustrated. My LO is 4 months old and EBF. She has had slow weight gain since her 2 month appt. She also has green, mucousy stools and occasional small streaks of blood. I have been completely dairy & soy free (not even eating anything manufactured in the same facility as dairy/soy) for 5 weeks. I stopped eating eggs, wheat, fish, shellfish, peanuts, tree nuts 2.5 weeks ago. I only eat chicken breast, ground turkey, gold potatoes, sweet potatoes, rice, berries, zucchini, spinach and carrots. I have seen no improvement in the diapers and she has dropped to the 1st percentile for weight. She is a completely happy baby, not uncomfortable or whiny at all. Any advice is appreciated!

Hello Parents, my daughter is 4 month old and has allergy with Cow milk protein, it’s been 26 days she is on amino acid formula called Neocate infant.. blood streaks and mucous (sometimes appears) has gone and she poops once which was 10 to 12 times when she was on normal milk formula. We changed from aptamil pronatura to Aptamil HA and eventually Aptamil pepti syneo but nothing worked so we switched to Amino acid formula. Now o don’t want permanent intolerance to Cow milk protein since our diet is normally includes heavily milk and milk products, how can I reintroduce milk and it’s product to her diet as she Will start solid or even before introducing solids.. can I start giving her extensively hydrolysed formula in small amount and then jump to hydrolysed and then usual formula ? Any help will be much appreciated