r/MSPI

▲ 2 r/MSPI

Newly cutting dairy poo question

Did your baby have diarrhea from the change and how long did it take to be back to normal poo?

Only cut a week ago, but I need to bring a diaper into the office to test and all week there hasn’t been enough solid in it to bring in. She’s constantly been a poo every 3 days and that’s continued this week too

Beforehand I ate a LOT of cheese…

reddit.com
u/Indecisive105 — 20 hours ago
▲ 11 r/MSPI

Needing Hope For Severe Reflux

I have posted about our situation before in other subs but unfortunately it just keeps getting worse and I am losing hope quick 😔

Our now almost 9 week old has dealt with horribly painful reflux since the moment he was born. We tried Pepcid at 2 weeks and that didn’t work. I cut out all dairy / soy / egg from my diet and he got officially diagnosed by the GI specialist with CMSPI at 6 weeks (we thought maybe Pepcid was helping & it wasn’t allergies causing the reflux so trialed a dairy formula to see if it would help with reflux & it made things sooooooo much worse). He stopped gaining weight and dropped to under the 4th percentile so we are fortifying our bottles with pepticate (we tried alimentum and he wouldn’t drink it). Our GI also took us off Pepcid and gave us generic nexium which is. Not. Helping. We’ve been on it for 7 days now. We are dealing with hours of screaming everyday, the gulping, the coughing, the hiccups, constant wakeups all day and night, refuses to sleep on his back, can barely drink more than 1.5 oz at a time, and by morning he is horribly congested from all the mucus buildup from the reflux. And usually at least once a night I wake to him gagging and choking on his reflux. Yesterday he spit up what seemed like an entire feed, it soaked the burp rag. The other night from 2am-7am he woke up every 30 minutes.

My husband and I are just beyond neurological overdrive from this. We also have a 23 month old who requires our care and attention. Thankfully we have amazing family help which is a blessing that will never be lost on us. But I obviously can’t bond with my baby at all 😭 not to mention the sleep deprivation has pretty much destroyed any rational thoughts I can muster about our situation (I am going up on my sertraline to help cope).

Our first barely ever took a bottle in the 13 months of nursing and it was truly the greatest experience for both of us. I had hyperemesis this second pregnancy and just kept telling myself to stay strong until it was over and I could breastfeed again because I truly loved that experience. And now I can’t even do that 😔 he screammmssss at the breast and doesn’t have enough strength to pull any hindmilk so all he gets is foremilk which makes this whole horrible cycle even worse (our speech therapist thinks that his feeding aversion has caused so much tension he basically hasn’t been able to develop proper oral function). So anyway, I am pumping full time. And I get really bad d-mer with pumping and basically have to take deep breaths and just survive the 20 minutes 7 times a day… I almost wish nursing wasn’t a good experience with my first so that I wouldn’t be so devastated about what I’m missing out on. Now I do love formula and am so grateful for it. It’s not a nutrition thing for me at all formula is amazing and anything saying it isn’t is just noise. It’s more about the personal experience and bonding and purpose that breastfeeding gave me and our first.

I probably sound like a crazy person screaming into the void but this has truly been the hardest experience for me physically, emotionally, spiritually, all of it 😩 I’m so sorry for the long post but if you made it through this ridiculousness and have any words for me I’d be so grateful. Has anyone had an experience like ours? Can you offer me hope? Was anyone able to eventually breastfeed their baby with oral dysfunction? Is there anything else we can try?

Thank you so much for even reading & just allowing a space to vent

reddit.com
u/Popular-Praline-221 — 1 day ago
▲ 2 r/MSPI+1 crossposts

Change pediatrician or formula?

Gonna provide a loose timeline so that the post isn’t super long. Just kinda long.

I’m a FTM and my goal is to exclusively breast feed but not sure if it’s helping or harming.

-when LO was born I was having trouble with my milk supply so we supplemented with formula (similac 360 sensitive) but we were combo feeding and I was pumping to get my supply up.

-LO started having very small specks of blood in poop around 3 weeks old

-pedi stated it’s CMPA and to switch to similac alimentum RTF

It gets a little blurry here because I was so sleep deprived so I can’t remember everything clearly but the blood stopped appearing in LO’s poop but poop might’ve still been mucousy. Pedi then said we should switch to the powder form of the alimentum.

-switched to powder around 6 or 7 weeks old.

Around this time I also went out to a steakhouse for my SO’s bday and told the staff I had a milk allergy so no butter/ranch/cheese on my salmon and salad. They did end up putting cheese on my salad so I had to send it back. But it seemed like everything else was fine.

-LO began having very mucousy/watery poop.

I thought it was because of me (maybe they put butter on my salmon when we went out to eat) so I reduced the amount I was breast feeding thinking I was causing my LO harm. I closely monitored what I ate to ensure I wasn’t consuming any dairy. Around this time I started having some PPD because I wasn’t producing enough milk and I felt guilty LO was having tummy issues.

-LO continued to have mucousy and watery poops for another month. Contacted Pedi and she said to go back to RTF formula or switch to the amino acid based formula and cut out the top 9 allergens from my diet and breast feed more.

-switched to amino acid based formula about 2 weeks ago and LO’s poop is still mucousy and watery but not AS watery as before but still not peanut butter consistency.

Also, poop is seedy often green/yellow or dark green.

Still combo feeding but I feel defeated and I don’t know what to do. I don’t know if I can get my supply to go up since I was already struggling before…and it doesn’t seem like the formula is really helping. I also now have to cook at home for every meal since takeout usually has one of the 9 allergens. Minor inconvenience since I can’t just buy something to eat. I don’t mind I just wish I knew what would help my LO and it just feels like the pedi is guessing? Like can we not test my LO for allergies to narrow it down? Is there another formula we should try? Is it normal for LO’s poop to be on the watery side if they don’t seem bothered?? Is my pedi just being lazy or are her responses normal? I have another appointment in a couple of weeks so I’m going to bring it up again but I would appreciate any feedback/ advice in the meantime.

Thanks and sorry for the long post.

reddit.com
u/No_Boysenberry7322 — 2 days ago
▲ 2 r/MSPI

Mucous poop? (NSFW) MSPI detectives plz help!

Wanting to show my doctor but wondering if he will say it’s normal. 8 month old literally straining and crying and arching all night. Though his poops have always looked like this, this has been happening more frequently lately and I thought it was a sleep regression but now I’m not sure. He used to poop 1x daily but now 3-4 times with the first being like this above and the next 3 poops of the day being like sharts when poop liquid looks mostly absorbed by diaper with flecks of drier stuff that sticks to his bum.

Other symptoms: eczema inner elbows starting a month ago, up every 1-2 hours throughout the night, wanting to nurse a lot at night which may be for reflux relief since he wants to be propped up at night?, poor weight gain to the point my ped scheduled him for an extra weigh in in a week, circles under eyes. Spit ups still. Sour poop smell, red around anus.

He is very active and super happy, I feel like everything above including his low weight (he was IUGR and was small at birth and has genetically short small parents) could be explained away by teething, sleep regression, etc. Ped told me my milk supply probably down and to try feed baby more. I give baby 2-3 solid food meals a day! I am at a loss why he doesn’t gain more other than that ethnically we are small and he is so active.

Then I started to wonder if maybe he had an allergy so I gave up dairy and soy 3 weeks ago. But I feel like nothing is improving and poos worse. Giving evivo drops and no improvement. Feel like all signs point to some sort of allergy.

I will ask my ped, but with all things considered does this seem like an allergy to you?

And any opinions if I should give up wheat or coconut next? Cause I feel like maybe the eczema started when I made and enjoyed a batch of my first coconut muffins a month ago, but after he developed eczema I went hard into having coconut everything since I gave up dairy. I’ve also been leaning heavily into wheat (baking my own bread and baked goods) to avoid processed foods with hidden soy or dairy and my snacks have switched from cheeses and yogurts to toasts. So could it be wheat allergy, should I give this one up first?

u/ShyGreenDot — 1 day ago
▲ 4 r/MSPI+1 crossposts

Baby Gia Probiotics Yay/Nay?

What’s people’s experience with the baby gia probiotics?

Bubs 4months and has been on them for nearly 2 weeks, poos have normalised and become regular but his screaming and arching back has increased heaps! To stop or persist? (Will be consulting Dr as well)

Dairy and Soy free already.

reddit.com
u/Individual_Purple240 — 2 days ago
▲ 0 r/MSPI

Mucus in poop but no other symptoms *NSFW*

23yo, FTM, EBF

I’ve been dairy free for about 7 weeks now after being told a lactation consultant/Nurse practitioner do try cutting out dairy due to he mucus poops. LO has no other symptoms. No blood in stool. Not super fussy besides witching hour. Doesn’t cry while eating or after. She does spit up even after I burp her but that didn’t change once dairy was cut out.

Is this much amount of mucus in poop normal for a 3 month old? I don’t know what normal BF poop looks like.

EDIT: She is growing great, passed her birth weight at her 1 week appointment and have been growing at a steady rate.

u/brianari03 — 2 days ago
▲ 1 r/MSPI

Experiences on amino acid formulas.

Looking for some experiences and reassurance when your LO failed a hydrolyzed formula but thrived on an amino acid one. We switched to nutramigen ~1mo ago and overall demeanour/fussiness appeared to be improving, however the blood has returned and despite more good than bad days, we are back to having extreme pain. LO is also not gaining weight and we are looking at concentrating formula for that.

Working with our dietitian and pediatrician the next step is an AA formula, but with this failed eHF attempt and what our team has told us about taste, etc AND the significant lack of weight gain we’ve been experiencing, I’m so scared we’ll struggle on an AA formula as well. Hoping to hear some personal experiences of LOs who had much more success with demeanour/blood/weight gain when switching from eHF to AA.

reddit.com
u/westofeden2 — 3 days ago
▲ 1 r/MSPI

Still having symptoms? Is something else wrong?

Apologies in advance as this a bit long and rambling! Little one is 12 weeks old and from 3 weeks old has had mucusy nappies, extreme pain / colic resulting in feeding refusal and dropping weight percentiles (started on 80th and dropped to 40th). No skin or respiratory issues. She's been on nutramigan for 3 weeks now after asking the GP if this could be CMPA.

We've had some reduction in pain but she still has green runny mucusy nappies, arching until she's rigid, and sometimes screaming in pain after feeding. She throws up about 50% of the time after feeding. Sleep is non existent as she wakes every hour at night and will only nap in the pram.

We were initially put on omprazole for the reflux but saw no improvement so were advised to stop a week ago. She is combi fed so I've been dairy free for 4 weeks and recently cut soy in the last week as well.

At first I wondered if the continued mucus poops / pain / arching was just happening as her system was still healing but several health professionals have now said they'd have expected for that to subside by now.

Has anyone else had a similar experience? I've had to really push hard and advocate for my baby and we've not had much support unfortunately. We revisited the GP today and they've now prescribed Aptamil 1 but said only to come back if things get worse!

reddit.com
u/bittergingergin — 2 days ago
▲ 3 r/MSPI+1 crossposts

How long was baby fussy with formula change?

Weve introduced hipp organic to our baby as he is currently on aptamil pepti 1 but we don't think he has cmpa.

Weve done it slowly with 1oz for a day then 2oz for a day were on day 2 and hes extremely uncomfortable, being sick more and crying and writhing a lot. I know it takes a while for them to adjust to new formula but does anyone have any experience? How long should increased fussiness last?

reddit.com
u/SeaEnthusiasm6365 — 4 days ago
▲ 2 r/MSPI+1 crossposts

Don’t know where to start. My 2.5 mo diagnosed with CMPI.

My LO was diagnosed with reflux on week 6. By that time I was supplementing with formula and triple feeding. Poor thing would cry inconsolably during every feed and would take an hour to finish 3 oz bottle. We changed formula from HiPP to Bobbie and settled on Kendamil organic. Still not enough improvement and his crying episodes would not stop. I did everything from pace feeding to 30 min upright position after feeds. I even left the hopes of EBF to manage his pain and started pumping.

After his reflux diagnosis, he has been put on fomatidine and stopped throwing up but still has pain during feeds. I stopped formula( Kendamil organic) and pumping like crazy to see if that helped. He started having runny stool with mucus. He even had 3 dirty diaper a day which is unusual for him. Today I went for 2 month wellness check and the ped says he has CMPA after seeing mucus in his stool.

He handed the sample of nutramigen and asked me to cut diary and BF after 2 weeks. I am torn at this point. I always wanted to give best for my baby like all of you. This hypoallergenic formula came in as a punch as I have no knowledge about it. I have nightmares about metal contamination and other long term effects.

Would love to get recommendations on what HA formula is best and what worked. I need to get him something immediately until I am free of diary protein.

reddit.com
u/Repulsive_Ad_3759 — 4 days ago
▲ 2 r/MSPI+1 crossposts

Black Specs In Baby’s Stool After Starting Gel Mix With Neocate

I’ve posted before about still having trouble after starting Neocate but now my first time mom brain has a new concern lol. My 3.5 month old baby has been getting gel mix in all of her bottles for about a week now. We mix the water in advance and I’ve noticed small black/brown specs settle to the bottom of the bottle. Gel mix customer service assured me that it’s a completely normal and harmless result of roasting the carob beans that are used. However yesterday and today I’ve noticed lots of small black specs in her stool, and they were unable to tell me if that was normal or not. I’ll obviously be consulting her pediatrician but I was hoping to find some confirmation from other parents if this happened when your LO was using gel mix? If it’s not from the gel mix I’m concerned it may be old blood, although blood has never been one of her CMPA symptoms. Her reflux has improved greatly but she still has some painful silent reflux even with the gel mix and Pepcid twice a day. We are also still dealing with lots of colic type crying even on the Neocate, so we’re trying to figure out if she’s still not tolerating something and needs to switch formula yet again, or if the reflux is causing most of her pain. Her pediatrician has been less than helpful because she’s gaining weight properly, and she’s unable to get in to GI until the end of October so we’re sort of navigating this blind. I’d appreciate any experiences or advice!

reddit.com
u/One-Shine8308 — 3 days ago
▲ 2 r/MSPI+1 crossposts

Vegan formula

Hi! My 4 month old baby was crying nonstop since he was born and having horrible reflux. We went to a pediatric GI specialist and he was diagnosed CMPA and potentially multiple allergies. I cut out all dairy and soy from breast milk and he was still reacting horribly. They said his stomach was so messed up it could basically be triggered by anything so he may do better once healed in about 4-12 weeks. He ended up getting a feeding aversion and went from 96th percentile to 21 percentile currently. They had us switch to Neocate formula instead of breast milk so that we could mix it to a higher calorie ratio. He is just now doing SO MUCH BETTER. He will eat about 18-20 oz a day now!! For a long time he wouldn’t eat more than 10oz in 24hours. I’m just wondering if anybody has ever tried the sprout vegan formula instead of a fully hydrolyzed formula? It says it is completely free from dairy and soy and uses rice protein instead. I know goats milk doesn’t work for most true cmpa babies bc the proteins are still so similar to milk proteins. However this doesn’t seem to be the case for the vegan sprout formula. Just wondering if anybody has tried it out. I would really prefer not to keep him on the neocate for the entire year of his life. I have a years worth of breast milk saved in my freezer and hoping to get him back on that eventually and thought the vegan formula might be a good step. Thanks!

reddit.com
u/Junior_Hospital_3082 — 4 days ago
▲ 1 r/MSPI

Toddler poop - what does this mean? (Poop picture!)

22 month old female, been seeing pediatric gastro since 6-7 months old. Was on similac alimentum until 1 year. Has chronic constipation. Bloodwork, recent stool testing, and xray of abdomen all came back normal. No food restrictions. Eats everything (meat, veggies, fruit, snacks, cheese). Drinks water all day long. Also drinks "poop juice" once a day - 2 oz prune juice, 2 oz water, 1/4-1/2 cap miralax.

Last week we skipped the poop juice for a few days on vacation, and she drank 4 oz of 2% milk before her nap and bedtime instead. She was pooping some hard pellets on Monday, and we started the daily poop juice again on Monday. Tuesday and Wednesday she had leaky blowouts.

This morning (Thursday) her poop looked like this. She's had poop like this more and more frequently. I can't tell if it's just a little bit of poop being diluted with urine or something's wrong with her poop. She goes every day, twice a day on average.

I've googled pics and looked at many Bristol stool charts and can't figure it out. Any insight or experience would be helpful. We have Gastro appointment coming up, but I want to gather more information to support a push for further imaging because this poor kid has been suffering for too long with no answers.

u/Popular-Computer5838 — 4 days ago
▲ 5 r/MSPI

6m old still showing symptoms and I’m at a loss

My breastfed baby is 6 months and has had some MSPI symptoms almost his whole life, but no improvement or diagnosis, and I feel very very far from getting to the bottom of it and feel so unsupported by doctors. At this moment I don’t know who to turn to other than Reddit.

Since the first few weeks of life my baby has had
-mucusy stool pretty much every day
-very trace amounts of blood in stool approx 4 times
-projectile vomit 3 times
-a little eczema (although that runs in the family)

That’s it. No fussiness or anything like that.

First doctor wasn’t super convinced and left it up to me on what to do. I cut out dairy from my diet for 5 weeks and saw no change at all. Then we moved states and new doctor said I could try hypoallergenic formula if I want (I really want to keep breastfeeding) and referred us to a GI with over a month long wait. On top of that, baby only gained a pound from 4 to 6 month check up and is in the 15th percentile for weight (he’s slowly been dropping from 75th at birth)

I feel like I don’t know what to do next. I suppose my options are

-try cutting dairy out again but with soy this time?
-go on a formula trial and potentially give up breastfeeding for good
-wait to see GI
-try introducing baby to dairy through solids and see what happens (Dr says this is ok, but Google says this is a bad idea)
-a combination of those things

Does anyone have any advice?

reddit.com
u/cheese_n_spice — 4 days ago
▲ 6 r/MSPI+2 crossposts

Frustrated CMPA mum venting but also hoping for advice

So baby has been suspected CMPA since about 3 months (the delayed reaction and vomiting kind rather than the instant blood in nappies kind). I am exclusively breastfeeding, although have tried nutramigen which he hands down refused. Sidenote - we are constantly pumped full of carinogenic shit from all angles every day and yet they can't find a way to make dairy-free formula taste just slightly better???

We are now at 10 months and started the dairy ladder just over a week ago in my diet with a malted milk biscuit in the morning, building up to 3 within a few days. Baby got very congested and snotty, with a rash on his tummy so I stopped dairy. I then got a bad cold and he is still unwell, it has also been very hot so I'm hoping it was a heat rash and a cold. So, I phoned the health visitor to get advice about whether to try the allergens directly in his diet that he hasn't eaten yet before restarting the dairy ladder again, given that there's not that long until he's a year old. He also has a suspected sensitivity towards soy, so I've been putting tofu off now that I'm back at work incase there's a reaction/hospital wait/blah blah etc. So, in my mind it makes sense to wait until he's over this cold, try the soy and shellfish (he's been fine with all others) and check for reactions, THEN start the dairy ladder so no confusing crossover reactions happen? This is what I asked the health visitor, who admitted it's sort of out of her expertise and to phone the dietician to ask about that.

Phoned the dietician, got a receptionist who barked down the phone at me instantly that I wasn't to relay the whole thing to her but did I want her to ask for a dietician to phone me back? No, I'd like an all inclusive trip to the Bahamas please Ms Receptionist... yes obviously?!?!? Wait all day and get a call back. Yippee, some answers I thought! No... "dietician's assistant here, dietician has said it's 12 months for dairy". I tried to explain that it was dairy in MY diet via breastfeeding, which has been the NHS, previous visit to dietician group thing and health visitor advice FROM THE START. "No no no, dietician says 12 months to introduce dairy to his diet", absolutely not listening to what I was trying to explain and just talking over me. I was out at the time so just said thanks and bye basically, but had I been home I would have insisted on speaking to the dietician directly rather than being palmed off by the assistant who wasn't listening. I actually feel like putting a complaint in, I'm feeling so frustrated by it all!

On top of all of this, baby has been biting me non-stop (have tried the "no biting" and physically moving away, nothing works), have tried the disgusting formula, and to top it off baby bit me so hard that he drew blood from my nipple 2 nights ago and now I can't pump from that side, and feeding him very little from there as he is still trying to bite the already injured nipple!

​Thank you if you've got this far, feeling extremely fed up with all this, ignored by health professionals, sore nipples and generally just not very mumsy at the moment. If anyone has been through similar and can advise on the diet or nipple stuff please send it my way!

reddit.com
u/heid-banger — 4 days ago
▲ 3 r/MSPI+1 crossposts

Baby still reacting to breastmilk

Hi, we’ve had a long journey with our five month old and just wondering if anyone has been through similar and has any advice.

He has symptoms of reflux, gas and eczema and we’ve never had full resolution, despite being dairy and soy free (he is EBF). We have suddenly had three nappies with blood and a lot of mucus over the past week. He has had blood tests that suggested he has no IgE allergies, and his dietician has advised we will likely figure out triggers as we introduce solids. His dad has a nut allergy so I’m convinced it is likely an allergy or intolerance.

We are at a loss on how to improve things - I’ve tried removing dairy, soy, gluten, oats, corn, nuts and egg from my diet at different points and can’t find any concrete links. He is in good form generally but gas pains do wake him at night sometimes. Our GP suggested amino acid formula which I’ve heard isn’t appealing, and tbh I’m gutted as he gets so much comfort from breastfeeding. Feeling conflicted about what to do at this point!

reddit.com
u/Such_Caramel9255 — 5 days ago
▲ 1 r/MSPI+1 crossposts

Poop

I know it says no medical advice or questions. But I just really need someone to tell me if anyone else's baby poop looks anything like what my breastfed baby does...

reddit.com
u/Calm_Barracuda_4025 — 5 days ago
▲ 3 r/MSPI

Overwhelmed by intolerances, allergies and starting solids

My baby is 7 months/6 months adjusted and EBF. She had FPIAP symptoms starting at 8 weeks. I’ve since cut out dairy, soy, wheat, eggs and corn and we’ve not seen blood in her diapers. The restrictions suck for me but I’m in a groove now and don’t think about it much anymore. We’ve had a really rough start to introducing solids. We’ve only given her avocado and peas, and she’s had reactions to both (not anaphylaxis, but hives and swollen eyes about 8 hours after). She tested negative for an avocado allergy and yet still reacted. She test positive for an egg allergy (has never had eggs) so we now have an EpiPen.

I’m terrified to feed her. We’re already delayed on solids and it feels like everything we give her is going to trigger a reaction. I feel totally stumped between the intolerances through my milk, confirmed IGE allergy to eggs and some sort of sensitivity to avocado and peas. Her allergist can’t see her again for two weeks. Anyone have a similar experience?

reddit.com
u/StarlingM1818 — 6 days ago
▲ 0 r/MSPI

What milk are you giving after 12 months?

My baby will be 11 months tomorrow and she’s been diagnosed with CMPA since 3 weeks old. We trialed dairy a few weeks ago in a baked good using the ladder method. She didn’t seem to have any stomach issues but after the third day of giving her pea sized amounts, she developed her telltale rash.

She IS able to tolerate soy and was never intolerant to it. So I know soy milk is an option but there is some evidence that it can cause estrogen dominance issues in females so I’d like to be cautious about giving it every day. She’s currently on puramino formula because she never tolerated alimentum, nutramigen, or goats milk. What milk do you recommend?

reddit.com
u/EngineeringLumpy — 5 days ago
▲ 3 r/MSPI

Visible blood but negative occult blood tests?

Initially baby was having bloody poops multiple times a day, most if not all poops. After cutting out multiple foods and dairy we are down to anywhere from only one bloody poop a day to every few days, occasionally up to two weeks without blood.

We have submitted four occult stool tests from poops without visible blood to our GI specialist over the past three months. Each time it’s negative. But he’s still having bouts of visible blood and mucus between the normalish looking poops. Even one occult test was taken and then the next poop the same day had quite a bit of visible blood in it. Anyone know why this is? We aren’t getting a clear answer from the GI. No visible fissure and no blood on the wipe when we wipe his bottom. Baby is relatively happy and the only other major symptom has been consistent poor weight gain requiring higher calorie fortification.

reddit.com
u/Crispy_Peach — 5 days ago