r/MSPI

Is there any clear cut determination of how long allergens stay in your breastmilk? Example: my 3 month old has a suspected dairy & soy allergy/intolerance. No blood in stools or rash, just gas/colic/reflux. Anyway, I have cut out both but if i selfishly want to indulge in something with dairy and/or soy, are there studies or anything showing how long they would be present in my milk? I have a decent freezer stash of DF/SF milk so hypothetically could I give him that for x amount of time until the delicious forbidden foods are out of my system?

So my pediatrician had us using rice cereal to thicken his nutramigen formula and it works great for him and his reflux, but I was wondering if anything who does the same if yall prep the thickened formula ahead of time and keep it refrigerated or am I forced to always make a bottle right when I need it? I know I can prep the formula by itself in the fridge I just don’t know about the rice cereal mixed in

Good morning!

I understand after eliminating symptoms can persist. I get that. But things have gotten so much worse since I eliminated dairy.

My son is 5 months old so I have a good grasp on his personality, his habits, his behavior, etc.

We cut out dairy and soy on 8/7 after two poopy diapers. No other symptoms except poop being occasionally mucusy, not always but it would happen from time to time.

Within 2 days of cutting out dairy and soy I saw a marked increase in mucus. 6 days after cutting he started getting diarrhea and bright green poops. 9 days after cutting out dairy and soy he got blood in most poops whereas it had previously only ever happened 2x 3 weeks apart. He also went from sleeping well to waking up 6-8 times a night being hard to settle. 10 days after cutting he started getting fussy during the day. Now, 12 days after cutting he spent 3 hours scream crying, falling asleep, scream crying, falling asleep. Sometimes he’d fall asleep for 2 minutes, others for an hour. He also started crying a lot in his car seat.

What should I do? I really want to breastfeed but I can’t stand seeing the baby I know change into a baby that’s in pain. I’d rather switch to formula than see that. I’m so sad. I have a GI appt on Monday but it feels like forever away when I can see he’s in pain.

TIA

My daughter just turned one and has been supplenting with Alimentum since about 4 months along with nursing. She has about 2-3 bottles of about 3-4 oz a day. I know milk after one isn't even always necessary and she does still nurse (mainly to sleep) but I'm just curious what milks other people have had success with. She doesn't seem to tolerate dairy in large quantities (i.e., cheese pizza) but does okay with it in baked goods, or when we cook using butter.

My daughter has been on Kirkland ProCare formula since she was about 2 months old. She was doing perfect and pooping once every other day.

Very randomly, on July 26th, she started having anywhere from 7-10 poopy diapers in one day. The stool had mucus in it sometimes, and was watery most of the time.
She did three stool tests: Stool Culture (Q&LC), Gastrointestinal Panel PCR, and Ova and Parasites. All NEGATIVE.

On August 12, her pediatrician recommended we start her on Nutramigen to see if it’s possibly a CMPA allergy. It’s been almost a week since then. She isn’t pooping 7-10 times anymore, but she’s still pooping anywhere from 3-5 times a day. Pediatrician wants me to continue on Nutramigen for 2 full weeks. I just feel like I’m wasting time.
I asked for an allergy test to just confirm if it’s a CMPA allergy but her pediatrician says they aren’t reliable until 9 months of age.
I’m at a loss. I’m worried about my baby, and I feel like her pediatrician is being way too casual about all of this.
It isn’t a simple process to change her pediatrician. It would take her insurance a few weeks just to approve a change.
She doesn’t have any other symptoms besides the diarrhea which is why nobody seems concerned but like that just isn’t convincing to me. The diarrhea is still very concerning to me. Just wanted to see if anybody has ever dealt with anything similar?

And I’m not kidding. 95% of the time she (6 months) will cry within 10 seconds of someone else holding her, including my husband. On the rare chance it’s more than 30 seconds, it’s always less than 10min.

Does this sound like an actual dairy allergy, or something else? It’s been this way 2 months, but before that she was such a chill along for the ride baby.

She got sick right before her 4 month shot appointment, then sick again after and non stop fuss, dropped some weight, then better but kept fussing, so dr had me cut dairy. 3 days later she was calm, but only in my arms. Everyone comments how alert and happy she is, and she is, as long as I’m holding her.

I’m just at a loss, her sleep has been horrible too and any break I get is because my husband holds her for the hour crying while I do something. I’m just not sure if it’s actually a dairy thing or not. 10 days after I cut dairy I brought a diaper in and it was negative for blood. (She’s always been slow to gain weight and poops every 3 or so days). She’s lately been refusing the bottle and spits up more on formula so I’m ebf at this point even though she had a bottle a day since day 1.

Just feeling tired, overwhelmed, and lost. And honestly, I really want my cheese.

I’m back again 😩 feeling so discouraged & I feel for ALL of you in this group struggling. It just sucks sometimes & is a lonely road. It’s helpful to know I’m not the only one NOT having a good time. Anyway, baby is almost 4mo. I’ve been dairy, soy, egg free since 3 weeks old? And corn free since 8 weeks. We thought we found the solution with corn but NOPE. Back to straining, grunting, screaming, mucousy poops, straining to poop, horrible reflux, congestion, sleeping in 30 min-1 hr chunks etc, can’t sleep on his back, etc. and I absolutely cannot eliminate any more from my diet. Last week I had a near fainting episode from low blood sugar. It was horrible. But it’s nearly impossible to keep up with eating when my diet is so limited and I have a high needs baby & newly 2 year old. So my husband and I decided to make the switch to HA formula to help our sanity. Our options are soooo limited because of the corn allergy. So we tried Alimentum RTF because it’s corn free. And it’s going very bad 😭 we’ve only increased to 1oz of formula in his bottles over the last week. But now he’s refusing to eat, grunting, straining, and fussing all day. I have NO clue what to do. I’m nervous to try AA formulas because I hear they are very thin and not palatable at all. Our dietician already said she thinks he won’t drink them because he’s so picky. And I’m worried it’ll make his reflux worse. He already on Nexium.

Has anyone had a similar situation and found a formula that would work???! Or any hope for me at all??? I would so appreciate anything!!

baby boy is 8weeks+3 days, started Neocate LCP on friday which he has with Infant Gaviscon (i’m going to ask to maybe be put on omeprazole instead but i find myself giving up on things before even giving them a chance because i just have no hope 😞 ) he keeps having very hard stool like solid balls on Infant Gaviscon, he’s been on it for 2 weeks now, he was previously on aptimel pepti 1 for 2 weeks but made him so much worse, he was fine for a week on it but then all his CMPA symptoms came back with a few new ones!

baby was a little better ever since the first bottle of Neocate but it’s usually the case when we switch his milks, it’s like total false hope! , tonight has been absolutely terrible, will not sleep for more than 20 mins and has not slept since 10am thismorning, it’s now midnight.

he sounds so chesty and nasally which is new and only started yesterday but has no visible snots, is this a normal Neocate symptom or could baby be sick? i’m not asking instead of going to a gp don’t worry, my health visitor comes at 12am today and i will be relaying everything to her and she will be able to see him, but im just so lost and need some hope, im really struggling to see the light in the end of the tunnel..

he went from drinking 180ml 4 hours apart and sleeping 5 hour stretches at night but since Neocate he’s barely drinking 90ml every 4 hours and isn’t sleeping at all, screaming when awake and refuses to sleep, i think he might be refusing his bottle so i try not to force it as i dont want to cause an aversion :(

I haven’t slept one wink since 2 days ago.. and my mental health is really low, its not his fault hes just as tired as me but wow, what a journey, i haven’t had a happy baby since the day he was born bless him, i feel like such a failure, to top it all off i live with my partner but feel like a single parent most of the time, i love him dearly and i do feel loved by him, he tries his very best after work but he deserves a break too, 12 hour shifts and then looking after a CMPA baby, it’s not fair so i try to take it on all on my own, my mam helps me when she can but it just makes me feel even worse as he’s my child, i should be able to look after him, i feel so much guilt for feeling so misrable all the time, i just want to cry and did for weeks but i feel like i have no tears left, am i beating myself up?

— feeling lost.

Hello, my 6 week old has suspected CMPA. Ped made us try alimentum first due to blood in stool. After 1 week, blood in stool has worsened and she was getting very gassy and fussy & screaming & crying at mid feeds. Today, I called the ped and she told us to try Nutramigen. I tried giving her Nutramigen today but she started screaming and won’t take the bottle. She is clearly hungry as she is rooting and she would take a few sips and start screaming again and squirming and crying again and again. It took me almost 45 mins to feed her 3 oz bottle. With alimentum it was a little bit less time to feed her. She hasn’t eaten as much as she did with previous formulas like Similac 360 and Alimentum. Also the spit up is MUCH worse. Like a lot of liquid comes out of her mouth. I also feel like she has reflux but ped doesn’t want to start any reflux meds this early. I know it’s been only today since starting Nutramigen but we are really at a loss at what to do anymore. What should be our next step in helping our girl?

He’s been doing these weird spasms where he almost tries to escape arms, like jerks his entire body, when he’s about to go to sleep... and I feel he does this more with me than with anyone else who holds him. He basically suddenly straightens his whole body and it’s almost like he’s jerking forward to escape it. And no one else knows what I’m talking about even tho my mom, husbands mom, me and my husband all split his care almost evenly for now as he needs to be held right 24/7. anyone have any experience with what i’m talking about? his head literally slams into my chin it’s so forceful? but it doesn’t always happen

My baby has been very gassy and has started passing greenish yellow mucusy stools and very watery. He’s been gaining weight like crazy though and doesn’t seem to spit up too often (usually when I’m burping him between and after feedings and if he’s straining a lot to poop). He’s a very noisy breather and often sounds like he needs to clear his throat.

If you eliminated dairy for an allergy, how long did it take to see improvement? How long did you have to stay off dairy? He’s EBF.

Hi! My 9 week old went on similac alimentum 3 weeks ago due to blood and mucus in stool with suspected MSPI. Since being on the formula the blood and mucus has totally cleared up, woo! I was listening to the Bowel Sounds podcast about CMPI and they highly recommend “challenging” symptoms after a month of being symptom free by introducing a regular formula to increase immunity and tolerance of various foods. I love this idea particularly bc I don’t want my LO to be highly allergic to stuff as she grows up and alimentum is so expensive!!! What is your experience with “challenging” symptoms and trying a regular formula after being on a hydrolyzed or specialty formula? Any formulas your LO particularly really loved or did well on? I know every baby is different and we will be consulting with our feeding team about this switch but would love to hear others’ experiences in the meantime.

I’m just curious what others experiences were, when introducing solid foods and purées. My baby is almost 5 months and showing all the readiness signs for solids. His pediatrician urged us to start introducing allergens pretty much as soon as we were comfortable with, as he explained that our baby was more likely to have other allergies and it would hopefully help prevent that. He actually wanted us to start right at 4 months but I have been a nervous wreck. We live a good ways off from a hospital if he were to have some awful reaction to something 😭 especially nervous about the usual culprits like peanut, wheat, eggs…. So was wondering, if anyone else’s cmpa baby ended up allergic to other things. Mine can’t do soy or corn either 🥲

We were advised to switch to Enfamil AR for reflux for my 4 month old. So far we have been on neosure ready to feed so mixing powder formula is newnto me.

Plus Enfamil AR is supposed to be thick one and internet says should not be pre made like pitcher method.

On top of that LO is starting daycare soon and they require pre made bottles for feeding.

I am at loss how do I pre make Enfamil bottles.

Anyone used this formula and did pitcher method?

Did you use boil water and then cool down in fridge? Did it lump with this?

Or just mix the formula at time of feed and let it sit 5 min is the best way? Not sure daycare would want to do that though.

My 5 month old has sounded “congested” or snorty at times. It happens a lot when she’s eating or sleeping. She has some mild reflux but nothing serious. No visible boogers. It sounds more like it’s deep in her throat. This has been going on since she was born. Sometimes it gets a little better then comes back. Has anyone experience this before? Ped doesn’t seem concerned.

She has CMPA. Diagnosed at 1 month old. I’ve been dairy free since but we recently started trialing formula and now it sounds worse again. But even when I was dairy free she still had it to a lesser extent.

Audio example taken while she was drinking a bottle: https://drive.google.com/file/d/1onOkHZOOKgMP-GCXy9UW0cG6h1AxUzY7/view?usp=drivesdk

I literally can’t do shifts anymore. He sleeps upright on us, on his back causes him significant discomfort even though he can lie down on his back to play, sleep is a different issue he refluxes while asleep which wakes him up. We have the SNOO and he still can’t stay asleep. Before every feed we have to use the hydrasense on his nose, give Ovol drops, do bicycle legs. And every feed is a war, I’ve stopped forcing him to take the bottle now. So I just cannot do shifts and the guilt is killing me bc my husband has work.

We’re lucky in the sense that my parents and his mom come during the day so he can get a good 6 hour stretch after work. Then at night he stays up I wake up every 1.5-2 hours to help. He can’t wake up once asleep that’s why he stays up. During the week his mom comes at 8 am and he has to log in at 9 am so he sleeps around 5 pm after work when my parents come and they can’t come everyday, plus his mom works in a school so starts again in September…

Shifts were working the first month before his symptoms became like this… I guess just need some sort of a “you’re not a bad person for needing him during this” because as a mom I feel incompetent...

Baby is 3.5 months. Blood in stool consistently since 7 weeks old.

Cut:
- dairy - 10/06
- soy - 20/06
- eggs - 28/07

Still blood. Sometimes lots of streaks of blood. Gaining weight fine, generally happy. Have tested for bacteria/virus etc.

Have referrals pending but have received vague messages about extended waiting periods.

Wouldn’t even know what to cut next. I am happy to go to formula but also know that would be an all or nothing approach. Also have a toddler in daycare so love the coverage she’s getting from the constant illness from breastfeeding.

Could do a diary but eat pretty much the same thing every day. And the blood is there most days.

Where did people go after this point? I’m at a loss.