u/blackcrystalyeah

Hi, I am 24 about to be 25F. My mom had very very aggressive PKD. She got a transplant at 48 and was very sick for years and years (some because of kidney stuff some not). The dr said her kidneys were the biggest they’d ever seen. I just went to the nephrologist and got diagnosed. She didn’t mention stage but said I do have multiple cysts (apparently from old records) and scheduled a formal scan. I was terrified because she said in 20-30 years I will likely need dialysis or a transplant, but that right now it’s all about slowing down growth. My creatine was .65 and my eGFR was 126. I’m getting married in 4 months and we want kids. How am I supposed to live knowing I might go through dialysis at 45? She said some ppl make it to 75 but 50 just seems so young to have kidney failure :(
I feel terrified and paralyzed at the thought of going through dialysis and being sick like my mom was. I feel so scared and would love words of wisdom.

I’ve been in recovery for about 9 weeks now. Up until last week I was almost excited to be recovering but it hit me so hard last week that all I want to do is restrict. I’ve had horrible body image the last week and everytime I see myself I’m just thinking I look genuinely horrific and it’s distressing. I’ve been showering with the lights off but I still feel so badly. Will this end? How can I get through it or do I just tough it out and keep eating? I’m seeing a dietitian and therapist but it’s been extremely difficult. I feel like I’ll never mentally recover.