u/booksandcurls7

I’ve never had kneecaps, even when I was skinny . After getting into my mid 20s my legs seem to just not keep up with my torso. I have POTS so I have a specialist who i told that i felt like my legs are always large no matter if i lose weight. She wanted me to go see a lipedema/lypmp specialist but keeps writing the referral wrong per the clinic and she has not been communicating with them well. I feel like at this point, trying to get formally diagnosed is making it 100x worse. Im pretty sure I have it but am frustrated with the medical system making it so difficult. Did anyone else on here give up on getting the diagnosis in favor of just starting conservative tx? (Photos for reference?