I've read that lipedema often coincides with Vit D deficiency, which certainly is something I’ve struggled with for years. I’ve also been dealing with pretty bad brain fog and fatigue for the last few years. Even with supplementation I cannot get my levels to get into normal range — anyone successfully improved their levels and start feeling better? Looking for tips/tricks!
TLDR- first time bandaging and it was painful and I'm feeling really sad and defeated, would welcome advice.
Hi, I was diagnosed with lipedema type III and IV a few months ago, and sent for MLD. The lymphatic physiotherapist has done some sessions, and then said that compression for my size (I'm very very tall and very very fat- over 6ft/184cm and obese) was not available. I did say I was happy to order custom knowing it was expensive and I would have to pay/no coverage, but she wanted to do bandaging. And said to keep it on until I saw her 3 days later. It was a mobilization type sandwichws between layers.
Ladies, it was awful. It felt so old fashioned and it was so uncomfortable. It tourniquetted around my (admittedly very cuffed) ankle, and it makes my shin ache so much. Not just discomfort, it was pain. I couldn't fit into my shoe, even crocs and flip flops. It was dangerous driving.i was anxious. I had to remove it after 7 hours. The ankle cuff was red and hot.
I'm feeling very badly about it. This is not sustainable. I can't wear bandages that stay on that long-- I need to shower! I get sweaty after gym and parenting my young children. I also need to be able to wear shoes to function as a human and go to work. And feel like I'm driving safely for the sake of my own family and of course every other human on the road.
I don't know if I'm feeling ashamed, or hurt, or if this just me being crazy. I'm not normally emotional publicly, but I'm getting stressed that I was told this is the solution, and it is absolutely not workable. I had an ugly cry and don't know if I should even attend another session.
Sorry that was a lot. I don't really have any one who I can talk to about this.
Diagnosed just this week. It's all a bit fresh, overwhelming and upsetting. However I'm also glad I have an answer.
The endocrinologist dismissed my progressive weight gain, since all other health markers were fine and diet globally fine “You just need to accept that this is your weight.”
The first cardiovascular specialist (woman) that I saw gaslit me. (“You don’t have lipedema, and even if you do it’s incurable anyway. Your struggle to lose weight is due to your negative mindset”)
The second specialist was fantastic, but I had to waitlist 6 months to get in to see him (France).
If you're at the same stage as me, I'd love to hear what's working for you in terms of conservative treatments and exercises?
I have a prescription for grade II and III leg compression. I have been told to stick to an anti-inflammatory diet, do lymphatic drainage massage, try some anti-fluid retention pills and start aquabiking and swimming laps.
Separately, I've already been on Wegovy for 6-7 months since I was struggling to lose weight (now I understand why!), and I have lost 12kgs.
I have fibrosis on the legs and cuffing at the wrist.
I've never felt anything like rice or peas under the skin.
I don't have sensitive legs, nor have I ever felt that they're especially heavy or painful after exercise.
They and my glutes have always been dense and tight however, which is not just muscle, or related to my chronic lower back pain, as I've always just assumed 🙃
Hey! So I live in Vermont…so you know that means super cold weather with super high snow. I have tried for hours to do research on winter boots that work for people with lipedema and I find almost nothing. the one boot I was planning to buy that I thought would work isn't made anymore.
So what has worked for you? What boots do you like for winter, not fashion ones, actual it’s snowed and I need my feet dry and warm and preferably slip resistant. Thank you for your help!
Honestly, I have liked the way these have felt on my legs today. I have had them on for almost 12 hours with no discomfort
Everything is held tight and I don't have to feel the thigh and saddlebag jiggle. Ugh! I am thankful though that the days are getting cooler. This would be terrible on a hot day.
The only thing that really bothered me at first is how high-waisted they are. It was really uncomfortable to have them sit on my ribcage for the same reason I do not wear high-rise pants. It just feels very annoying to me. I seem to have solved this by folding the panty part over and down over my hips. I am already thinking about a second pair.
This question is for my Lipedema girls who lift heavy weights. I have been lifting for over 5 years and my hands and forearms always feel weak or have very little endurance. It feels similar to my legs feeling numb almost. It’s hard to explain, but I’m sure some of you know what I mean! 😆
I have been avoiding using gloves or grips to try and improve strength but I am reconsidering those options. Very possible it is completely unrelated to Lipedema but I’m curious!
It's cool that baggy jeans are stylish, but they make me look so huge. I am 5'4" 180lbs. Barrel jeans, make me look like the name. Wide jeans make me look like the name. Skinny jeans make me look opposite of the name. Boot cut are the most flattering, but still usually too tight around thighs/at knee. I'd like something with comfy stretch somewhere between a straight and a wide or a wider thigh boot cut. And something that hits slightly below the ankle, not dragging the floor nor looking like they are cropped. Anyone have suggestions?
Hi all! I've been spiraling, again 🙃 I heard something about micro subluxations worsening lipedema, which I'm not sure is true or not, but now I'm second guessing my workout routine. I used to lift 6x a week but went down to 3 with more daily steps because I was having horrid elbow pain despite warming up a lot. Now I mainly do brisk walks, squats, RDLs, push and pull variants with lower weight and higher reps etc.. My elbows are the most unstable joints, and my upper arms are the worst problem areas with fat and pain. Very scared of making this progress faster and would love your workout tips 🙏
Is anyone having success managing their lipedema and inflammation with Zepbound 2.5 mg? I’ve been on 5 mg for almost 2 years. I lost about 30 lbs and basically all the regular body fat that I can lose. I want to stay on Zepbound because it has really helped with my swelling and inflammation, but since I can’t lose any more weight, I wonder if I should try going down to 2.5 mg?
So I found new tissue and im not happy about it and im a little scared.
I know i know, lipedema doesnt have a cure and will only progress. Its very very small lumps, like sand in a way. I flex and I still feel it there. I am self diagnosed yes but I did lots of research and took my time researching. Im HIGHLY sure I have lipedema.
But I feel like i havent been doing enough. Im living in a unsafe household and I have no where to go so im constantly stressed. Im trying to find a psychiatrist. But im doing what I can in stress management. I cant afford compression and my doctor doesnt believe that I have lipedema and in some places like a vein specialist, I have to have a referral from my doctor. I do lymphatic massages a few days a week. I dont move much but I try (its been rlly hot and I have to work)
I just want yall to know that im not perfect in treating myself. At all. And i hate it. I wish I can do more for myself but considering my situation, I dont have much motivation or much I can do for myself than just this