r/lipedema

Will not upload photos as my post gets taken down every time..

I absolutely loathe looking in the mirror .. I want to get lipo basically everywhere in order to reduce the appearance of the fat because it is driving me literally insane.
I’m not overweight per se, but the uneven fat distribution makes me look terrible, there isn’t even a shape I can compare it to as it doesn’t freaking exist ..

I’m 1.63cm and 58kg fluctuating up and down.

Has anyone had lipo and wasn’t left with hanging wrinkly skin (particularly on upper legs down to the knees).

I want to the my upper legs, knees, my upper arms, maybe chin lipo, stomach and definitely the hell of saddle bags I have …

I’m in the UK but would love some recs anywhere around especially in Europe as easier to get to as there’s not many specialists in the UK that do lipo for lipedema specifically . (Please tell me what did you get done and how much did it cost, also if you can show me b&m photos would love that)

Thank you all and please be kind 🥹🥺

I just got approved for arms and legs with Cigna (YAY!!!) but have to travel from the west coast to Atlanta. Not super convenient for my husband to come with me because we would have to get dog sitters and kid sitters. Has anyone done it by themselves? Or, he may come JUST through the surgery and overnight hospital stay but then I’d be on my own a few days.

I’m doing full debulking of legs as the first surgery, any suggestions for if I’m by myself a few days before flying back? Nervous about that.

What has peoples experiences been with Zepbound?
How quickly did you see your legs change from reduced inflammation? Did it take more than 2.5mg for you to see results?

I just took my first shot last night. I honestly don’t know how much I really struggle with food noise but today I feel like I’m ultra focused on how hungry I am because of having taken the shot.

I’m anxious to start seeing results whether general weight loss or target lipedema (inflammation and affected fat). But I also know it’s not instantaneous.

Anybody else’s legs swell up when eating even a small amount of sugar? I have diagnosed Lipedema by a vascular surgeon. I am between stage 1 and 2. Lately I have been very inflamed and puffy and my legs feel very heavy but what I recall is eating very little sugar. Does sugar need to be completely eliminated to be able to feel better? Thanks!

Has anyone here with lipedema also been diagnosed with vascular compressions (like May-Thurner, Nutcracker, pelvic congestion, etc.) or hypermobility issues? I keep wondering how many of these conditions overlap, because I see people mentioning them together more and more.

So I finally got diagnosed this year, and I have been on DIM for years already because of hormonal issues.

My Lipedema started when I got on Birth Control, and when I quit I suddenly stopped gaining weight that fast. I gained 35 kg in just 4 years while on birth control. It was insane. While not changing much about my lifestyle.

I read online how fat cells can produce a lot of bad estrogen making it harder to lose weight but also cause acne, hair loss and other problems.

So I decided to use DIM to flush out the bad estrogen and it makes my body less inflamed. But also keeps my weight in check. I have not gained weight in 5 years! Which is huge! But unfortunately have not found a way to lose it just yet.

I didn't realise how this might be a solution for others who might have an estrogen dominance with bad estrogen and how this might even help with controlling the endless swelling and gaining weight from Lipedema.

Also very angry at the doctor who prescribed me birth control and kept giving me heavier pills because I kept bleeding through. They did NOT test me at all and when I quit they even refused to cooperate for me to get something non-hormonal. I am now on a copper IUD. BEST choice ever.

Anyone in perimenopause already, what age did your perimenopause start? And what are /were your symptoms?

And did you all notice lipedema explode and progress as a direct result of perimenopause?

I am absolutely petrified of perimenopause. I’m mid 30s. For now my lipedema is under control but the thought of this exploding and being outside of control terrifies me. We should not as women have to fear normal life events, it’s really devastating and is causing a lot of anxiety

Almost every post I’ve seen here about lipedema exploding has attributed it to perimenopause or not menopause or lesser so to pregnancy

What's the term for a lipedema haver? A lipedema-er? or would it be lipedemic like how there's diabetic?

So, I'm vegan, which means I eat alot of legumes, like chickpeas, beans, etc. All these contain alot of carbs, but also fiber and protein. (Now, I'm not diagnosed, but I do have heaviness and other lipedema signs.) Alot of people say Keto is the best for lipedema, but I cant eat that little carbs with my current diet (and I dont eat this way for my health, but for moral reasons).

1. Do fiberous carbs mean less inflammation?
2. Is really keto best or do you have better experiences with other "diets"?
3. Experiences with veganism and lipedema? Good or bad?

For info, I'm 18, so no menopause or pregnancy (if hormonal events have any effect in terms of diet). Only big hormonal events in my lige have been normal puberty, birth control (the one in the arm), and some pretty bad eating habits for a while which i think fucked with my hormones. Im only mentioning this because I heard hormones affect inflammation, which again has to be fixed with diet.
I'll add that I'm also pretty new to veganism, AND my lipedema symptoms have become more obvious to me recebtly (not connected, i think, symptoms came before I became vegan), so idk, I have very little experience with this

Ofc, I'll have a talk with my doctor, but since lipedema doesnt seem like widesoread knowledge in the healthcare system yet, I figured I could ask people with the experience first!

I'll take any advice I can get!

(Sorry I'm not good at getting to my point, but I hope I got it across😁. English is also not my first language so sorry for any mistakes!)

Hello, all. I have been diagnosed with lipedema and lymphedema. Elsewhere, I’ve read that Tirzepatide is beneficial for us lucky ladies. I’ve been on compounded Tirz off and on for about 6 mos — the last three months continuously.

Have any of you found that your (private/employer) insurance will cover it as treatment for lipedema? It’s not covered for me as a weight loss treatment, and I am not diabetic.

If you are paying out of pocket, do you recommend a plan? I’ve done Ro, and just recently went through the initial steps with a variety of providers who advertise lower prices, but once it comes time to pay, the prices are inflated.

If this is not the place to ask, I apologize. It’s a different situation for those of us seeking relief for our condition vs. general weight loss.

Hello, I’m trying to find good brands for red light therapy and compression boots that would go above my knees, both of these are very affordable pricey and it’s considered an investment so I want to choose wisely, THANK YOU!!

I have been diagnosed by two providers as having stage 2-3 in lower extremities and upper arms.

I am going through perimenopause and the symptoms have been life alteringly bad. I just started estradiol (patch) and am going to start micro dosing progesterone at night by its out of stock locally.

I want to have 3-4 surgeries to remove affected tissue and excess skin. I am concerned how HRT will affect results.

Has anyone else gone through HRT for perimenopause? How has it affected your lipedema? Has anyone had surgeries and then went through perimenopause? Do you wish you waited until menopause was over?

Thoughts and experiences welcome.

I've experienced Raynaud's in my feet on and off the last 2-3 years. I also have a few chilblains (from attending too many January Buffalo Bills playoffs games in 0 degree weather🙄) on my left foot, two toes specifically.

I did a longer session on the treadmill today and when I got upstairs, my toes were purple! Purple toes is a new experience for me. The chilblain toes are definitely the worst offenders.

Does anyone else with lipedema experience this? Wondering about vein issues. Thinking I should let my PCP know and maybe a trip to urgent care?