u/boxyboyz

Palpable lymph nodes in remission

So I have two lymph nodes on either side of my neck which are palpable. I have done multiple ultrasounds of it. It is driving me crazy whenever I try to check that your and feel those nodes.

Anyone with the same problem?

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u/boxyboyz — 1 day ago

Long-term cHL survivors treated with ABVD — did you develop any secondary cancer?

Quick questions:

- How many cycles + did you have radiotherapy?

- How many years post-treatment are you?

- Did you develop any secondary cancer, and if so — what type and how many years after ABVD?

- Are you on any long-term surveillance protocol?

Even if you've had zero issues years later, please share — that's just as useful.

Thanks 🙏

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u/boxyboyz — 7 days ago

Hi,

I was stage 2A and just completed my 6 month follow up.

My question to everyone

- Did you have a PET/CT scan at the 1 year mark?

- Did you notice any fluctuation in your CBC follow ups?

- What else to look out for just to be informed?

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u/boxyboyz — 15 days ago

Hi,

I am 6 months in remission and for the past few weeks I'm experiencing neck and shoulder pain.

The shoulder pain was there at the time of diagnosis and also briefly for sometime right after chemo ended and I had a clean scan.

How the pain feels like

- The pain is sharp and particularly comes about at certain positions

- Is at it's maximum when I'm turning my neck either way

- The pain is located on the right side and on turning my head it feels like the pain starts from the base of my skull, travels down the neck muscle and ends in the shoulder.

I'm a little worried cause I experienced this pain at the time of diagnosis too. But then it was only limited to my shoulder. Should I be worried?

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u/boxyboyz — 16 days ago

Just had my 6 month follow up.

ESR, LDH and LFT are all normal and trending down since my 3 month follow up.

But this time my WBC came low at 3.7 with ideal range starting from 4

Has anyone experienced this?

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u/boxyboyz — 17 days ago