u/brydielee

▲ 0 r/iih

Advice? Help?

Is there anyone going through this that I can speak with?

I was referred to the ENT due to many issues including pulsatile tinnitus , sleep apnea along with many other things.

She sent me for a routine head MRI and it has come back with many signs of IIH
I got the report before the doctor called me so I spent the whole weekend with major anxiety - if you Google it, it doesn’t sound great.

She has assured me I’m safe and to carry on with my day to day routine. Has referred me back to the GP as it’s out of her area, I need to get my hormones checked and my eyes checked.
My problem is, I don’t have a regular GP I just see anyone who’s available as mine left. It’s 4 weeks if you want to see a GP or 2 weeks to see a physician associate. I’m giving my doctors 1 more chance and if they disappoint me again I will be changing doctors.

Just wondering if anyone has been through this as I’m quite worried :(

reddit.com
u/brydielee — 3 days ago
▲ 1 r/iih+1 crossposts

IIH - idiopathic intracranial hypertension

Is there anyone going through this that I can speak with?

I was referred to the ENT due to many issues including pulsatile tinnitus , sleep apnea along with many other things.

She sent me for a routine head MRI and it has come back with many signs of IIH
I got the report before the doctor called me so I spent the whole weekend with major anxiety - if you Google it, it doesn’t sound great.

She has assured me I’m safe and to carry on with my day to day routine. Has referred me back to the GP as it’s out of her area, I need to get my hormones checked and my eyes checked.
My problem is, I don’t have a regular GP I just see anyone who’s available as mine left. It’s 4 weeks if you want to see a GP or 2 weeks to see a physician associate. I’m giving my doctors 1 more chance and if they disappoint me again I will be changing doctors.

Just wondering if anyone has been through this as I’m quite worried :(

reddit.com
u/brydielee — 3 days ago