u/bunbunbunana

It’s back….

I am SHATTERED. A little less than a year ago I had a 4cm x 4cm x 6cm (pretty big guy for the location) schwannoma removed from my sympathetic chain (skull base). It destroyed 5 nerves and recovering from the surgery has been BRUTAL in many ways. Well, I just had my 1 year post-op MRI (two weeks from now will be 1 year) and it’s back. 7mm x 7mm. I can’t believe this is happening. I don’t really know what I’m looking for here, I just feel so defeated. I really didn’t think this was going to happen, especially not so soon.

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u/bunbunbunana — 8 days ago

Hi all :) I have hEDs and my shoulders have gotten soooooo much worse in the past 6 months or so. I really, really need a brace or some kind of stabilizer for my shoulders - ideally a “double” one that stabilizes/supports both? Does anyone have recommendations? I’m willing to spend any amount of money to help me with this issue so any recommendations are welcome. My physical therapist is great, but doesn’t have any suggestions for products

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u/bunbunbunana — 20 days ago