Has anyone experienced this rare situation? He goes into surgery tomorrow, they are hoping to remove it, or take some of it, or unfortunately it might be too entangled in the nerves. What can we expect for the recovery and healing process? I’m worried he will not be able to walk again, or do anything physical again. He is 51 years old, very fit and always moving around. Thank you.
Not sure if this is the right sub. Has anybody had a schwannoma on their mandibular nerve? I have one and don't have many symptoms at the moment (essentially just hearing loss as it's squashing hearing apparatus because it's quite large). I'm due to have an op but I'm really worried I'll end up worse off with symptoms. I think the nerve will end up majorly damaged or non functional. I've been told I'll likely have loss of sensation in the lower face, issues with chewing and jaw pain but I don't know what that looks like - will I be able to chew at all, will my face look different, will there be dental problems as a result. I'm just really anxious about it all. It just feels like my life might change forever all of a sudden with the op and I don't know how drastic it will be. I'm struggling as I've not come across anyone who has similar to me (there's lots out there on ANs for example) so I have no idea what to expect.
I am SHATTERED. A little less than a year ago I had a 4cm x 4cm x 6cm (pretty big guy for the location) schwannoma removed from my sympathetic chain (skull base). It destroyed 5 nerves and recovering from the surgery has been BRUTAL in many ways. Well, I just had my 1 year post-op MRI (two weeks from now will be 1 year) and it’s back. 7mm x 7mm. I can’t believe this is happening. I don’t really know what I’m looking for here, I just feel so defeated. I really didn’t think this was going to happen, especially not so soon.