u/can-of-pringles

Anyone Else Feel Like This?

This is probably going to sound kinda silly to others, I mean it sounds silly to *me*, but I almost feel.. emotional? About my pump slowly breaking. I'm not usually one to get super attached to my pumps or devices but this is the first pump I've had that is slowly dying basically. And like yeah I'm sad about it but a little beyond just "oh that sucks oh well" it's more like this pump lasted beyond the expected lifespan and warranty and I'm grateful for getting me through these years. IDK I guess it's kinda like a bittersweet "thank you for everything you've done for me" kinda feeling. I guess also the fact that it's slowly leaking lubricant is like an equivalent of slowly bleeding out in a way. I will also add that I'm autistic and that sometimes it's kind of an autism thing to anthropomorphize items. I'm not like sobbing heartbrokenly sad but it feels like "Aw man this little pump worked its little motors out" (I mean it's thankfully STILL going while I painstakingly wait for a new one, it's kinda like pump hospice right now sorta...)

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u/can-of-pringles — 2 days ago

Sick of this

My top five horror stories

  1. CCS Medical saying they put my order for a new insulin pump on hold when in reality they cancelled it.

  2. Having to talk to my endocrinologist in person to get anything done with CCS and being told that CCS still thought the order was on hold and that's why it wasn't processing when I needed it to.

  3. CCS already quickly taking my money for the pump despite it taking over a week to get here because of their stupidity.

  4. Having to wait over an hour on hold every single day trying to call CCS for an update.

  5. Being on hold for over 40 minutes then the call dropping because of the Wi-Fi, then calling back and being on hold for over two hours only to get an automated message saying that their office was closed for the day.

(No I still don't have my new pump)

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u/can-of-pringles — 5 days ago

Will Sensor be Okay during/after phone update?

My android phone is due for an update but the farthest it can be pushed back is May 20th (my 3+ sensor should last until May 30th) and unfortunately I cannot find anywhere to turn off automatic updates, I'm not worried about the compatibility because it's still the same version and stuff but I'm a bit worried about it causing temporary issues to my sensor while updating. I've googled it and it says it can cause temporary issues but again I cannot stop it from updating so would it be okay to do? Should I just update it now and get it out of the way or try to wait as long as it will give me

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u/can-of-pringles — 6 days ago

Is some bleeding normal for putting on sensors?

This is my very second attempt at trying a Libre 3 plus (and CGMs in general) yesterday at my appointment my endo gave me two samples to try. I put the first one on yesterday on the recommended spot under the arm and it hurt more than I thought, there was a tiny amount of blood, and it kinda throbbed for a while, then the readings were very off (saying that I was 49 when my bg was 87) and then I got a warning that it paused readings for quality checks for 11 hours, only made it to 7 and then it completely shut down and I had to take it off, very devastating because I worked up a lot of courage to do it. Now I have a bruise there. Today I tried again with the second sensor, slightly different placement (more to the side of my arm rather than under different arm, where I like to put my pump sites sometimes) and it hurt a bit less and I think isn't stinging as much, waiting for it to warm up, noticed there's a tiny amount of blood again... Google said this is fairly common when putting on the first time. I just really want this one to work 😢 fingers crossed?

u/can-of-pringles — 8 days ago

Asking for encouragement, first time trying to put on a CGM

I've been interested in trying the libre 3+, my endo gave me a couple of free sample ones to try but now that they're like actually here I'm kinda nervous putting one on 🥲 I can do my pump sites and stuff but I've never put on a sensor before, I know I'll be fine but if anyone wants to cheer me on that would be nice. I'm just kinda scared lol.

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u/can-of-pringles — 9 days ago

I HATE CCS MEDICAL!

I'm so frustrated, I just feel like crying. I just need a new pump now to replace my broken one and they're holding it up!!! I've already done everything I feel like I can do, I've been on the phone with them twice today waiting for two hours. They said the prescription is "wrong" and that they needed a new one from my doctor. I already called my doctor to ask them to send over a new one and now I'm calling CCS back. I miss Byram Healthcare but I'm forced to use CCS because of my insurance. This is probably the most stressful thing I've had to deal with T1D wise... Can I please just get some sympathy or something?

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u/can-of-pringles — 11 days ago
▲ 5 r/Type1Diabetes+1 crossposts

Update From Leaking Tslim X2

Okay I am stable emotionally right now. I have sent a message to my endocrinologist's care team about needing emergency backup insulin pens in case my pump suddenly dies on me (however I firmly believe it will still work in the short term). Hopefully they will see my message tomorrow morning and send those out. If something hypothetically caused it to immediately stop working right now before Monday I know there should be 24/7 care to get an emergency prescription right away. Obviously though that's a last resort.

I will also call my medical supplier tomorrow morning immediately when I get up and order a new pump using emergency loans from my parents that they managed to scrounge up using house payment stuff. I'll explain that it's very urgent because of my old pump and they should send it out quickly. Probably about 48 hours I should receive it hopefully. Though if I need it faster it said on their website that they can do expedited shipping overnight for $25.

I will also be seeing my endocrinologist in person already for my usual checkup on Wednesday. I am still okay overall and will be getting this handled ASAP. It is still a very scary situation to be in, I've never had a pump slowly break down on me before.

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u/can-of-pringles — 13 days ago
▲ 11 r/Type1Diabetes+1 crossposts

Tslim X2 leaking lubricant!!!

Y'all my tslim really is starting to kick the bucket. I found out today in the middle of changing my cartridge that the little screw is finally starting to leak the fluid to keep it moving smoothly (from all that I've looked at though there's absolutely no way it's getting into my insulin or tubing, I would've seen black fluid) but I called Tandem technical support and they weren't helpful at all and were talking about that they've never seen this before and now I'm waiting on them to call back after I sent pictures of it that they needed. I thought it was random black ink from writing on the box of insulin this whole time for at least a couple of weeks... I'm going to call my medical supplier first thing tomorrow morning to get a replacement order started... my parents are having to scramble and get loans and stuff. I'm very very stressed. And I don't have any emergency insulin pens... Again I can't do anything today since it's Sunday :( at least my endo appointment is next week. My bloodsugar has been normal for this week though

u/can-of-pringles — 13 days ago

Personally I feel way too introverted to go camp with strangers for like a week or something but that's just me. I used to go to day camp as a child, but like that's different because I feel like when you're a kid you're used to hanging out with people you don't know that well and then you become friends because that's like expected?

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u/can-of-pringles — 21 days ago