u/captnfirepants

Having PT from neurologist's orders to hopefully help my balance issues. It's kicking my butt. I go every Mon and Wed and it takes me out for at least 24 hours. I'm laying here just wrecked and they've been taking it easy on me. Tomorrow will be crap and I'll feel better Wed just to do it all over again. I will say that I have really good days Friday, Saturday, and Sunday. I'm fine for much longer.

Nothing is helping. Extra strength Tylenol or CBD. The only thing that helps is sleep.

Anyone else experienced this??

Just had VIP and got to tell the band about my dad.

My dad had alzheimers and I used to show him video I took of zakk sabbath nine years ago. It's really good video from the mezzanine. Anyway, my dad loved watching it. Made him really happy. It was brand new and like Christmas every time. You know, when someone is dying you do all of the things that make them happy. It's one of the reasons I love seeing them. ❤️

Would have been nice if it was first thing you see on their website. We're only three hours driving from Detroit. I even called earlier to see when the doors open and NOTHING on the recording. I did get a ticketmaster email yesterday so, I'm sure it's all my fault.

No fuss though. This is the most time I've spent with my boyfriend in months. Added with a romantical meal at ihop, life is good.

See you in November Zakk.

*****EDIT Fuck you downvoter

Diagnosed five years. Been having issues again since Nov. Low dose chemotherapy, iron infusions, blood transfusion, 20 lbs of fluid retention, new meds, and increased meds. One month in hospital and one month inpatient rehab.

I miss one dose and the cramps start 10 min after I eat. Think I'm going to start wearing my pink depends with ruffles on the butt again. *sigh

I'm so fatigued every day that I sleep through doses sometimes. My mom helps wake and remind me but, she has her own issues and misses days too. My phone and Alexa are set on highest volume and I don't even remember that they went off. I wish medicare covered assisted living.

Yay Stoopid Lupus!

This is just a venting session. I'm handling my problem tomorrow.

I (55F) was diagnosed five years ago and became disabled during a week in the hospital. I had to learn to walk again type of disabled. I have lupus nephritis as well and started having problems with my kidneys again in December. Long story short.... I received low dose chemotherapy 5x, iron infusions 5x (that didn't work) ended up spending a month in the hospital with severe anemia and at 3b with kidneys. Also developed high blood pressure. Spent another month inpatient rehab facility learning to walk again. I was just released Friday.

They put me on so many new meds that I'm horrified by the amount. Around 20 pills a day. I'm also bipolar. I don't like what it's doing to my mind. My moods are swinging like a wrecking ball, my memory is scary bad, and I just can't think straight. I had a Dr's appointment that I've driven to so many times. I used to live in the area. I got lost going there and so damn lost coming back that a half hour drive took an hour and a half. Haven't talked to anyone about it because I'm not only really embarrassed, but have only just now put it together in my mind.

I'm going to talk to my pharmacist, rheumatologist, and nephrologist tomorrow about how all of these medications are interacting.

I watched my father die from dementia three years ago and I'm terrified that it may be happening to me.

I'm scared and very tired of being scared.

It's just a lot.