u/charlieparis75

▲ 18 r/MdDS+1 crossposts

I recovered. So can you.

The people who recover from this weird illness leave these forums/subs. We never really read about recoveries and it feels like it's a never ending story. So here's my recovery story: I hope it will make you feel better.

Last March, I had a horrible headache that lasted for two days. I got dizzy instantly and couldn't even go to work. I felt like I was on a never ending cruise but the symptoms completely disappeared when I was riding my bike or in a car. I saw several doctors who had no idea what was wrong with me. I heard about vestibular migraine, pppd... I'm not gonna lie, I had dark thoughts. Really dark. I cried everyday thinking this would be my life now.

My shrink prescribed me 250mg of Lamotrigine - a medecine that's usually for bipolar disorders. It was supposed to help me cope with stress. A few weeks later I saw a doctor who diagnosed me with mal du débarquement... and that's when my recovery started (yes, Mdds can be spontaneous...).

I think putting a name on my illness helped me a lot.

I started to feel better after ~ 3 months into this illness. I was even able to go on a 21km hike! I don't know if the Lamotrigine I'm taking is the reason why I'm feeling better, I don't think so because it's not an antidepressants... But today, I'm 95% back to normal. And it's getting better everyday. Sometimes I feel a bit off but it only lasts a few minutes.

This journey has been horribly stressful and made me realize I was dealing with too much shit in my life. I put my body under so much stress, it basically told me to f*** off and went on strike. I still see a vestibular phisio, I still do VR to help me get back to normal but it's ending soon. MdDs usually disappears in 6 months, and my doctor was very clear about this: YOU RECOVER FROM MDDS. IT'S NOT FOREVER, IT EVENTUALLY GOES Away. I'm into 5 months of this.

Sending you all lots of love 🩷

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u/charlieparis75 — 1 day ago

Could it be pppd?

6 weeks ago I had a really bad headache for two days. Right after, I got dizzy. I got tested for everything: vestibular physio, MRI, everything you can think of... and the results were always OK. My symptoms totally disappeared for a whole week when I was on vacation but they hit hard the day after I came back.

Since then, I've felt dizzy every day and it's exhausting. I am absolutely depressed. The dizzyness stops when I'm riding my bike or when I'm in a car and they get worse when I sit at a table for example.

I can still go to work but I'm exhausted. It feels like it's never gonna go away and I'm so, so scared. I feel like it fits pppd's symptoms but I'm hoping it might be something else.

I started to see an orthoptist because I apparently have a convergence et divergence problem with my eyes but so far, no doctor has been able to help.

It feels like I'm on a boat 24h since I came back from vacation 20 days ago. I can't live like that.

reddit.com
u/charlieparis75 — 3 months ago