r/pppdizziness

Guys, how did you get your PPPD?

Hello there.

I have some doctors appointments coming up where I’m going to be asking about PPPD.

I’ve only just recently learnt about this condition but I’m wondering if you lovely people can identify if these symptoms sound related.

About a year ago, I had a prolonged ‘anxiety attack’ which resulted in me being in an out of hours GP (or Dr) here in the UK. The GP felt I was under incredible stress and sent me on my way. I never ever go to the doctors for anything so this was very real and very scary for me.

Since that night, I’ve never quite felt right, every day there’s this lingering ‘off’ feeling which can get quite intense in most situations, such as:

- driving on a motorway (or highway)
- queuing in any form such as in airports, even going to a bar for my partner is quite intense once I become aware of my ‘off’ feeling if I am stood waiting in a queue
- at work I sometimes find myself escaping chats where I am stood up and have to make up some rubbish to get away from the situation so I can sit down
- standing in general, such as in a smoking area at work (I do not smoke but go there to socialise) I can find standing VERY uncomfortable all of a sudden, almost like I’m falling into myself?
- just relaxing I can feel this sensation, such as watching tv with my partner at home
- it really feels like this nasty ‘off’ feeling can get me ANYWHERE but can intensify in social settings or situations where I am seeing alot of visuals like the supermarket or any store in general really.
- a rocking or floating sensation, which seems to be totally random when that gets me
- going down stairs, but strangely not up!

I know a lot of this can be down to generalised or social anxiety however, I was medicated for this a year ago (Citalopram 20mg) - and symptoms certainly ‘improved ’ but I still don’t feel ‘normal’. It’s really starting to affect the quality of my life where I am struggling with the most normal things such as going out for a meal or doing any of the hobbies I love.

Apologies for the long post, I just know this is hard to get diagnosed in the UK and I want to gain some insight and comparison on your symptoms to mine and if they sound very similar.

To be clear I am not asking for you to say ‘Yeah you totally have PPPD!’ I’m just gathering your opinions on my symptoms and if they compare to any of yours. Please do share anything you experience similar to mine or in general as there is way more I couldn’t list.

Thank you for reading!

Hey folks!

I haven’t heard much about this but I think I have it.. I had strokes last year and I’m a bit of a hypochondriac in general so I’m always anxious. In the last month I’ve been under immense stress and very suddenly I have developed dizziness.. it isn’t a boat swaying dizziness like some say and it’s not vertigo.. it’s almost like things are too vivid and too bright and my vision gets overstimulated… walking feels like I’m floating… if I focus a lot on the dizziness it usually starts to cause pressure in my head and ears… then of course adrenaline hits and heart rate goes up.. I wonder if anyone feels anything like this… it’s only been a month and it’s really debilitating and I’m literally calling out of work because of it. Everywhere I walk I feel like I have to try and ground myself and doesn’t work… I also noticed that if I looked down on my phone and look up, it gets me immensely dizzy… does this sound familiar to anyone?

I was diagnosed with light PPPD 3 years ago. It went away for a while. Now I struggle a bit with balance and coordination and my legs feel sluggish and slow compared to before. Has anyone experienced the same thing?

Is anyones dizziness non stop i read so many have it come and go in waves/ periods wondering if anyone has had it non stop accompanied by occipital severe neck pain and scalp tightness

Is it common to feel physically exhausted with 3PD and VM? Some day are very good, I feel strong and can do my workout. And some days I feel very tired, like I was ill or did not sleep for days....

I've had Pppd (undiagnosed) for at least 10 months now, and I'm still trying to understand its patterns and features. Is there anything that can make the symptoms worse? Maybe being in a cold weather, air drying your hair, having a cold or a stuffy nose ecc. I feel like the symptoms come by their own randomly lately, but i wanted to know if there is something that I could avoid

Anyone who feels a 24/7 constant floaty feeling as if something is inside their head? Even while lying down? Want to know how many have this sensation as me

I’m thinking about trying one of these out to hopefully help me relax when I’m having bad days - which seem to be more frequently lately since I went from 25 to 30 mg of Amitriptyline. 👀

hello i am posting after a long time
i am suffering with this since 1 year now 😔
if there is any cure plss let me know thank you 🙏🏻

can everyone say how their pppd makes them real, try describe the feelings you feel as best as you can so we can all compare and feel validated