u/Charbellaa

I don’t know if there just sensitive or what but I can’t eat chocolate makes my teeth zing feeling like horrible sensitivity … no cavities had my teeth checked.

Haven’t been in years and I’m really severe, last time I went I had a very deep filling right next to the nerve on my back left top molar that absolutely killed me for weeks after it was done. This was back when I wasn’t as severe… I eventually probably will need a root canal one day but anyways

I did not want my other right side molar to get in the same state as my left side molar and my teeth are really sensitive when I eat chocolate etc so I thought I’m definitely going to need alot of fillings doing

Turns out my x rays didn’t show any fillings needing doing apart from that back right molar had a little bit of a black shadow on the x ray and wasn’t near the nerve so he said he could fill it or could wait 6-12 months and use some toothpaste and interdental brush inbetween to help it. I chose to get it filled since I was already made the trip there! Used non adrenaline numbing. Was quite quick had my ear defenders on and sunglasses ear plugs.

Quite surprised as I only have been brushing once a day if that ! but i do floss after every meal so maybe that helps?

One thing i wanted to mention that has worried me was the receptionist had a cough and the dental nurse assistant had a cough too! I was masked up in reception but of course not while my mouth was open in the chair! So this really made me anxious, what is funny is they send you this questionnaire before your appointment to ask if your sick or had Covid in the last 7 days or have any symptoms, the irony!!!

I got home and decided to email the receptionist ( I honestly don’t really care what they think lol ) I sent a nice email asking about if anyone was infectious as there was a lot of coughing and it made me anxious … as they know I have chronic health conditions and can’t afford to get sick, I sort of just said I’m immune compromised to make it sound abit Simpler to them … lol I know they must think I’m crazy but oh well!!!

Am I the only one who is so anxious about getting viruses now? I got home scrubbed my hands and used a nasal spray rinse but not much else I can do now!!

I’m also kicking myself because I didn’t have any of my proper n95 masks I had to use two surgical blue masks doubled up which I know isn’t even that great in protecting you but :(

Glad I went and I can rest knowing my teeth are at least ok for now. Won’t be going back any time soon that’s for sure!

Just hope I don’t get sick from going there knowing my luck 😩

Anyone else with these symptoms?

Vertigo attack triggered sensory overload and forehead squeezing and I loss my ability to sleep ( literally micro minutes ) for 2-3 months ended up in hospital. Seems like anything can push my system in to a very severe state. I’m now very severe since the vertigo happened. I’ve even put on diazepam but need to come off soon.

Anyone had anything Similar from a vertigo room spin nystagmus event? ( likely bppv) after it got left with all this weird on going motion orientation stuff and my brain would not fall into sleep because of it.
And it sensitized all my systems where I’m now bedbound in a dark room. I was housebound before this.

On 10mg for around 4 months … want to drop to 9.5mg etc and do 0.5 drops… can I just break up 2mg tablets into quarters I’m worried the cuts won’t be precise???

I’m feeling a depression feeling I think like some hours after my dose. Like a sucidial feeling I’m not sure if it’s the benzo or what… as I’m Bedbound with health conditions anyway… and that effects me itself mentally

Currently not tapering yet been on it for 3-4 months. But looking for people who was taking it if they experienced this? Or what kind of symptoms did you experience while on it?

This happened to me in February woke up with room spin for 1 minute seems like bppv but room stopped spinning after that it hit all my sensory vestibular systems extremely. Any visual input couldn’t tolerate after this vertigo attack. Then having motion internally going on in my brain and I completely loss the ability to sleep. Every time my brain tried to sleep it got bounced back with a head spin feeling that’s how I know this is vestibular orientation related. Like the signals are messed up and my brain doesn’t think I’m safe to let me sleep. I lost my sleepy feeling completely. Tried resting this out for 2/3 months and I deteriorated to the point of suicide attempt due to severe sleep deprivation I had no sleep at all must of had micro black outs for seconds or minutes my body deteriorated went into akathsia adrenaline couldn’t eat. Had to be hospitalized no sleep meds worked apart from diazepam helped somewhat I guess with the vestibulur side which I’m on still but I’m still Bedbound and nothing is improving. My brain isn’t going into deep sleep like it use to before vertigo happened, can’t tolerate visual input I’m resting doing everything it doesn’t change a thing

The vertigo triggered something bad in my brain chat gpt says it’s treating any visual input as danger and your brain won’t transition into sleep becos the vertigo internally is getting tagged as unsafe to downshift into sleep

It’s like having an over stimulation crash but it doesn’t resolve with rest because it wasn’t stimulation that triggered it it was vertigo so it’s much worse and extreme. I need help I honestly am at the end of my rope here it’s been 6 months now of this.

I’ve never heard of this happening to anyone!!

I don’t want to be on this benzo I want to get off but what’s going to happen to me when I do? How can you lose your ability to sleep completely? I’ve had insomnia severe but not to the point of no sleep at all it’s insanity

I know vestibular and sensory systems are tightly linked and always fragile nervous system it’s taken a massive hit. And the brain thinks there’s something wrong cause of all this on going motion internally happening that it won’t allow me to sleep.

Before this I was housebound with nervous system issues

When I mean I loss the ability to sleep I mean like nothing but micro black outs for minutes if I was lucky.

Roughed it out for 3 months tried some zopiclone didn’t touch me ( it use to knock me out at the lowest dose ) and I basically ended up losing my mind and suicide attempt. Body deteriorated with extreme agitation and Akathisia from severe sleep deprivation I lost the sleepy feeling completely

After nothing working I was put on diazepam ( never touched benzos in my life and don’t want to be on this) and I will need to taper soon.

I’m stuck in a dark room with sensory sensitivities to lights and sounds and my sleep is light fragmented with every night some sort of vivid dreams but no deep sleep. Can also still feel some of the on going vestibulur motion going on so everything is still there but diazepam is keeping me alive at this point

I basically had a bppv kind of vertigo attack after waking up in the morning only lasted 1 min but what followed after was insane. Visual input was so overloaded nausea all this motion going on in my brain, since that night my brain stopped sleeping like a switch. Chat gpt says vestibular orientation signals are being seen as a threat with on going motion and my brain won’t allow to drop into sleep. Completely makes sense. I have nervous system problems due to long covid and ME.

Whenever I’ve seen someone have vertigo they have the opposite problem and are fatigued and sleep a lot but nope not me cos I’m cursed and this is the worst shit that could happen to me. Also people usually do some exercises and the vertigo stuff gets better but my brain has opposite problem becos it’s extra sensitive and becos of loss of sleep nothing will recalibrate

Sensory vestibulur sleep transition problem = fucked

Just need to share my story hoping to come across someone who has experienced this level of torture

I need to rest in a dark room as visual input stimulation makes me even worst ramps my nervous system up

I’ve dealt with insomnia for years from long COVID but never to the level of no sleep at all like that. Like every time my brain tried to sleep after the vertigo it would get hit with this head spin rush and boom awake after a second … so I know this is vestibulur related but no one can tell me how to fix this

I’m very worried I will lose my mind again and end up offing my self again when I come off diazepam

I’m in a very nasty trap

I’ve noticed it does this. But the problems I have is more like sensory input overload vestibulur and sleep and blunted internal body cues. ( long story )

Feels like the benzo is keeping me from going into an adrenaline agitated side but nothing else.

Like emotionally mentally and physically has anyone felt complete numbness?

I have long Covid and ME and I had something happen to me in February long story but I had a vertigo attack and started having sensnory issues to lights sounds forehead squeezing, all motion spinny feelings orientation problems laying in bed and all my body signals were numbed out before I even took benzos. I couldn’t feel sleepiness hunger reduced touch all over my body no urge to pee really… can’t feel temperature properly…

loss the ability to sleep completely was only having micro minutes every few days. Body deteriorated developed agitation akathsia from such severe sleep deprivation…

I had to be hospitalised and no sleeping meds worked for me apart from diazepam so I’m now had to be put on that. I still have no signals from like body to brain all internal signals are completely reduced.

No one can tell me wtf is going on with me
The benzo I guess is keeping my dysautonomia hr lowish and keeping me out of crisis agitation state but my sleep is not normal no deep sleep light sleep only waking up. No feeling of going to sleep or waking up no drowsy feeling I think the benzo is helping somewhat what this motion internal vertigo orientation stuff but it’s not the answer.

Me and the doctors are stumped on what to do.
I think the benzo is causing a depression feeling and also sucidial ideation and numbness mentally but I had all the other stuff prior to benzos so I just don’t know

For reference I’m on 10mg diazepam

Hi everyone, I’m wondering if anyone here has experienced something like blunted interoception or reduced body signals.
I’ve had Long COVID/ME-type illness for around 6 years. For a long time my symptoms were more like adrenaline/hyperarousal insomnia, dysautonomia-type symptoms, sensory sensitivity, etc. I used to feel everything very strongly — adrenaline, heart rate, tiredness, symptoms building up.

Then in January I had a cold/viral illness, and in February I had a room-spinning vertigo episode. Straight after the vertigo stopped, it seemed to trigger a severe high-gain sensory/vestibular state: light sensitivity, sound sensitivity, nausea, forehead pressure/squeezing, and internal motion/orientation sensations, especially when sitting or lying down. It felt like motion was happening “inside my brain” rather than the room moving.

From that day, my sleep changed completely. Through February to April I was barely sleeping — sometimes only tiny micro-sleeps every few days. My heart rate wasn’t even always high at first and I didn’t feel a normal adrenaline/threat reaction. A few times, when my brain tried to drop into sleep, I’d get a sudden head-spinning sensation, then eventually it felt like my brain stopped even trying to transition properly into sleep.
After about a month, my body flipped into a much more agitated/autonomic state — higher heart rate, severe agitation, sound sensitivity, akathisia-type restlessness from sleep deprivation. I tried resting in a dark room with no stimulation, but it didn’t resolve. Zopiclone didn’t touch it. I later tried daridorexant and it made the internal spinning much worse, and I ended up in hospital from severe sleep deprivation/agitation. I was eventually put on diazepam because nothing else helped calm the vestibular/autonomic crisis.

The strange thing is that even before diazepam, my body signals started becoming more and more numb/blunted. It’s like the symptoms are still there underneath — forehead squeezing, vestibular motion, sensory gain — but I can’t feel them properly anymore. I can’t reliably feel tiredness/sleepiness, hunger, bladder urge, adrenaline, exertion signals, or whether I’ve slept. I wake up and it’s like I’ve just opened my eyes — no normal half-asleep feeling, no sense of having gone into proper sleep.

Diazepam seems to be keeping my heart rate/adrenaline/autonomic crisis more controlled, but it hasn’t brought my body signals back. I still have sound sensitivity, vestibular/orientation issues, and abnormal sleep. It feels like my brain/body signalling has gone offline or is being heavily filtered.
Has anyone had this kind of interoception/body-signal blunting after COVID, dysautonomia, vagus nerve issues, vestibular problems, or severe sleep disruption?

I’m especially wondering:
Did your body signals come back over time?
Did it feel like your nervous system was “numb” rather than wired?
Did anything help restore hunger/thirst/tiredness/bladder/temperature signals?
Could this be autonomic/vagal dysfunction, sensory gating, vestibular-autonomic dysregulation, or something else?

Would like to chat personally if anyone from the uk is seeking MAID

Please comment below

Thanks

This is a weird one but I wonder if anyone has noticed this

I never feel sleepy at all, no tiredness no sleep drive, I’m on diazepam atm so when I “ fall asleep “ when I wake up it’s like I’ve been laying there I don’t feel any half awake drowsy feeling that I use to have, or have a sleepy puffy face in the morning… do you know what I mean?

It’s just nothinglessness

The change of symptoms and decline is absolutely insane from when I got this in Nov 2020 to now.

I started off covid Nov 2020 purely neuro symptoms no viral symptoms apart from loss of taste and smell which is more neurological no fever no cough then after I started with classic ME PEM crashes brain fog sleeping a lot derealisation stuff for 2 years (2021-2022)

Think I had a cold virus at some point in 2022/2023

Then I started getting air hunger shortness of breath 24/7 for a year and a half (2022-2023)

Was already housebound by this time and majority Bedbound due to so much suffering of air hunger like something pressing on my chest 24/7

Then second Covid infection hit me Nov 2023… was already housebound at this point anyway and in bed months later started having weird chlorine smells 24/7 and a mild headache for 2 straight weeks then a month after had a major sensory over load crash bedbound dark room couldn’t tolerate lights sound motion forehead squeezing feeling , motion sensations adrenaline heart racing insomnia that resolved by 2-3 weeks in bed

Then I got left with severe insomnia hyper sensitivity of the nervous system adrenaline feelings was Bedbound housebound 2024-2025

Was more body sensations than brain so I could do alot of meditation and CBTi for insomnia and alot of nervous system regulation stuff that actually helped me I also took cbd that helped abit too

Then 2025 I move house get a very instant improvement for 3 months my sleep was normal no adrenaline I could do more being housebound I tried going out once or twice a month to the park but started flaring up but was more functional in the house my heart rate was lower … then October 2025 I must of over done things ended up back with adrenaline stuff severe insomnia bedbound slowly climbing my way out of that from October -December 2025 with pacing and lots of calming meditation

Oh and then January 2026 I get a cold virus ( not covid ) head cold no sore throat more like congestion in my nose head typical symptoms wasn’t too bad lasted for 2 weeks

After I got over that started getting weird symptoms
Sorry if this is TMI but a week after I recovered I got a very high sex drive out of no where which isn’t normal for me at all. And I mean 24/7 high sexual arousal which I know now is as a sympathetic stimulation response.. which I’m guessing the immune system as stimulated the nervous system or something

No typical symptoms like adrenaline I use to have etc, then I was feeling just weird and stuff all of January, was getting uterus bladder pressure pains lower back pains ( I’ve had these before) thought might be a uti no uti . It’s like Mis firing nerves going on I don’t know… then I’m on my phone more probably not resting my brain as I should
Then I was on my laptop and I started getting that feeling come over me like too much stimulation started heart rate up and sweating and forhead squeezing

Then February my sleep was just getting weirder felt like I wasn’t sleeping then I woke up in the middle of the night one night with my brain is this strange state that scared the hell out of me checked my hr and it was NORMAL like wtf. But I felt like something was wrong brain was all slowed down and laggy I felt panic but it was like the panic wasn’t coming through properly called the ambulance as I felt so weak and like something wasn’t right, on the phone to the ambulance it was like I had to really concentrate on what I was saying like everything was so slowed down even my own thinking and words. I thought I was having a stroke but tests came back no stroke no obvious signs of one. My hr did go to 150 when ambulance came I think from the panic but it was like I couldn’t even feel my heart rate being that high!? Strangest thing.

Went to hospital and I remember feeling like derealisation feeling and people walking past me felt horrible like motion sensitivity my brain couldn’t process stuff. Got home and slept some

Days after still my brain was weird and slowed down but just brushed it off

THEN 5 days later I’m tossing my head around in bed cos I can’t sleep and I wake up the next day turned my head and have the rooom spinning with nystagmus that lasted 1 min I’m guessing bppv. What was weird is I had no reaction to the vertigo usually you’ll get panic and hr goes up and your scared I had no reaction it’s like the signalling interception signals were completely blunted

As soon as that vertigo stopped BOOM everything exploded … sensory over load hit me like so so bad I couldn’t tolerate looking around my room moving my eyes at all any visual input, nausea forehead squeezing I had lots of on going motion going on but no active bppv just constant motion when I was laying down or sitting closing my eyes my eyes were rolling around like my brain couldn’t find orientation, that night I loss the ability to sleep completely no sleepiness no sleep drive nothing at all, with all this motion going on my brain tried to dip into sleep and would get hit and bounced back with this head spin rush feeling then it stopped even trying to sleep, rested in bed dark room thought it would improve… it did not. All my signals were blunted no tiredness no hunger no urge to pee just numb, reduced sensations to touch everything.

Tried sleeping pills sleeping meds nothing worked… I was not sleeping at all I had micro minutes every few days the whole of February I still was trying to rest it out and thinking I’ll sleep eventually… body ended up flipping out in March from no sleep I was deteriorating badly with adrenaline got more sensitive to everything couldn’t tolerate nothing at all the signalling was getting even more numb from the sleep deprivation. At this point I was completely losing my mind, yeh I still had on going rotational motion internally in my brain when closing my eyes and stuff but i didn’t care about that it was the fact my brain wouldn’t sleep because of it my gp tried me on another sleep meds called Daridorexant BIGGEST MISTAKE caused the motion I was having to turn into full blown brain spinning and was a second knock to my vestibular system my eyes were going everywhere and crazy I couldn’t eat I couldn’t function at all

Long story short I ended up sucidial and trying to end my life in April and had to be hospitalised due to sucide attempt and severe sleep deprivation I was so agitated and akathsia feelings from the stress in my body was sedated with lorazapam that finally gave me some relief of some sleep and calmed my brain down

Forward to now since April I’ve been on diazepam daily cause no one knows what else to do with me, i am still having reduced sensations and weird interception signals no sleepiness hunger etc feel numb still, I’m getting light rem sleep on the diazepam I’m still Bedbound but I can eat. I still have motion feelings I can feel coming through so I know everything is still underneath. But I think the diazepam is suppressing the motion vertigo enough to get some sleep maybe I don’t know. It’s also helping my dysautonomia so my hr is lower and of course threat signals are lowered but I’m not getting better and I don’t know what to do anymore

I’ve had enough of the suffering and constant change of symptoms every other year it’s something new that happens and this is by far the worst I’ve ever suffered. Not being able to feel your own body signals is crazy. When I was the opposite before.

No one has anyone answers for me.
Chat gpt has been more helpful than any doctor.

So my symptoms now are

- reduced signals no tiredness no feeling like I’ve even slept no hunger or thirst, no urge to pee sometimes, reduced sensation of touch to skin
Can’t feel squeezing forehead pressure or symptoms properly even tho I know they’re there!becos sometimes if my hr is lowered or at night I’ll start feeling things coming through ( very strange ) it’s like they get masked throughout the day

If I do get any adrenaline it comes through as some sort of weird vibrations now

- sensory over load to visual input
Sound sensitivity

- Motion vestibulur stuff comes through sometimes too

Sleep deprivation im sure my brain isn’t going into deep sleep always having rem lights keep …

Im sure the decline happened after the January virus and the vertigo tipped it over the edge

It’s like all messed up signalling resting in bed dim room doesn’t seem to do anything for me now

I’m this close to giving up 🤏🏼🤏🏼🤏🏼

Oh to top of off I live alone my fiancé of 13 years left me 2 months ago, having to sort out carers and I literally have nobody in my life at all. Family think I have mental health issues and I’ve blocked them out my life.

I’m considering applying for MAID when I have enough money saved up because I just can’t keep on doing this. Or doing it myself again. I’m so drained. I’m on a benzo I’ve never been on medication i always stayed away from it as it made me feel worst. Now I’m on a fcking benzo so that’s great. More problems in the future from that. I feel like I’ve been through enough im 30 years old and im just tired now of it all

Don’t expect anyone to read this as it’s so long but just want to document my story and leave it on here if anyone ever comes across the same symptoms as me .

X

I think my major problem is signalling issues

Anyone had any advice or experience with treatments for this?

Don’t feel sleepy no sleep drive
Don’t feel hunger
Don’t feel pain much
Feels like brain and body are numb
Reduced feeling of touch all over body

Mine is this forehead squeezing feeling to lights any visual input sound sensitivity… also vestibular motion orientation brain spinning feeling.

There must be meds for this it mimics vestibular migraine I’m guessing some Similiar pathways are being triggered here?

Dark room resting doesn’t do anything…
Benzos not doing much either but suppressing vestibular system… giving me some light non restorative sleep.

For me this all happened after a vertigo attack in February.

Oh and of course severe severe insomnia.

Anyone experiencing this?

After I had a bppv attack in feb classic rolled over in bed nystagmus 1 min attack

I was left with lots of on going motion and my eyes rolling around when I closed them,really bad sensory overload to visual input, severe insomnia after this.. long story short I tried a sleeping med called dar Daridorexant which made the spinning so BAD and was like another vertigo knock to my system. Ended up in hospital with severe sleep deprivation cause my brain wouldn’t sleep I had so much on going vertigo internally and it felt like my eyes were going around and around but there was no nystagmus but it’s like if I tried to look and gaze at something my eyes felt like they were going around in circles or dragging away from the object but they wasn’t I checked in the mirror…

Anyway becos I couldn’t sleep and failed sleep meds I had to be put on diazepam which has given me some sleep I’m guessing cos it’s a vestibulur suppressant which I’ll have to taper off it soon it’s helping me a lot atm

I just wanted to see if anyone has experienced this type of stuff laying down lots of motion and eyes closed feels like I don’t know where I am in space and thus weird eye thing where you can’t look at something cause your eyes feel like there going around in circles or something plus sensory over load feeling my forehead squeezing pressure to stimulation

I’m awaiting some testing to be done but I feel like the vertigo attack triggered all this but then taking that stupid sleeping med made the spinning even worst! Made my vestibulur system go absolutely nuts I couldn’t even walk. It was like a second knock to my system! Then add on severe sleep deprivation becos for some reason my brain wouldn’t sleep with all of this happening at all. It’s like at the sleep transition part my head would get bounced back with a weird head spin feeling. I literally couldn’t sleep at all and I loss my sleep drive like no sleepy feeling it’s like my brain completely doesn’t trust my orientation system.

Any experience with this stuff?

* I do have long Covid and ME so I’m super sensitive with my nervous system so I can’t do normal vestibular rehab like a normal person would .. also the main problem was my brain not allowing sleep so that’s why I had to go on diazepam as no other sleep meds worked or caused even worst vertigo!

Visual tracking screens anything makes my forhead get this squeezing feeling and heart rate goes up feels like everything is too much for my brain