r/BPPV

I was diagnosed with BPPV and it’s completely traumatizing. Have had the Epley twice which honestly makes me feel worse for a week. I read recurring episodes might be linked to a vitamin D deficiency. Has anyone been shown to have a vitamin D deficiency, increased their intake, and seen an improvement? Or is that just wishful thinking and too easy?

Hi everyone,

I have long-standing Ankylosing Spondylitis with significant spinal fusion and very limited spinal mobility.

A few days ago, I developed a cold/cough and took Cefuroxime 500 mg, which I had used previously. A few hours later, I suddenly developed the worst dizziness/vertigo of my life. The room felt like it was spinning and I vomited. The severe dizziness improved after vomiting.

The next day I took Cefuroxime again, and around 2 hours later the dizziness returned. Because of this timing, I suspect Cefuroxime may have triggered the initial episode, although I know I can't confirm that.

Since then, the vertigo has continued. It is much better when I sit still and look straight, but movement, getting up, walking or turning brings the spinning sensation back. I also have a strange sensation around my left ear, although my hearing is completely normal.

I saw an ENT who suspects a positional/vestibular cause, possibly BPPV. However, the usual Dix-Hallpike/positional testing couldn't be properly done because of my spinal fusion and limited mobility.

I've also been prescribed Vertin (betahistine), which has given me some improvement, but the movement-triggered dizziness is still there.

The biggest problem is that I cannot lie flat or move my spine normally, so I can't simply do the usual Epley maneuver. I tried a positional exercise once and it actually made me vomit.

Has anyone with AS/spinal fusion experienced BPPV or similar vertigo?

If yes:

- Were you able to get diagnosed without the standard positional tests?

- Did you use a modified maneuver because of spinal limitations?

- What treatment/exercise worked for you?

I'm mainly looking for experiences from people with AS and significant spinal mobility restrictions.

Thanks!

Hello guy's I'm 20 yrs old

on 15th August(4 days back) i Woke up with violent rotational vertigo. The entire room spun violently whenever I opened my eyes after sleep with cold sweats

And there is some beep sound in my left ear

And spin begins when I lay in bed and turn my head to the right

The doctor gave me some medication, spinning stopped but there is some mild heaviness in my left ear/left part of my brain from my left eye

Right now my mind feels numb and dizzy and foggy i can't even study

Yes before this vertigo i had screen time of 13hrs

I want to know what caused this

Is this recursive?

Is this treatable like can I get rid of this completely?

What are the chances I will get this again?

I'm so scared it's my first time experiencing this and it feels like I'm trapped

I was diagnosed with BPPV, but my symptoms don’t really feel like typical vertigo. I don’t have the classic spinning sensation. Instead, I feel extremely dizzy/lightheaded, almost like I’m sinking, floating, or like I’m about to faint.
It gets much worse right before my period, and the worst part is when I try to fall asleep. As soon as I close my eyes and try to sleep, the sensation can become so intense that I genuinely feel like I’m going to die. It feels like I’m sinking/floating and losing my sense of orientation, rather than the room actually spinning.
Has anyone with BPPV experienced something similar, especially without rotational vertigo? Could BPPV cause this kind of non-spinning dizziness, or could something else be contributing to it?
I’d really appreciate hearing from anyone who has had similar symptoms.

My BPPV started on June 3rd. I was experiencing vertigo with a strong spinning sensation, and after looking into my symptoms on ChatGPT, I found out that it could be BPPV.

I did the Epley maneuver, and thankfully, the spinning sensation completely disappeared. However, I still felt like something was off. I felt unbalanced and generally not quite normal.

At that point, the main thing I could do was focus on vestibular exercises. I started doing exercises where I would look at my thumb while keeping one foot in front of the other and slowly move my head from left to right for one or two minutes. I also used to stand with one foot in front of the other, close my eyes, and move my head from left to right. These exercises helped me a lot with my balance and recovery.

I also came across information suggesting that vitamin D and K2 deficiency might play a role, so I started taking those supplements as well.

My recovery wasn't instant. It gradually improved day by day. Then, around one and a half months later, I realized that the symptoms had basically completely gone away.

Honestly, I had almost lost hope because I kept reading Reddit threads and stories from people saying that their residual dizziness lasted for months or even stayed permanently. That really made me anxious about whether I would ever feel normal again.

But my experience was completely different. I recovered Alhamdulillah.

I think it's important to remember that the stories you see online can sometimes give you a very distorted idea of how common certain outcomes are. People who are still struggling are much more likely to post about it and look for help, while people who recover and move on usually don't come back to update everyone.

So if you're currently dealing with residual dizziness after BPPV, don't automatically assume that you're going to have it forever. Recovery can happen gradually, and everyone's timeline is different.

I'm sharing this because I remember how hopeless I felt reading those stories, and I hope someone else going through the same thing finds this and feels a little more hopeful.

You can recover. Don't lose hope.

72 hours ago I had my first vertigo experience. I was packing to go on a trip and all of a sudden I got really hot and sweaty. I lied down and then stood up again and Everything started spinning really fast. I found a spot that when I lied down felt okay. Next time I stood up it spun so bad I vommitted. This went on for the next 6ish hours and then I took some Dramamine. I got meclizine and zofran from the doctor and the last two days the spinning isn’t as bad but I’m still definitely dizzy/nausea and can’t walk around too well. I’ve been epleying a couple times a day but doesn’t seem to have any effect. How long is this going to last for my first episode? I have a trip to Europe next week and feel like it might be in jeopardy. Any tips / thoughts / stories ?

I had my first attack this year last June. It was with the classic room spinning. I went to chiropractor and had treatment with a TRV chair. I had this treatment 7x (i think now that i had too much of this). After the 7th time I went to ENT doctor, which told me that i don’t have vertigo anymore and the nystagmus is gone. So i stopped going to the chiropractor.

3 weeks I don’t have the spinning anymore but every time i do some chores or home activities, I get tired very easily that I had to lie down.

On the 4th week, we had a vacation (this was planned for a long time). The flight was almost 24 hrs in total. When we arrived in our destination, I had chest pains and a really bad headache that I was confined in the hospital. Every time i close my eyes I felt that Im being swayed gently (up and down or side to side). They gave me Betahistine which made it worseee. Ended up having Dimezine. This helped a lot. Just after 2 doses. The swaying stopped, but this makes me very sleepy.

3 weeks after my confinement, I am still not 100% ok. No more swaying or spinning but I feel that my head is not the same as it was used to be. Im trying to do some exercises myself with the eyes. Does anyone have/ had the same symptoms and can share what helped? I just dont know what to do anymore. This also causes me to have increased heart rate often (they check my heart in the hosp and everything looked normal). Feeling that this caused me panic attacks too😭

Had my first ever experience with BPPV for about a week when I finally went to the doctor and she told me to try the Epley maneuver at home. i did it once that same day and almost threw up and was too scared to do it again, but did it 3 times yesterday and haven’t had any dizziness since ( i would get extremely dizzy when laying down on my left side or back) i guess my question is do i need to take it easy the next few days incase it comes back? or is it fixed and i can carry on as normal?? i’m a big reformer pilates person and haven’t been able to do so because of all the laying down - can i go to a class now?? these seem like stupid questions but i’m genuinely not sure how to proceed 😅

Hii
I want to know if anyone felt postpartum dizziness after 6 months of postpartum, i am 7 months postpartum suffering from high bp but control with tablet amlodopine 2.5 mg i am taking despite normal bp I always feel dizziness 24/7 from last 6th days, I want to know anybody feel the same and how to overcome with this, please help me very frustrated not able to play with baby
My symptoms like something in brain going on, lightheaded , feels like drunk

So I am dealing with what I believe is BPPV. This may be the fourth time I've dealt with this, but this time is different. The first few times I strictly had spinning when laying down or turning over in bed, and they only lasted a day or two before just disappearing. But this time I've had symptoms outside of bed. It started on Wednesday, and when I was moving around the kitchen making dinner, I suddenly got really dizzy. I was able to finish cooking my meal but it felt like I was dissociating the whole time and everything felt kind of unreal.

Since then, I've still had off and on light dizziness when turning my head certain ways, but not quite as intense as the first day. There are some moments where I feel okay, but a lot of the time I just feel...off. If I scroll on reddit for too long I start feeling off again and need a break. Playing games, even ones that are very simple without flashing make me feel off. I'm constantly worried if I move wrong that I'll get really dizzy again. Just having to unload and load the dishwasher was scary because I couldn't stop worrying. I'm scared to cook meals because of how much you have to move your head around. The last thing I want is to fall in the kitchen.

Now, obviously the main suggestion from people is to see a specialist to do that maneuver and that they need several sessions. However, I've been out of work over a year and have no insurance and just can't afford multiple sessions out of pocket. (And no, I cannot get on medicaid, I dont qualify in my state.)

I already take vitamin D, B12, and iron because I was always a bit low on each. But after some more reading, I doubled my dose of vitamin D and am taking an extra B12 every other day. I also tried taking a claritin last night for the first time, which did seem to help a little bit so I might continue with that. I wouldn't rule allergies off the table since lately I do seem to wake up with runny and/or full noses. I've been careful to move slowly if I need to turn my head or pick something off the floor.

Since I can't get professional treatment, do I just have to wait it out until the crystals dissolve? I'm honestly a bit terrified after reading people's experiences. I already struggle to find work because of my other medical issues, but this would put me out entirely. I also can't imagine if I'm never able to drive again. I've been trying hard not to let my thoughts spiral but it's hard when I feel stuck and unable to get professional help. I've read that waiting it out is fine, but then other people said it's bad to wait because then the next occurrences will be worse or something. It feels like all the opinions on treatments and what to do is so mixed that it feels impossible to get a clear answer.

So honestly...what do I even do? I'm a little afraid to do those maneuvers myself at home because I don't want to make things worse if I do it wrong. Is it safe enough to try at home? What else can I do? I'm really scared.

Hii
I want to know if anyone felt postpartum dizziness after 6 months of postpartum, i am 7 months postpartum suffering from high bp but control with tablet amlodopine 2.5 mg i am taking despite normal bp I always feel dizziness 24/7 from last 6th days, I want to know anybody feel the same and how to overcome with this, please help me very frustrated not able to play with baby
My symptoms like something in brain going on, lightheaded , feels like drunk

I am in my 50’s and had not had a bad BPPV episode for about 6 years but woke up with a bad one about nine months ago. Now it seems like I am getting one every 3-4 weeks which always happens right after waking up from sleeping flat/on side. I do the maneuvers (Epley, Semont) which seems to give some relief at least stops the spinning but because they keep reoccurring, maybe my brain never has time to fully recalibrate to ever get to 100%? I always feel slightly dizzy and “off”. Sometimes when I roll to sleeping on my side I feel a drop or tilt feeling in my head like something has shifted. Does this happen to you? Super frustrated and just want to feel like myself again. I have seen vestibular PT, and two ENTs who said tests look normal. When will these episodes stop and this PPPD go away? I also grind my teeth at night, have mild C5/C6 degenerative disc in neck, and EDS. Are all of these related? Does anyone feel a slight vibration/quivering in their ears when they turn their head at night? Feel a “tilt” sensation in your head with certain movements? Is this part of PPPD? Has anyone had the surgery to keep the crystals in place? I also do West Coast Swing dancing , which I love, but it has been making in debilitating to do this at times. My vestibular PT says keep doing the things that make me dizzy to get over it but that hasn’t fixed it. Often it makes it worse. Any advice? Seeing my naturopath this week and just want answers… thanks in advance.

Hello,

I used to be an extremely active person. I ran, did strength training, swim team, water sports, roller coasters, travel, etc.

In the last five years I've suffered with chronic dizziness episodes - dozens of trips to a vestibular therapist. I've probably done the Epley like 100+ times. Some have definitely been BPPV and confirmed with PT/nystagmus. I suspect a lot of PPPD is thrown in there and potentially VM issues - although I have not been formally diagnosed with these last two things.

Please share success stories with me. I have returned to strength training, although not as intense as previously. But I am anxious about traveling (planes/boats). I avoid roller coasters and theme parks now. And most importantly, being in water frightens me. And I'm such a fish. I'd love to be scuba certified. To surf again. To wakeboard again. To do flip turns in a swimming pool. I used to be very adventurous and down for anything and now I struggle physically and mentally with being more sedentary.

If you've experienced chronic BPPV or chronic dizziness from VM or something else, can you confirm that you've returned to a normal active lifestyle? And also any tips if you have them?

Thanks so much.

Sooo THISSS is gonna be a bit longg butt I'D REALLY LOVEEE IF YOU GUYSS HELPP THIS TEEN OUT HERE OR NOTHING JUSTTT PLSSS HELPPPP. Alsoo, thiss is my first time posting sumthn on reddit lawl. (Not the first time but LIKEE okayy whatever)

NOTE: I'VE BEEN EXPERIENCING THIS FOR PAST 2-3 YEARS BTW. EVERY 6 MONTHS THE SPINS LAST 6-7 DAYS BUT THESE LAST 2 MONTHS I'VE EXPERIENCING THEM TWICE THAT TOO MORE THAN 10 DAYS A MONTH YKWIM.

I feel like the room is spinning, and it's positional vertigo btw because spins only get triggered when I'm tilting my head or looking up or down, or rolling over bed. I get 6-7 spins every day and EACH SPIN LASTS FOR 30-50 SECS. THAT'S IT. 30-50 SECS PER SPINNNN

ANDD this used to go on for LIKEE 5-7 days but for the past 2 months, this occurred twice a month, and lasted for more than 10 days.

I went to an ENT 4 days back and mentioned each and every symptom and forgot to mention the main one THAT IS THE TIMING OF EACH SPINN sooo after I was done with explaining to him whatever the hell is going on with me, HE TOOK A NOTE AND WROTE ON IT (IN BIGGG CAPITAL LETTERS BTW) — MENEIRE'S DISEASE LIKEEE surrrr??? Areee we really diagnosing MENEIRE'S without any actual testttt??? (Correct me if I'm wrong but I've done my research and as per that NO ONE CAN DIAGNOSE MENEIRE'S WITHOUT ANY ACTUAL TEST)

I did my research on the BPPV LIKEEE alottt in the past 2-3 years ANDDD had been bugging my mom ever since to take me to an ENT and get it tested with that Dix-Hallpike test and finally we WENTTT out 4 days ago and doctor didn't waste a single minute to diagnose me with Meneire's.

Sooo I visited him today as well and explained to him the timing of the spin correctly, and asked him to actually test me for BPPV but he went like BPPV LASTS FOR ONLY FEW MONTHS BUT YOURS IS THE CASE OF YEARS and that there's no test for BPPV and that I've to get CT scan or MRI and stuff. (did my research on that as well and came to know that CT scans and MRI doesn't help AT ALL in detecting BPPV)

EVEN THOUGH I TRIED MY BEST TO EXPLAIN TO HIM WHERE I'M COMING FROM HE JUST DIDN'T GET ME AND PRESCRIBED ME 4 MORE DAYS OF MEDS FOR MENEIRE'S.

SOOO ALLL I WANNAA ASKK IS IF I'M THE ONE WHO'S IN DELULU AND THINKING THAT I'VE BPPV ORR SHALLL I GO TO ANOTHER ENT 'CAUSE THAT'S WHAT I'M PLANNING TO DO BTW.

Andddd I know I've said that I did my research many times but i actually did my research soo yeahh HELPPP MEEEE. I'M NOT SAYING I KNOW BETTER THAN ANYY SPECIALIST BUT I DIDD MY RESEAR-

Hello all I’ve been dealing with this weird dizzy off balance swaying sensation usually only when standing up or walking and turning my head or shifting weight. Urgent care and ENT doctor say it’s BPPV or some other inner ear balance issue but didn’t really give me advice how to make it go away. Anyone else deal with this?

had my first ever attack about 8 weeks ago that was resolved with an epley. i’ve had multiple tests at the doctors since and they have all confirmed im negative for bppv now. however, i am still experiencing disorienting dizziness and nausea every single day since. this is made especially worse when lying down and moving my head or just moving my head in general especially in the morning.

the only thing that seems to help me is a medication called prochlorperazine but im not allowed to take it long term as it can have bad side effects. i thus only take it on especially bad days. i was also prescribed betahistine which you CAN take everyday long term but it has done absolutely nothing for me so i stopped taking it.

i’ve been told the wait time to see a vestibular therapist on the NHS is one year and i can’t afford to see one privately so im unsure what to do. i thought i was getting better a few weeks ago but it seemed to get worse again. i was told by the dr to go back again in a few weeks if i didn’t feel better but i just don’t know what else they’ll do for me. feeling kinda hopeless rn i just want this to go away.

M, no prior history of this. I’d occasionally get nauseous/dizzy just sitting down at restaurants like as soon as i sat and got heavy dizziness and nausea , no clear reason — not sure if that’s related at all. Then about a week ago, after 5 days straight of golfing/football in the heat (probably not hydrating enough) and getting drunk with friends a few days before that, I woke up with sudden dizziness/nausea — worst triggers were lifting my head from lying down and sitting down and sitting in cars or driving, both would cause an instant wave that settled after 30 sec to a min but always left unease

Took Dramamine which helped a lot, stayed hydrated, and did one Epley maneuver session (with my girlfriend helping, held each position 60 sec) about 4-5 days ago. Had a big improvement right after — no more actual spinning since or dizziness crazy since then

Since then it’s been a gradual climb: felt about 75% better a couple days ago, now feel around 80-90% better No more room-spinning, no pain, vitals normal. What’s left: some mild head fog, occasional “off” feeling in my vision (not blurry, just not 100% sharp), and I notice it more specifically when I go out (driving, stores, gas station) versus resting at home but it’s always low- mild I’ve been resting inside a lot this past week (also gaming a lot), so not sure if what’s left is genuine residual BPPV stuff or just being out of practice with normal movement/activity after a week of low stimulation.

Does this sound like normal residual recovery, or does the “only when I go out” pattern seem off to you all? Trying to figure out if I should keep easing back into normal activity

First time getting BBPV and did the balance goggle test with ENT specialists and was diagnosed with multi-canal issue. From what I understand, anterior is more rare but I also have the more common posterior. Anyone else been in this situation and how many maneuvers were done to clear it? Any other insight to share as it's affecting my mental health as much as my physical body, feeling hopeless that I won't ever feel back to my normal self again.

The ENT said my anterior showed stronger signs, so the Yacovino maneuver was done. I am feeling better already than before. Previously when I would shake my head up and down (as one naturally does when passively listening to someone talk), my head would feel floaty and light headed. I don't think that it is happening anymore but I've also started to train myself to avoid those type of movements. However, if I understand correctly, the ENT would still have to separately do the Epley maneuver to treat the posterior issue next since they only treat one canal at a time? So if I do still feel "off" then there isn't certainty whether it is remnants of the anterior or the posterior that hasn't been treated at all?

Lastly in regards to symptoms, is it common to have brain fog after a maneuver is done? The best way to describe this is having a hard time speaking and finding the right words I want to use. If anyone is trying to speak in a foreign language, the effect is the same that articulating my ideas are harder.

Also, is it a coincidence that I've been "blacking out" when going from sitting to standing up as if it is a blood pressure issue? I think this started happening when the vertigo started so I suspect it is related. Hoping this will go away when all the crystals are cleared?

Thanks in advance for the help! This has been a very challenging time and embarrassed to say that I even teared up at the DRs office after they performed the test... so much anxiety about whether I'm stuck in this mentally debilitated state forever. Welcome any thoughts and insights please!