u/Lost_Addendum4678

Would anyone like to hangout if they are in Woodbridge, Virginia or Fairfax, Virginia. It can feel really lonely when no one really understands what you are going through. Btw, I am 23F, would prefer to meet up with any other females.

Anyone taking glp, or Other weight loss injections/ medications? I have gained about 50 pounds after starting Zoloft for PPPD, which has really messed with my confidence and was wondering if anyone has been on weight loss medication and if it impacted their VM, pppd symptoms?

Anyone taking glp, or Other weight loss injections/ medications? I have gained about 50 pounds after starting Zoloft which has really messed with my confidence and was wondering if anyone has been on weight loss medication and if it impacted their pppd, vm symptoms?

My insurance has changed to Anthem Blue shield, and I am in Virginia (near Woodbridge, and Fairfax).

Anyone has a doctor that understands PPPD and Vestibular migraine?

My insurance has changed to Anthem Blue shield, and I am in Virginia (near Woodbridge, and Fairfax).

Anyone has a doctor that understands this condition and Vestibular migraine?

As soon as I wake up, my arms feel heavy, disgusting, and keeping it together to my body. When I start walking to do something, it starts to feel so bad. I feel like I am walking a little bit fast and also my head starts to feel squeeze, pressure (sometimes there is no head pressure feeling) and a bad unbearable feeling, and then I literally can’t do anything and start to feel like I will panic, even just doing simple tasks like going to open a water bottle or even just TALK 😭

• I want to mentally relax, but even just thinking about giving lettuce to my bunny and walking there and sitting, I start to feel symptomatic and feel sick even before doing it.

• Nothing feels casual anymore, it’s like mentally exhausting just thinking of doing things, even just walking to another room.

• Moving my arms and legs feels like something I do consciously, doesn’t geek unconscious anymore! I can FEEL all my movements

• It feels like I need to keep doing something. Just waking up and thinking of the whole day feels overwhelming. I feel like I need to fill my schedule so I don't just feel ‘bleughh’ and just sitting there for time to pass, which is so depressing to think of. It feels mentally exhausting.

Medication: I changed my Zoloft dose from 37.5 to 50 on July 11 (it has been 33 days). I am wondering if it should start fully working for nervous system dysregulation and PPPD by now.

P.S., my doctors are totally clueless. These are just some of my symptoms, but I do have PPPD since May, 2025 and had all the dizziness and everything but that has gotten better, however I am left with these unbearable symptoms since a flare up a month and a half ago.

Does anyone get this heavy, uncomfortable feeling in arms and legs, making you want to cry because it feels so “off” and uncomfy, even in hips.

I feel like this feeling is so bad that I start to clench my hand and scrunch my face, hold my breath and stop what I am doing. Even stop talking!!!

Can’t seem to relax ever

This happens without headache also, but sometimes with headache, heaviness and pressure

Does anyone get this heavy, uncomfortable feeling in arms and legs, making you want to cry because it feels so “off” and uncomfy, even in hips.

I feel like this feeling is so bad that I start to clench my hand and scrunch my face, hold my breath and stop what I am doing. Even stop talking!!!

Can’t seem to relax ever

Is this migraine related. This happens without headache also. I also have pppd.

I have PPPD (Persistent Postural Perceptual Dizziness) since May, 2025 and it got better with Zoloft about 80%.

However, there is also possible vestibular migraine, and since a flare up about a month back, I have this really bad, disgusting feeling in the head (mostly without headache and pressure) due to which I start to scrunch my face, pull my skin, scrunch my shoulders up and clench my hands into fist, brace myself, curl my toes and unable to do small tasks because doing everything feels bad.
My limbs also feel really “Off” and sometimes heavy, or pressure in different parts of the limbs & hips, and hyper vigilance.

I also feel like I need to pause in between conversations, stop talking and doing things since it feels awful. Lately, from 2 weeks, even just thinking of giving a response or talking, I start to feel awful feeling in my body and don’t even talk much.

My primary symptoms are less related to dizziness/ vertigo now.

My dose got increased to 50mg from 37.5 about 4 weeks back to overcome the flare up, but still in this situation. Has anyone had months long flare ups while being on medication?

I feel like I am getting in that cycle again, where I am going to see doctors again 😭 because I am unable to do small things, my body just feels awful and uncomfortable. Anyone*** ***feels the same symptoms?

I have PPPD (Persistent Postural Perceptual Dizziness) since May, 2025 and it got better with Zoloft about 80%.

However, there is also possible vestibular migraine, and since a flare up about a month back, I have this really bad, disgusting feeling in the head (mostly without headache and pressure) due to which I start to scrunch my face, pull my skin, scrunch my shoulders up and clench my hands into fist, brace myself, curl my toes and unable to do small tasks because doing everything feels bad.

My limbs also feel really “Off” and sometimes heavy, or pressure in different parts of the limbs & hips, and hyper vigilance.

I also feel like I need to pause in between conversations, stop talking and doing things since it feels awful. Lately, from 2 weeks, even just thinking of giving a response or talking, I start to feel awful feeling in my body and don’t even talk much.

My primary symptoms at the moment are less related to dizziness/ vertigo now.

My dose got increased to 50mg from 37.5 about 4 weeks back to overcome the flare up, but still in this situation, and now I am thinking maybe VM is also a possibility and it is not just PPPD and anxiety.

I feel like I am getting in that cycle again, where I am going to see doctors again 😭 because I am unable to do small things, my body just feels awful and uncomfortable. Anyone has the same symptoms? And anyone taking Zoloft with a VM medicine that has helped?

Do you ever get constant weird and disgusting kind of feeling in the head, which isn’t really a headache and so you can’t do anything because it just feels so bad, and so I keep on rocking my legs and making weird faces, clenching my teeth or hands, almost like my body is externally showing how I feel inside. I feel like not even talking, stopping mid sentences and even thinking of doing things causes this symptoms so I don’t feel like doing anything, cuz I feel so terrible. And I even hold my breath. Ughh. This is a symptom that has been prominent rn for me, although I have gone through so many symptoms of pppd (persistent postural perceptual dizziness), which started in May, 2025…

This feels so mentally draining

I am taking Zoloft 50mg. Was on 37.5 which really helped, but 6 weeks back I got a flare up with all my PPPD symptoms and increased my dose after that to help, but it is still like this, especially the head feeling.

Pls help. Can anxiety cause all this?

Hi! I am having an influx of symptoms since May, 2025 after contracting mononucleosis (which doctors are not sure if I got it at that time or the anti bodies were just high due to some other virus) and having vertigo, dizziness, and unusual body sensations. All my medical tests, MRI, etc, are totally normal and in the end, I was able to find PPPD (Persistent postural perceptual dizziness) through ChatGPT and the doctors think that is what best explained the dizziness. However, there are other intense symptoms that are not related to PPPD… could this be extreme anxiety?

• A disgusting, awful feeling inside my body because my body just doesn’t feel normal and feels “Off”.

• My arms and legs sometimes feel heavy, or somehow just wrong, making me feel like I need to escape this feeling and kinda pace, and I keep moving my legs to feel a bit better

•Simple tasks become hard and I leave them halfway… e.g., I needed to make an avocado toast, it felt like there was something so wrong in my body, I paced around the kitchen and mentally had to prepare myself to open the fridge and take out things, not because I was scared, but my body just felt so off, when moving my arms.

•Feeling my arms and legs, like I can actually feel them moving, and my brain doesn’t filter out these things… I can feel when someone sits on the sofa and that part sags.

• Head feeling terrible, not a headache, but something very disgusting that I feel like I need to throw everything I am doing.

•I pinch my face or hold my hands tightly in a fist to try to feel better or brace myself e.g., sitting in a car and pushing my legs and myself in the seat.

OEven just thinking of doing something, like texting someone, or cleaning my room, even before vocally saying it, I start to feel terrible and symptomatic.

• Body doesn’t feel peaceful ever, and I try my best to distract myself, like watch TV, sit with my bunny, etc. because when I am distracted my symptoms go down by 70% mostly.

•My body tensing all the time, shoulders scrunched,
Arms tied to my side even while typing this…

P.S., I had almost all the symptoms in the book in May, 2025 and I started taking Zoloft in November and I would say I was doing 75% better although I still had symptoms daily but able to function.
A month back, all these symptoms started to return slowly, and I got a new PCP since my insurance change and I increased my dose from 37.5 to 50mg since July 11, 2026. The doctors really don’t know what is going on and I have been to many since this started.