u/chikitty87

▲ 44 r/MCAS

I don't even think I'm histamine intolerant at all, even in MCAS

I'm definately healing and getting better, but not there yet. But been able to eat so much better lately.
The weird thing is that I'm now able to eat almost anything and the things that still trigger me a bit are not even high histamine foods.
SO Ive been eating pizza, even drinking wine a bit, avocado, chocolat, wheat, sugar, pastries, pasta, tomato, all of that....I'm pretty good.

BUt then I get this huge reaction to a sip of coconut water which isn't even suppose to be high in histamine, or some type of nuts I reacted to (stomach pain and itching) when they contain no histamine.

Truely, it's so random!!! I had so long where I didnt even have any safe foods at all, zero. I'd starve myself because it was that bad. So I'm grateful and I know what I'm doing is working and I dont want to complain but I can't help but now question this whole histamine thing.

So I am having histamine reactions to non histamine foods? But no reaction to histamine foods. Like...how?

To be honest I think some days it's just eating, just eating triggers

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u/chikitty87 — 5 days ago
▲ 100 r/MCAS

I think flares makes me a little "manic-y"

I get kind of hyper, impulsive (online shopping), talking but oversharing because it's like I don't think before I speak...
I either act almost overconfident, or I get overly emotionally trigger by nothing. And yes, the rage and impatience too...

I'm starting to think none of it is really me, it's all histamine. Especially the hyper and impulsive stuff. Like I don't think about what I'm doing or saying and I'm restless.

Does anyone relate?

EDIT: I'm not actually manic btw.

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u/chikitty87 — 25 days ago
▲ 12 r/MCAS

Ladies, do you flare badly during your ovulation day? Describe your symptoms!

So I'm having a HELL of a day just to find out why. Hormonal shift are a huge trigger. I feel mentally unstable, detached, weirded out, doom thinking. Stomach cramp, feeling like I want to binge eat, feel worthless.

Looking for some other stories and resonance. Only people who know get this.

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u/chikitty87 — 2 months ago
▲ 14 r/MCAS

HUMOR! I had to get a new passport and I had to make a photo in a flare. Now I have a passport that doesn't even look like me XD XD XD

Sorry but this is funny. I can laugh about this as I'm on the healing journey and now I'm looking back like WTF! Now I have a passport for next 10 years reminding me of this shit. I don't even look like me, I look like I could be my aunt or something. A thick bulky swollen jawline, hamster cheeks, swelling on the side of my nose a bit, saggy eyebrows. Also my hair got so thin!

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u/chikitty87 — 2 months ago
▲ 5 r/MCAS

MCAS messing with personality. Stomach dictating how I feel!

I see a lot of people have anxiety from flares but for me it's the opposite. I feel like nothing bothers me? I had times where I even felt stupidly happy for no reason. Like I was on drugs. It was a lot of fun until I noticed I couldn't snap out of it and it was dangerous (not seeing harm with men for example!)
It was like everything was good all of the time.

I have neurological mcas combined with neurological thiamine deficiency and B12 deficiency most likely. After covid and a panic attack I couldn't even read or write anymore. I've come a long way but I feel unstable.

One moment I care about something, the next I've forgotten en couldn't care less, then I;m angry, I flare, I feel happy and hyperactive again.

When I feel that stomach cramp come on I feel myself change on the spot. I don't care about anything anymore except wanting the pain to stop.

I even feel like every time I flare my memory gets erased! I swear!!

Does anyone relate? Nobody else gets this. I know I sound crazy.

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u/chikitty87 — 2 months ago
▲ 115 r/MCAS

This might sound strange but anyone have actual moodswings or feeling changes from foods?

When the histamine flares and I get the stomach pain, I become another person I swear. I become wired, hyper, aggressive, oversharing.
So damn annoying, and then when I eat something animal based like meat or eggs I feel weird in another way again.

The annoying thing is that when that stomach pain hits, all I want to do is eat eat eat eat. So I go aaaaall over the place.

I guess I'm just asking if I'm not crazy and this is a thing? Anyone else have this?

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u/chikitty87 — 3 months ago