u/crypticryptidscrypt

hi all. i am 26 almost 27. i have been dealing with severe organ prolapses for nearly a decade—when i was 17 i started having a stage-4 rectal prolapse with every single bowel movement. now i know it's because i have a connective tissue disorder, but it just started happening & for years i didn't know why, & i was mortified & scared to tell anyone even the people closest to me, but i would just meticulously clean the tissue of my large intestine that would pop out of my body with baby wipes, & afterwards i would pop it back in. when i had relatively normal bowel movements (like solid poo) this was exponentially easier—less painful, & less time consuming than what i deal with regularly.

when i was around 20 i started getting really bad GI bleeds & bloody diarrhea. my digestive system is really slow, so instead of all coming out at once like a solid poo, there would be like a million rounds of it where i would be stuck on the toilet for hours, unable to reduce the prolapse even if i tried (if i try to reduce it before everything is fully evacuated, it just hurts & bleeds more)... i've been having these symptoms of IBD on top of my EDS dysautonomic shit causing gastroperesis, so when i'm suffering from GI issues which is usually, i am literally stuck for hours on the toilet in pain; it's like i am forced to birth my own organs every other day.

i've been dealing with GI bleeds now for 6 years, doctors won't help me, & they just blame the prolapse but the GI bleeds make the prolapse unable to reduce for hours at a time, & it can't all be the prolapse because i was dealing with it for years before the bleeding started, & a lot of the bleeding comes from higher up in my GI tract... also i went from ~147lbs since the bleeding started to now less than 100, & i'm 5'6 so my BMI is only 16 now. it feels like i'm wasting away & no doctors care to listen... the pain is exponentially worse than when i gave birth via c-section (i literally laughed & refused painkillers after), or when i broke both my arms in elementary school. no doctors care about either the eldrich bodily horror i am forced to deal with regularly, the disabling chronic pain, the weight loss, the blood loss, or anything at all. ugh

my other organs started prolapsing a few years ago too. it happens if i'm straining on the toilet for too long, but i don't know what else to do, because how else can i get all the blood & shit out so i can finally reduce the rectal prolapse... the most painful prolapse i get at times, & now relatively frequently, is enterocoele... i get these lumps in my groin—these throbbing hernias, but it's not at all the same as uterine or vaginal prolapse (had vaginal after sex once like a decade ago, & uterine to stage-3 during pregnancy), & i can feel my small intestine being tugged down, & it radiates crippling throbbing pain throughout my entire abdomen.

i don't want to eat ever again; every time i eat i have to deal with my fucking organs falling out. i would rather starve to death tbh, but i need salt at least for my dysautonomia shit, or else i faint & get tachycardia & sometimes other random arrhythmias...but i seriously am considering fasting indefinitely; i am still in so much pain from being stuck on the toilet for hours last night