r/PelvicOrganProlapse

I was at a cross country event for my son in a camp chair as I’m 2wpo and I didn’t want to push it. I saw a casual acquaintance from my job and after a “well don’t you look comfy” comment I quickly explained I’d had surgery. After she acted very concerned, I explained hysterectomy (figuring it’s fairly routine and most people know someone who’s had one-to put her mind at ease.)

I think the first words were actually, “I tossed a few organs.” To which she replied I believe in keeping all of those. Um, okay, weird…I was just trying to be to be light hearted. Then after explaining hysterectomy she launched into keeping her body in tact as intended and how she’s the only person in her family who has gone through natural menopause. I explained that mine had to go, they weren’t good. She kinda brushed that off. Before I could launch into the “Well they were trying to exit on their own”(prolapse) rebuttal we were interrupted thankfully.

I didn’t know people could feel that strongly about my uterus.

Edit-typos make me crazy

I'm a male, and I have a suture rectopexy surgery coming up for a rectal prolapse that I've lived with for over 20 years. I'm very scared to have the surgery done. I currently can go to the bathroom. The only thing abnormal is my rectum has to come out for me to go. I'm tired of living like this. I'm afraid once the surgery is done I won't be able to pass a bowel movement "normally" and I'll be constipated. I would like to know, preferably from a male if you have had this surgery, did you regret having the surgery, or wish you had it done sooner? My doctor isn't clarifying this enough for me. I don't want to be incontinent or constipated after this surgery. I'm not dealing with any of that now. Any feedback on this surgery would be very helpful negative or positive. Thank you

I had a full hysterectomy, tubes removed, cervix removed , cystocele repair, rectocele repair and a mesh sling for my bladder on Thursday. Im 36. I stayed in the house for about 26 hours post op then came home with a catheter because I failed my voiding test. I am still in unbearable pain. Its Sunday and I've been unable to get intouch with any after hour surgeron or anything. My sister who is a nurse practitioner said to go to the ER. So that's where I'm heading. Had anyone else dealt with pain that just kept getting worse? Im unable to cope with this. I don't mean to be such a baby about it but I'm really suffering and need some help. Would someone else go to the ER if they were experiencing this? Has anyone else experienced this? This is awful.

Hi!

I’ve had a cystocele for 7 years. It was a grade 1 for a long time and I managed it ok with pfpt. After a recent increase in symptoms and the addition of some new ones - I went to a urogyn for the first time and learned that my cystocele is a grade 2, and I also have grade 1 rectocele and uterine prolapse as well.
I go in for more testing over the next 2 months. Urodynamic testing, and an ultrasound, as well as keeping a voiding diary for my bladder.
I’m 34 and done having kids. I’m heavily considering surgery to have all 3 fixed, which might include a hysterectomy. (They would leave my ovaries)
The surgeon I’ve found is a highly rated urogyn with 20+ years of experience and she uses divinci robotic surgery.
If you’ve had a surgery similar to this: all 3, robotic, with or without hysterectomy. How was your recovery? Are you pleased with the results?

Well, I think it did anyways. I can’t tell if something else I did around that same time as starting pelvic floor PT actually made it worse. At 3 weeks postpartum I was diagnosed with stage 1 bladder prolapse. Around 4 weeks postpartum I started having really bad SI joint pain where I was limping very badly and could barely walk. It happened after I lifted up my toddler too quickly. I started song some gentle exercises my friend who is also a PT (just not pelvic) gave me to help with my SI joint pain and in about 2 weeks it improved. But once I was cleared for exercise at my 6 week check up, I started Pelvic floor PT and started doing a lot of kegals (although I I was doing kegals every now and then on my own prior to seeing a PT). But then one day we were out and about with my toddler and I was wearing my newborn in a carrier (only about 8 lbs at the time) and I started feeling pain in my public bone (I think?) and had to take the carrier off because the pressure hurt way too much. I laid low for the next few days but I was still going on a gentle walk with my dog and my daughter in the stroller. Around that time (I think 8 weeks postpartum, my prolapse got reallllyyy low. Like the bulge is so big now and even touches my legs when it’s really flared up. It goes back in when I sit or lay down but immediately drops out when I stand no later how hard I try to breathe and have good posture. I definitely don’t think it’s stage 1 anymore. It looks more like at least a 3 but I wouldn’t be surprised if it’s a 4. I can pee most of the time but every now and then I have a strong urge to pee but when I do it’s hard to start the stream and only a little trickles out and it hurts.

I’m absolutely miserable. I do have an appt to get fitted for a pessary but I am nervous it’s not gonna help. I can barely walk around the house, hold my newborn, and definitely can’t hold my toddler. Just basic daily movements are hard. I’m so discouraged. My PT said I was so kegals incorrectly - I was lifting but not squeezing first; I need to close and pull up. I told her my symptoms have not improved and she said I just need to keep doing kegals.

But I’m questioning whether the kegals were making it worse. Or maybe it was something else. Like the diastis recti exercises I was also doing (I have a 3 finger separation). Or maybe just some of the other things I was doing before it got really bad.

Any thoughts? I really need support and encouragement!

Other things to note: I’m currently 12 weeks postpartum and breastfeeding but planning on weaning soon because I’m going that will help improve my prolapse? I feel extremely guilty that I’m weaning because of this but mentally and physically I cannot handle it on top of trying to get my prolapse under control. It’s consuming my life.

MRI showed rectocele, intussusception, cystocele, and vaginal/uterine descent. I also have a full thickness rectal prolapse. My symptoms are mainly incomplete evacuation with frequent bowel movements, pressure and discomfort after bowel movements and mucus/fluid leaking.

My surgeon said she didn’t think a rectoplexy would fix my symptoms. And didn’t propose fixing the intussusception. Not that I presume to know more, but from what I’ve looked into, my symptoms could be related to my diagnosis. Has anyone experienced this? She said she would still do the surgery to fix the prolapse.

I’ve done pelvic floor therapy and adjusted my diet. I am also going to see a urogynecologist surgeon.

Thank you for any input!

I’m 26F and have never had kids but have had severe, chronic constipation since childhood and although I found my solution to softening stools about 2 years ago, I did what I think is irreversible damage to my pelvic floor and I’m terrified its levator avulsion.

I could go into a lot more detail but basically my vagina is concerningly loose. It’s not “just my body,” it’s not a toxic man that told me about it. I haven’t been sexually active since this problem arose about 2 years ago because I am absolutely disgusted with my own body and so embarrassed of this.

I can easily slide 3 fingers in. The entrance is completely loose, and it’s twice as loose deeper inside. The walls that used to be firm and tougher feeling are now like mushy, soft balloons that are just caved in and all over the place. I honestly don’t know if I would be able to feel penetrative sex. I can insert fingers and kegel and feel nothing. No squeeze, nothing, maybe just a slight tug from somewhere else. Just want to reiterate this is NOT just “me learning my body.” I used to be tighter, like a LOT, a LOT tighter. Not painfully tight, just normal. My body changed drastically and I am beyond sure and devastated and terrified.

I did make an appointment with a PFPT. I didn’t do it before because 1, I honestly couldn’t face it mentally/emotionally, this has been the most devastating feeling I have ever experienced and has quite literally plummeted my confidence to absolutely zero. And 2, I couldn’t comfortably afford PT but now I can.

But I have a month before my appointment and am desperate for some sort of input. It honestly sounds like I may have torn muscles in my vagina and if that’s the case there’s literally nothing I can do about it. I genuinely will not be okay if they tell me I have to live with a loose vagina forever, before I’ve had kids, before I’ve even met my person. I don’t know what to do.

It feels like I’ve been waiting forever. 🫠 Since July. I’m scheduled for a 4-hr robotic assisted repair (with hysterectomy). I’m not looking forward to the recovery, but I can’t wait to get everything OUT of my v canal.

Many thank to those in this group who have gone before me and posted helpful info to help me prepare. Wish me luck!

I was hoping I’d finally get diagnosed with something but it’s still a mystery.

My symptoms are bulge in clit that I can feel, pelvic floor pain, pee split (pee doesn’t come out all the way unless I massage it out, inner thigh pain, left side pain inside of vagina when using tampons or having sex, having to pee 10 times a day, waking up every hour some times to pee when it’s really bad.

I can feel a bulge inside of my vagina that they didn’t see AGAIN while I was laying and baring down.

They’re having me go to pelvic floor therapy in 3 weeks. That’s it.

Wtf ? I’m still completely in the dark about wtf this is.

I’m so exhausted, it’s been almost 3 years of this shit.

Everything is fine, no utis, my pee came back completely normal twice, nothing is wrong!!?

This is crazy.

Edited to update: im home now. Pain is still unbearable. On top of everything else, I think I overdid it with the Miralax (they told me to keep taking it ) so now I've been literally crapping myself. I was sent home with a catheter and I really just can't handle this much pain. The only number provided for me in my discharge papers was the urogyno office number. I left a message but they won't check it until Monday. I called the hospital operator and they just put me through to the ER. Which I don't know if uncontrolled pain plus diarrhea counts as something you should go to an ER to. But honestly I wouldn't last in the waiting room surrounded by sick people for hours while shitting myself, while attached to a catheter and being in serve pain from my abdomen, vaginal area and my butt hole. Im having a really rough time. I hope once I get through this, that it will all be worth it

I'm still in the hospital. Had surgery from 1130-3pm yesterday. I had a full hysterectomy, tubes removed, cervix removed, mesh sling for my bladder, a cystocele repair and a rectocele repair. They don't seem to be able to get my pain under control. With Oxy I'm still at a level 8. I feel severe pain in my abdominal area and a little less severe pain in the vagina and rectum region. They are delaying my pee trial (still got a pee bag) cuz of my pain. The nurses seem irritated by me and act like I shouldn't be in this much pain. I'm 36 and probably should be tougher than this. Did anyone else really struggle to get pain under control?

I had my surgery two weeks ago Tuesday, so I’m almost to three weeks. I have been feeling pretty good and have been on my feet more and even running errands, yay!

Tomorrow there is a parents weekend at my son’s college that is a couple hours away that includes a football game. We have tickets and, if I go, we’d drive down, walk around a bit, socialize and then go to the game. We’d drive back afterwards.

Like I said, I’m doing pretty well. I still have discharge when I’m on my feet, which I understand is normal. My pain at this point has been pretty minimal. I don’t want to increase my pain, disrupt my healing, or - worst case scenario - reverse any of my reconstruction. I had a cystocele, enterocele, and rectocele repair, along with perineum reconstruction.

Thanks for your support and opinions!

Hi ladies! I’m 12DPO and I’m having unusual smell down there, isn’t like strong fish odor, it’s more like a vaginal odor but strong. I was wondering if that’s normal. I went back to my doctor, made some tests ( vaginal bacterial infections/ UTI) and came back positive for UTI, in the beginning.

I am 11 weeks postpartum. At 3 weeks I noticed a bulge (think a stage 3) and I really had a tampon feeling. I took things more easy and saw a PT at 5 weeks. She wouldn't grade it because it was so early. She also didn't tell if I had a prolapse and which kind (really disappointed in this lack of information). Right now I am feeling heaviness down under and I still see a bulge in the entrance. I think it's a stage 2 bladder prolapse. I am doing some core exercises and try to not pressure my pelvic floor too much (more sitting and laying down, no constipation, I walk a mile a day in a slow tempo, not lift too heavy, I do some biking on an electric bike), but I don't see improvement the last month... I know it takes times, especially with breastfeeding but I really really hopes it goes away. Will this?

Some background information: before pregnancies I used to walk, lift heavy, run and bike a lot (marathons). I had my first child in May 2023 (emercency C-section due too breech position), second in January 2025 (VBAC, 45 minutes pushing, little tear), third July 2026 (also VBAC, 45 minutes pushing, really small tear). All babies were around 7 pounds. In between pregnancies I breastfed, walked and run a little (like 3-5 miles). I think I went on walks too soon too far after the last birth and lift too heavy. But we have 2 dogs and a toddler who I have to lift sometimes, I try to not do it if not neccesary, but it is inevitable. I did not take good care for my pelvic floor, until now it is too late...

I really want to just walk without symptoms. Running is not on my mind right now. I don't have to run marathons, but I do hope to run a half marathon again some day. I am also disappointed that we didn't took more times between pregnancies and in the lack of help we received from family. My husband is burnout sensitive and we had some problems in our home he needed to solve, so I had everything else to take care of. Right now he is stepping up more but I am afraid it is too late and that I damaged my body permanently. I really really hope to see more improvement because it is on my mind 24/7 and I hoped to enjoy my postpartum more

I am 10 weeks rectocele and perinocele and enterocele post op. I am struggling with a weird new pooping issue . Today When I was about to go poop I was walking to the bathroom and I felt something fell or dropped inside my rectum and it was painful like a strong one throb pain then I sat in the wc and pooped normally. No pain. This happened a few days before also while I was sitting in the wc. The pain is just one second throb and then it ends. It feels like something fell or moved in the rectum and if is painful. What is this pain ? Has anyone experienced? Pls help. This is the last thing I wanted at 10 weeks post op

Dealing with a prolapse (urethrocele or something like it). Already set myself up with PFPT, and the practitioner said it was a grade 2. Yesterday, gyno was like, “Huh, well, you have a prolapse of some sort, let’s send you to urology to make sure there’s no mass causing it. Keep going to PFPT and if you’re not seeing improvement, we’ll refer you to a urogynecologist.”

I’ve learned to be proactive and advocate for myself in the US healthcare system. So I’m wondering if the stop in urology is just a waste of time and I should skip it and go straight to a urogynecologist? I feel like they’d also be able to evaluate for some sort of mass. Right?

FWIW, no kids but I lift weights (heavy) and my PFPT told me when I brace, I shift the pressure down and shouldn’t be. So, I likely did this to myself (yay). Just trying to figure out the best way to approach trying to fix it.

I’m scared it’ll be something that can’t get better without surgery and I have a fear of surgery!!
This just feels unfair!! It all started with a uti🙃