The heat & acetazolamide
Hi everyone,
I’m new here after being diagnosed with IIH, and honestly it’s all been a bit of a whirlwind.
I only went for what I thought was going to be a routine eye test, and they found swelling in my optic nerves. Everything happened so quickly after that, and I ended up being diagnosed with IIH. It was honestly such a horrible experience and completely unexpected.
The lumbar puncture was also horrible. I know it was necessary, but I found it really difficult and I’m still trying to process everything that’s happened.
I’ve now been prescribed acetazolamide and I’m supposed to be starting it this week. The only thing that’s making me nervous is the UK heatwave.
I’ve read that acetazolamide can increase the risk of dehydration and affect your electrolytes, so I’m wondering if it’s safe to start taking it while it’s so hot outside.
I was also wondering about alcohol. The doctors didn’t really tell me much about the medication apart from not taking it if I’m trying to conceive and that it can cause pins and needles. Is it okay to drink alcohol occasionally while taking it, or is it best to avoid it altogether? (online is telling me conflicting things)
Also, does anyone have any general advice for someone who’s just starting acetazolamide? Things you wish you’d known, common side effects, tips for managing them, things to avoid, or anything else that helped you?
I’ve been trying to look things up online, but if anything it’s just made me feel more overwhelmed and anxious.
I know everyone is different and I’ll be following my doctor’s advice, but I’d really appreciate hearing about your experiences.
Thank you so much. ❤️