I've talked about it extensively here but I'm curious what was said and would love to talk further about it if there is interest
I've been resigned for 12 years, I don't even live in Utah anymore but I think they just got the wrong number with someone who was supposed to attend.
If only they knew they accidentally messaged the woman who yelled at general conference 8 years ago lol
Edit: We got a response!
"That last comment was inappropriate and disrespectful to this of us who worship in the temple. You know it was rude. You know it was disrespectful. You know it was hateful. I would suggest you examine the type of person you've become. I apologize for having your phone number on our group. I wish you the best and hope that you can root out the hatred you have in your character."
"For those of you on this post, please delete this thread so that you don't have to see these inappropriate posts. I sincerely apologize. I put on the numbers that were put on the signup sheet and I must have put in a wrong number. Again, I'm sorry😔"
Buddy take a chill pill lmfao
MECFS makes us one of the poorest classes of people as working is almost always impossible. We are entirely reliant on government or family help and if we can't get that, we often die.
4 years ago I was very severe. I had just gotten to the point where I play games without having to wear sunglasses on my switch but I couldn't even wash my own hair. I couldn't bathe myself well, could barely feed myself with microwave meals and takeout. It was bad. Then I got into the Bateman Horne center. Upfront I was required to pay $500. Which if you are poor, a ton of money. For reference that's half of a month of disability and nearly double what people get for food stamps in the US. I thankfully could afford it.
For the next 2 1/2 years, my visits would be covered with only the $500 yearly being required. It was a game changer. With my pots diagnosed I went from homebound to flying on planes which let me recover a lot more outside of the state that was making me worse. It changed my life in ways that I could never imagine.
If I was as bad as I was in 2022 now and had to approach that clinic, I would never have gotten in the doors. They now take no insurance and require $3,500 up front before you are ever seen. Then the monthly visits that I had would be around $250-500 per month after that. That's up to 10k per year for care when most of us struggle to rub two nickels together. This is outrageous, ableist and classist and we should call it out as such.
I get insurance is a nightmare, I get they want to help as many people as possible. But if you are only helping people who have unlimited resources anyway, what message does that send to the community? That unless you married rich or come from wealth that you deserve to get better. Every clinic at the absolute bare minimum should be funding care for poorest of us. We still deserve care too. You want to cater to the rich? Have them subsidize our care because I can tell you that despite having a family that had wealth, I wasn't given any of it for my care, and if I couldn't afford it, what chance does for someone who has lived a life in poverty?
Do better. We deserve care every bit as much as anyone else. Sliding scales exist for a reason. Any clinic that refuses to do so should be named and shamed. We all deserve the opportunity, the chance to get better!