
What are your Total Bilirubin levels?
I have been trying to figure out what's wrong with me for a while now (over a year). I have random episodes where I will start to get very itchy palms and armpits, then stomach pains, diarrhea, and sometimes ending with vomiting. These last 3 hours and end with me feeling tired and having a headache for a day. I started keeping food/drink logs because I was concerned about an allergy but nothing was constant, other than alcohol (usually only one drink). These episodes used to be about one per month in 2024 and 2025, then spaced out a bit more. I don't drink a lot (about one drink per week) and the episodes don't happen every time I drink, only sparingly. I don't like the taste of most drinks and even when I do they take me over an hour to consume.
I have done a lot of testing including multiple blood works and a full liver panel and testing for hepatitis, 6 different rounds of allergy testing (nothing), and an ultrasound (liver/kidney/possibley some other areas I don't remember - it was a year and a half ago). The only constant is my total bilirubin is always High (attached). My "gastroenterologist" (she's not an MD, I believe she's an NP or PA) said my bilirubin is not as high as you would see in someone with Gilbert's Syndrome. I stopped seeing her after she threw her hands up and said she is not sure what could be wrong with me. (I switched to another clinic and have an appointment in September.)
So my question is, what is your bilirubin? What would the typical benchmark be?