▲ 15 r/GilbertSyndrome
Guess who was fasting a lot and has Gilbert's?
and migraine, epilepsy, sebderm lol
u/KeyserSoze0103 — 14 hours ago
r/GilbertSyndrome
Should I take Sulforaphan with calcium d glucarate?
Hello I'm 18 yrs old i just found out i got gilbert. I always looked so yellow and people always asked me if i take drugs because also my eyes look yellow. Im really tired of being asked everyday if i take drugs. My Bilirubin is 2.7 (which i heard that isnt so high for gilbert), but also, i got thalasemia minor, which has hamolyse and makes my bili also a bit higher. I want to know, if i should take Sulforaphan and calcium d glucarate and how much? Or is there anything else i can do my best to lower my bili and dont look like a dead monster anymore ? I eat enough, dont fast, and do the basic stuff that needs to be done. I was reading here that it helped somebody go from like 2.8 to 1.2 in 6 months. If yes, how much should i take ? I know, the sulforofan needs to be activated one. Guys sorry for my bad english, yall can reply on german or romanian if you are. 🙏🙏🙏im new to gilbert please dont judge or anything, i have no clue maybe how it all works
u/CreepTeddy — 1 day ago
Is my birilubin high ?
My mom told me when I was born I had 11, in 2018 I had 6 now it’s 4,20, sometimes my eyes are yellow or my skin, but not everyday.. sometimes I feel tired or anxious without motivation
No one in my family has Gilbert, only me
u/United-Initiative264 — 4 days ago
Gym issues
Can we guys bodybuild while having gilbert...will i be able to gain muscles?..just a concern
u/Wonderful_Bus7973 — 6 days ago
What are your Total Bilirubin levels?
I have been trying to figure out what's wrong with me for a while now (over a year). I have random episodes where I will start to get very itchy palms and armpits, then stomach pains, diarrhea, and sometimes ending with vomiting. These last 3 hours and end with me feeling tired and having a headache for a day. I started keeping food/drink logs because I was concerned about an allergy but nothing was constant, other than alcohol (usually only one drink). These episodes used to be about one per month in 2024 and 2025, then spaced out a bit more. I don't drink a lot (about one drink per week) and the episodes don't happen every time I drink, only sparingly. I don't like the taste of most drinks and even when I do they take me over an hour to consume.
I have done a lot of testing including multiple blood works and a full liver panel and testing for hepatitis, 6 different rounds of allergy testing (nothing), and an ultrasound (liver/kidney/possibley some other areas I don't remember - it was a year and a half ago). The only constant is my total bilirubin is always High (attached). My "gastroenterologist" (she's not an MD, I believe she's an NP or PA) said my bilirubin is not as high as you would see in someone with Gilbert's Syndrome. I stopped seeing her after she threw her hands up and said she is not sure what could be wrong with me. (I switched to another clinic and have an appointment in September.)
So my question is, what is your bilirubin? What would the typical benchmark be?
u/deadramones1 — 7 days ago
Is there anyone in here who has ibd (ulcerative colitis or crohns?)
Im asking since the doctor suspect that I have it because of the symptoms im going through..
u/NovelIllustrious120 — 9 days ago
Do any of you have an intolerance to sulfur (e.g., eggs or garlic) or salicylic acid (e.g., ginger)?
The bilirubin metabolism—which is impaired in Meulengracht's disease—falls under Phase 2 of liver detoxification.
In my case, all metabolic pathways are impaired; consequently, I cannot tolerate substances such as salicylates—a condition caused by a sulfur buildup.
Is anyone else among this?
Maybe this helps you:
u/Certain_Hat9872 — 9 days ago
Sudden reduction in bilirubin levels
Hi, I recently did my routine bloodwork, and for the first time in 5 years, my bilirubin level is in a normal range. That's good, I guess, but I'm kinda weirded out cause there weren't any major lifestyle changes. Has anyone experienced this?
u/sad_yulets — 7 days ago
Calcium D-Glucarate side effects?
So i have gilbert's syndrome and thought about boosting my glucuronidation detox pathway by taking Calcium D-Glucarate. Some times my skin is more yellow than it should be, so i thought that this could help. I have 200mg and 500mg capsules from different brands. I tried taking it 1-4 times daily (200mg and 500mg).
I get side effects from it:
-sharp pain in kidney/kidneys
-visible blue veins on my body (in particular I looked at the veins between the chest and neck. Every time I take CDG for some time I get it more visible.)
-my skin turns redder, when I press and run my fingers over my chest i can see the marks left
Also i tried Glucuronolactone (if i understand it correctly , CDG metabolises to glucuronolactone so its similar to CDG...) with similar results.
Does any one is having these side effects from it? Is this detox reaction? Any ideas? At this point after a break I'm thinking of taking maybe 200mg once a day to see how it goes. Also do you know any other supplements that can boost glucuronidation?
u/Brief_Towel430 — 10 days ago