u/deazinn

Hey everyone! I'm u/jjdub97, the founding moderator of r/MenWithEhlersDanlos.
This is a new community aimed to make community of an often overlooked group of people. This is to help anyone who has been diagnosed with EDS in any variety find a sense of community where they haven't been able to find it before. This is a great place to find tips on living life with our condition, have discussions on helpful habits, and mostly lifting each other up when things are extra hard.

What to Post
The rules on posting are very lax, as long as it has some sort of relevance, it belongs! I’m fresh to the Reddit Mod game, so if you see something that shouldn’t belong, feel free to shoot me a message. Feel free to post stories, questions, rants, tips, whatever is on your mind without a good place to post it.

Community Vibe
This space is designed for men that have been diagnosed with a condition that is commonly diagnosed in women and goes undetected in men. The purpose here is to understand that men and women may experience the condition differently and this will provide a specific place where other men can look. The r/EhlersDanlos community is amazing as well, consider this a supporting community to that one.

How to Get Started
Make a post, leave a comment, upvote something you relate to, it doesn’t matter. Being involved is being involved, and personally I’m just happy you’re here.

My moderation of this sub will be somewhat minimal, however I implore everyone to please be as helpful, encouraging, and positive as possible. That being said, dark humor is no stranger to me and only truly inappropriate comments will be removed. Thank you for being part of this!

So I have hEDS, and I’m turning 60 this year. My skin has gotten much more fragile in the last couple years; for example, when I scratch my leg, no matter how softly, I draw blood and have scabs that last for more than a week. My whole body is now like this!! I’ve always had the soft skin, but never this fragile.

When do they drop this list? What is the last day they will add people to it?

Thanks!!

I’ve been rewatching the series on Hulu from the beginning. I originally watched this series on broadcast tv as it was being ran.
Am I crazy or are there missing scenes? I swear they cut two of them out.

#1 - when Romano was killed by the helicopter, no one knew. They showed people asking around about him, then suddenly it was his memorial. My husband and I both remember a scene where they are removing the helicopter wreck, found the body, and used his teeth and prostatic arm to id him.
#2 - the flashback of the actual accident, with the truck that hit Ray. I remember this scene as he’s leaving the bar and trying to listen to Neela’s vm, dropped the phone and when he bent to pick it up, the truck hits him. It played after Neely saw him with his missing legs for the first time. Hubs didn’t remember this scale.

Help??

I’d like to find two adult Saturday badges.
Anyone know of any reliable sites??

So is there a big difference in color/texture? I love the sparkling rose, and have a backup.
Is the new cherry okay??