Frustrated mum
I really need advice. As I feel I am not getting supported by mental health services and I don’t know which way to turn anymore! I will give context as it’s quite long!
My daughter is 21, she was diagnosed with autism/adhd/ Tourette’s as a child. Life was tough, as she had so many struggles, but we got through it and I fought so hard to get her the help and things she needed. It always felt like a battle, getting diagnosed. Help in school, ECHP, SEN, the correct school etc. but every battle we over came.
As she left school i began to notice the impulsive behaviours intensified, intrusive thoughts, I put it down to the lack of routine, she struggle with college. Even with support, which led to her being bullied etc.
over the last couple of years if I’m honest, she is completely unrecognisable, not just physically, but mentally. She’s out of control, angry, violent, manipulative, aggressive. She’s hits me if she can’t get her own way. The voices in her mind have intensified. She’s threatened me with knives. She’s hidden kitchen knives in her room. ( which are now locked away) She talks about stabbing people, she is obsessed with death. She’s even angry with people outside of the home. Like neighbours if they are in their garden, or passers by. She will have meltdowns as they are disturbing ‘her time’ she is lightly self harming. She’s been saying voices are telling her to do these things. Telling her to kick off and make my life a misery and they tell her repeatedly to do so. They even want her to drown herself when in the bath. I’ve been deeply worried about her, and the thought of her harming herself or someone else terrifies me. She has been taking antipsychotics, which do not make a blind bit of difference, and I’m begging and pleading for help to no avail. I’m convinced she is displaying symptoms of paranoid schizophrenia. She is manic, paranoid all day every day, delusional, taking to people who aren’t there, saying we are poisoning the dogs mind against her. She is Angry with the whole world. It’s breaking me heart to watch her go through this, yet it’s so difficult to live with at the same time. The violence, the meltdowns, the anger. I feel ill everyday with stress and worry. And no one is listening. I don’t know what to do next or for the best. She needs psychiatric help and it’s completely unmanageable at home, I feel bad for even saying that old loud, as I feel like I am giving up on my daughter. But I now recognise it’s not as simple as giving up. I now see she needs more help than I can give her now. I’m getting absolutely no where with mental Health services. Try this medication and on your way. And I’m telling them she is a danger to her self and others, she’s even telling them her self!!! I do not know what to do next for the best. I’m scared and terrified for what’s to come.
Any advice would be greatly appreciated.
Her care co ordinator has apparently already sent a referral for an assessment of needs through county. This was months ago. And as per she never returns a call or lets me know what is going on. Feeling let down and not listened too. And as a mother I think we know our kids, call it mother’s instinct, whatever, but we see all day every day and how life impacts them.
Any advice would be much appreciated, as I am really scared for the future.