u/doomermarxist

Hey friends,

I had a grade 4 AVM 6cm at largest diameter in my Posterior right temporal lobe. It was surgically resected July of 2024.

Obv, in touch with Drs but wanted to come here to ask about...
I get what I can only assume is partial focal seizures very occasionally … I experience Déjà vu, excitement, similar imagery of rectangles every time … followed by headache and exhaustion.
Last night I had a severe headache after a second “seizure” that day. It was so bad I was laying on the floor confused and crying just about to call 911 before my mother got home to take me to the hospital. However after arriving and waiting in the emergency room for over an hour it started to subside… I decided to go home and sleep and follow up with my neurosurgeon for an mri (classic American healthcare system…)
This is the only the second time I’ve ever experienced this. The first time it felt like an extreme pressure headache… like my head might explode from within. I actually vomited from the pain…
Has anyone experienced such things? Very scary. Especially since the surgery was an AVM “cure” and now I have more problems…

Hey friends,

I had a grade 4 AVM 6cm at largest diameter in my Posterior right temporal lobe. It was surgically resected July of 2024.

Obv, in touch with Drs but wanted to come here to ask about...
I get what I can only assume is partial focal seizures very occasionally … I experience Déjà vu, excitement, similar imagery of rectangles every time … followed by headache and exhaustion.
Last night I had a severe headache after a second “seizure” that day. It was so bad I was laying on the floor confused and crying just about to call 911 before my mother got home to take me to the hospital. However after arriving and waiting in the emergency room for over an hour it started to subside… I decided to go home and sleep and follow up with my neurosurgeon for an mri (classic American healthcare system…)
This is the only the second time I’ve ever experienced this. The first time it felt like an extreme pressure headache… like my head might explode from within. I actually vomited from the pain…
Has anyone experienced such things? Very scary. Especially since the surgery was an AVM “cure” and now I have more problems…

Update…
I’m angry, depressed, isolated, and have ideation about kms.
I hate my surgeon for his lack of honesty and transparency about what the “decision”was when choosing surgery. And honestly I’d like to pursue him legally for lack of informed consent. The trade off was risk of hemorrhage over a lifetime or a Traumatic Brain Injury (TBI) now. Well… a year and 9 months after surgery and I can barely hold down a job and I suffer from Prosopometamorphopsia (PMO) or an adjacent condition where people’s faces are melting and shifting. Imagine if you had to work with that.
I think about my surgeon saying that I would go onto live a “normal life”
I’m NOT going to perform normal for you so you can feel better about yourself and your botched surgery. And nor am I going to perform normal for the rest of you. To hold down a job or whatever.
So I’m definitely quitting my job at the end of this school year. I don’t care. I absolutely hate the people I work with and their expectations of me. I cannot believe that the system is just allowed to give us a TBI supposedly to help us (prevent hemorrhage) and then literally give us no support financially or employment wise.
Support is reduced to individualism and coping via therapy and “rehab” which puts all the responsibility and work and stress and effort onto US the survivors and the ones with injury.
It’s an embarrassment.
I’m probably going to leave the U.S. … even though everything is incredibly hard with a TBI… it’s something worth fighting for. America is a shithole full of vacuous people.