I know the recovery is individual and different for everyone but I’d like to hear your experiences. How was it for you right after the botox, when did you go to hang out with friends, to gigs, events etc.? Or did you need to stay at home because being a bit unwell? And when did you manage to do sports (especially sports which include running or jumping)?
I should have my botox appointment in one month but I’m extremely scared of laryngospams and slow swallow as I have severe fear of choking, I get anxiety and panic attacks easily. If you got laryngospams during the recovery do you have any idea what could have triggered them? I fear that despite being cautious I will get one. Slow swallow is another thing I’m scared of, I know that the food is in the right pipe but I have read on here that people choked on food etc and even having heimlich performed. I hope I won’t have that issue as I already eat super super slowly and chew everything super well because of this fear.
And another thing is that I fear that the side effects and being anxious about them will destroy my mental health and affect the recovery results negatively as I already have mental health issues (like OCD thoughts) related to things with swallowing/breathing etc. Which is kinda funny in a twisted way bc now my RCPD is most likely playing at least some part with those OCD thoughts.
I should have my Botox appointment next month and I'm super nervous. When I had my appointment with the specialist the get a referral to get botox on public healthcare the doctor said there might be a bit of an issue because I have a small mouth and a tight jaw and my mouth doesn't probably open so easily as it should so he said he can't use the normal sized instrument (sorry English is not my first language so not sure if I use all the correct terms) and he has to use different one because of my small mouth and he said "it might affect the result" but he has used that already earlier with success as well. Has anyone experienced this same kind of a thing? I fear this will affect negatively.. I'm going to have the botox under GA and 100 units.
I'm a 34 y/o woman and after one year finding out about RCPD I finally got courage to seek for a treatment and met up with a specialist who wrote me a referral to get botox on public healthcare and I should have the treatment in 4-5 months.
What has prevented me earlier is that I have OCD, panic attacks, emetophobia, fear of choking and extreme anxiety and sadly after finding out about RCPD those all spiraled because of being anxious because of RCPD symptoms.
I know the treatment would help me also with these issues, but I'm so scared that the side effects of the treatment would make my mental health even worse because of not being able to swallow properly etc. So I'm still not 100% sure if I can go for it for real. But I also don't want to continue living this way anymore.
I asked a few questions at the appointment but now I want to hear your experiences for a few things, I appreciate the answers:
I appreciate if you read this far! Thank you in advance.
After one year about finding out about RCPD I have finally got courage to book an appointment for a specialist who will write me a referral to get botox on public healthcare. What has prevented me earlier is that I have severe fear of choking and anxiety with swallowing so I’m super scared of the treatment and I’m still not sure if I have courage to get it now. In addition I also have emetophobia. I already get anxiety daily and sometimes even panic attacks if I feel like I can’t ”breathe properly” or if something feels weird in my throat or with swallowing. I chew my food super well and slowly because of this.
But I also don’t want to continue to live this way because I get anxiety and panic symptoms of the RCPD symptoms also and I’m so fed up being full of air every day. Those who have same kind of fears and/or panic disorder, how did you manage with slow swallow etc.? I fear my panic disorder would peak even more because of panicking of slow swallow and other side effects.
Writing this as I once again had to return home almost right after I left somewhere because of RCPD symptoms, anxiety and almost getting a panic attack because of them.
Has anyone else experienced this same thing that even though you know RCPD is not life-threatening or dangerous you get so much anxiety because of the symptoms that you might even get panic attacks because of them?
And obviously anxiety and thinking about the symptoms 24/7 thanks to OCD makes the symptoms worse which makes anxiety worse so it’s a vicious cycle. And sadly finding out about RCPD didn’t make me feel better, it made my OCD spiral. Before I found out about RCPD I didn’t get anxiety of these symptoms because I didn’t know this is not normal and I didn’t know that I don’t ”feel normal” and that I’m probably low-level nauseous without me knowing it and that has made my feeling of nausea worse.
Yes I know about botox but because of my health anxiety I’m too scared of the treatment. I have severe fear of choking or not getting enough oxygen (which is kinda funny in a way that RCPD makes me feel like that already) so I’m super scared of slow swallow and not being able to eat.
Just felt like venting today. I’m really considering if I should start SSRI medication for the first time. Luckily I’m also in therapy and there we work with the anxiety but it’s only in the beginning.