r/noburp

My 13 year old has never been able to burp and has had issues as a result for years. She's suffered daily nausea, chronic constipation, bloating, hiccups after eating some gurgling but not loud, hyperalivation and the worst symptom of all early satiety and constant fullness. The early satiety has been much worse these past few months and She's lost weigh, she's underweight. She physically feels She's so full and unable to eat after the smallest amount of food. I did some research and booked her in for the Botox procedure which she was meant to have yesterday with Dr Santosh sanagapalli in Sydney. We were so excited as well as anxious, she thought once she has the treatment life would be much better but unfortunately yesterday we went to the appointment and waited for over 3 hours. Finally Dr called us in and Said he can not perform the procedure. Apparently the hospital policy was updated and he didn't know, he can't treat patients under 14. We've been extremely depressed and anxious since yesterday. She can't go on with such a small amount of food for another 9 months until she can have the procedure done, I'm worried about her suffering malnutrition. Anyway we have 1 other option in Sydney Dr Daniel Novakovic. I've emailed them and they said he can't treat her until she's 16. We're devastated, I don't know what to do. I've been researching all day to try and find someone who know about R cpd and will treat a 13 year old here I'm Sydney. Hoping someone has come across a Dr that will? Any help and advice would be appreciated.

My ENT who’s never heard the the condition believes my inability to burp could be due to my hiatal hernia, has anyone else here been diagnosed with one?

Hey all, I FINALLY got scheduled for botox under anesthesia this August. But I have a big trip to Italy planned 3 weeks later, and am a little nervous about the recovery timeline of the botox procedure and how long the slow swallowing could affect me.

For anyone who has had this done, at what point were you able to start eating solid foods again?

Yesterday I was out eating lunch and I had a horrible pain in my chest after eating. I have had this feeling before and usually it’s because I can’t burp after eating and it hurts for a while and goes away. Yesterday however, I got that pain and it made me pass out completely, hitting my head on the table and falling to the ground. I was out for a few minutes and I was with my grandmother who also thought she saw a 10-15 second seizure. The ambulance came and checked all my vitals and I was fine and they wanted to take me to the ER but I didn’t want that ambulance bill so I went by car. The ER scanned my head and said everything looked great and all my vitals were great and people just pass out sometimes. I am so freaked out though because that has never happened and I am traumatized. The doctors don’t think I had a seizure because of my vitals and scans looking good, so that makes me feel a little better. I am just scared to eat because I don’t want this to happen again. Does anyone have any experience similar to this?

Also for reference, I have had extreme emetophobia my whole life and also not been able to burp probably because of this.

Do they intubate you if you choose to do the general anesthesia method for the surgery? My daughter is having her surgery tomorrow morning in the U.S. She’s wondering what tubes are going to be placed down her nose/throat during the procedure. Thanks!

Hello, fellow no-burpers!

This is my first ever Reddit post, so bear with me.

I feel very fortunate to have my R-CPD discomfort to a minimum due to dietary and lifestyle changes over the last few years, but during each of my two pregnancies, all of my no-burp issues have come back in full force.

When I was pregnant for the first time a few years ago, my indigestion slowly ramped up over the course of nine months to get to the point where I was air vomiting several times a day to manage my discomfort. It all stopped the second I gave birth, and I have been mostly fine for the following two years. I am now six weeks pregnant with my second child, and I am already experiencing the same R-CPD issues I did with my first pregnancy.

Has anyone else experienced uncontrollable symptoms specifically during pregnancy? Any tips for how to manage? Really not looking forward to eight more months of this.

I’m five months post-Botox and it’s getting increasingly harder to burp. I’m doing all the stretches and drinking a ton of carbonation but despite all this, the burps are coming less and less frequently. With the huge intake in carbonation, my symptoms are now way worse than they were before the Botox (before Botox I had no carbonation) and I’m pretty miserable. I’m down to maybe 4-5 small burps a day, and they usually feel like they’re stifled before they can finish. Every few days, when I feel REALLY miserable, I’ve managed to get out a single large burp in the evening, I guess after letting gas build up all day.

My question is just: when do I throw in the towel and stop torturing myself? If there’s a chance it could still work, of course I want to keep pushing and trying everything I can… but it feels like I’m fighting a losing battle here. Did anybody get down to this few burps a day, but then still manage to get the muscles to kick in and end up being a burper for life?

hi there, Does anyone else feel really uncomfortable feeling tilting their head all the way back after having gotten done botox? is it because that muscle is being stretched?

Hi guys, I really want to try practicing air vomiting but I’m so scared of throwing up by doing it. Is there a way to do it to make sure I don’t throw up while doing it?? I associate burping with throwing up so it freaks me out but I know it will help me being able to. I’ve seen people learn to burp just from practicing air vomiting so I will give it a try as the actual treatment procedure seems too expensive for me at the moment

Hi everyone! It's been a week since my in-office procedure with Lucy Hicklin and I'm not too sure if I'm progressing as I should be.

Since day 4 I've been able to encourage out some burps after food and drinks by turning my head to the right or sticking my chin out. I could only taste a couple of them and I'm definitely not getting any relief from them, so I don't think many of them have been coming from my stomach!

I'm considerably more bloated than normal, which I appreciate will be because I'm taking in more air while the muscle is relaxing, but it's making it difficult to drink fizzy drinks to encourage/train the burps, as the burps I do aren't yet giving me any relief. I just feel a little stuck as to how to move forward, or if progress will just happen without me having to force it too much.

Is it normal at this stage to not yet be experiencing relief and if there's plenty of time for this to come naturally? Thanks very much!

Hello, I’m now in week 3 after my Botox treatment and I can burp well, which is great. However, I still get very bloated quite often. Could it be that because the muscle is still very relaxed, I’m swallowing more air than I’m letting out? I also have the feeling that I’m constantly pulling in air or accidentally swallowing air throughout the day. Has anyone else experienced this during recovery?

New member here who’s only learned very recently that my inability to burp is an actual condition. I also have emetaphobia- and I’ve quickly realised there is a strong correlation between not being able to burp and a phobia of throwing up. I’m also quite sure I don’t have the ability to throw up, I have never thrown up for 12 years and from what I can remember from being a child it was never forceful or a lot (touch wood). If anyone knows the science behind that or if that’s even a thing, that would be interesting.

Anyways, I (and I’m sure a lot of people on this sub) release gas through what I call frog noises or gurgles. And it always comes after a yawn. It also comes out the other end often- embarrassingly. I also have a visible epiglottis, if that’s relevant?

Essentially I’m just curious why us no burpers have a strong chance of a phobia of vomit.

Edit- I also cannot “chug” drinks and the sound of me swallowing and the liquid going down into my belly is very loud. Could this be related?

Hi, I have recently discovered what R-CPD is, and feel I really fit the symptoms. I've never burped, bloat really bad after eating anything, my stomach and chest hurt and make sounds for hours after a meal. I'm always gassy, and I'm deathly afraid of throwing up because it hurts so bad and gets like stuck. I'm genuinely in so much pain from bloating all the time and I'm scared to be around people after meals from the gurgling sounds. I also have an ED, which is tied to how disgusting I feel and look after eating when I bloat.

I've found a specialist near me that even has a page specifically on R-CPD and how he treats it, so I am really hopeful that if I made an appointment with him I could finally not feel so crummy. The problem is, I am under my parents' insurance and they would be paying for this treatment. They would 100% be up for it as long as I am able to convince them that I really might have this disorder. As this is a new-ish treatment and diagnosis, I am scared they will think it's not a real thing or no big deal as I have been living with this for my whole life and not really spoken up about how hard it is before. Idk how to tell them besides being all "I found this random condition on the internet nobody's ever heard of that I'm self-diagnosing myself with and wanting to get expensive treatment for"

If anyone here has told someone else about their experiences and has advice on how to bring this condition up without sounding crazy and overly dramatic and not a real issue, please let me know.

Hi,

I have a Botox appointment booked next week and I’m staring to get a bit hesitant. I am booked in for 50 units with Lucy Hicklin in London.

However, I’m going to visit my friend 2 weeks after the appointment and I have a pretty important internship a month after the appointment.

Will the burps be so uncontrollable that I should wait until after the internship?

I'm a 34 y/o woman and after one year finding out about RCPD I finally got courage to seek for a treatment and met up with a specialist who wrote me a referral to get botox on public healthcare and I should have the treatment in 4-5 months.

What has prevented me earlier is that I have OCD, panic attacks, emetophobia, fear of choking and extreme anxiety and sadly after finding out about RCPD those all spiraled because of being anxious because of RCPD symptoms.

I know the treatment would help me also with these issues, but I'm so scared that the side effects of the treatment would make my mental health even worse because of not being able to swallow properly etc. So I'm still not 100% sure if I can go for it for real. But I also don't want to continue living this way anymore.

I asked a few questions at the appointment but now I want to hear your experiences for a few things, I appreciate the answers:

1. I will receive 100 units of botox and I'm a bit underweight, I weigh only 50-52kg. Is the high dose of botox related to more severe side effects especially because I'm a bit underweight?
2. The doctor said there might be a bit of an issue because I have a small mouth and a tight jaw and my mouth doesn't probably open so easily as it should so he said he can't use the normal sized instrument (sorry English is not my first language so not sure if I use all the correct terms) and he has to use different one because of my small mouth and he said "it might affect the result" but he has used that already earlier. Has anyone experienced this same kind of a thing? I might contact him again and ask for more specific details.
3. How long did you have to wait after botox until it was comfortable to do sports with "movement" for the body like running etc.?
4. How did slow swallow feel like and how long did it last? This is the thing which has prevented me the most so far because I fear it would feel like choking and I would get panic attacks. Because of anxiety I already have anxiety with swallowing. I'm a super super slow eater because my fear of choking but I guess in this sense it's good to be a slow eater.
5. Did you have to sleep on a wedge pillow? If yes, which sized pillow did you buy?
6. I have never been under general anesthesia and I'm scared I would get nauseous or super short of breath or something. How did the GA feel like?

I appreciate if you read this far! Thank you in advance.

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I've suffered with RCPD for as long as I can remember with the usual symptoms of loud gurgling causing embarassing social situations. I also remember having a fear of vomiting from early childhood which I know is linked to RCPD.

Aside from this I have also suffered with crippling health anxiety where I have convinced myself numerous times that I am ill or dying, and its only just occured to me recently that it could be the symptoms from RCPD making my anxiety worse.

I am 36 now, and remember not being able to burp from around age 8, so its not a new thing for me, but what is new to me, is more recently (last 6 months - 1 year) I have been experiencing shortness of breath, or 'air hunger,' lump in throat feeling, and the worst is palpitations. I genuinely think that sometimes I am so full of air that I experience shortness of breath and palpitations as it feels like air is pushing on my diaphram, but of course anxiety makes me think its something more sinister.

For example, I live in a 3 storey house and sometimes when I get to the top from walking 2 flights of stairs, I am so out of breath, but I think its to do with all of the air. Another example is, last night I got into bed and lay on my right side, my heart was going crazy, and I felt like I was having palpitations, I panicked and turned onto my left side, and suddenly was gurgling like crazy and it went away! It seems I was just so full of air. Today I was in the super market after just having a coffee, I bent down to get something and  could feel the air inside me and I had heart palpitations again, I stood normal again and it went, again I think as I bent down the air was pushing.

I find it hard to believe that a condition thats classed as a 'joke' or 'funny' causes all these horrible symptoms that cause me not only to be physically uncomfortable, but also anxious.

Has anyone else experienced shortness of breath or palpitations with RCPD?

Hi,

I currently have a Botox injection planned for next Tuesday with Lucy Hicklin in London (50 units). I have given myself 2 weeks and 2 days where I have no social activities or work afterwards.

However, after that 2 week period I’m meant to be going on holiday to New York where I’ll be socialising a lot.

Then, a month after that I’m starting an internship at a big company where I’ll need to impress.

The other option is I delay the surgery to September where I’ll have 2.5 weeks to recover before starting my university again. But at university there will be less pressure and I can eat all meals alone etc.

I’m mainly worried about the uncontrollable burps as I’m a very socially anxious person but also the slow swallow.

Any advice? Thanks in advance