r/noburp

I only found out about RCPD recently after my dad listened to a podcast. He said it sounded like me and asked if I burp. Once he explained it, everything clicked. I was horrified when I realized people could probably hear the noises my throat had been making all along.

I’ve had chronic pain since I was 10, which became unmanageable in my mid-teens. I had to quit everything, including dropping out of high school. My parents have taken me abroad for treatment, but every doctor has ignored my inability to burp and extreme bloating.

I’m so desperate, embarrassed, and ashamed. I look 7–8 months pregnant most of the time. Every time I eat or drink, pressure builds in my chest, followed by loud throat growling that can be heard across the room. I’m a croaking teenage girl who looks heavily pregnant.

I also have a condition that causes dangerously low blood pressure when I’m upright, so I need 5 teaspoons of salt and 4L of water every day. Both make the bloating much worse, but without them I’m at high risk of near-fainting or fainting.

Right now, I’m nearly 24 hours without food because I can’t deal with RCPD anymore.

I’m begging to go to the Bastian Voice Institute because if I stay in my country, I could wait months or years for the Botox procedure. My dad wants to wait for an official diagnosis and treatment here, even though every doctor has brushed us off. I understand where he’s coming from, but I’m so desperate that I blew up at him. I’ve been yelling and disrespectful to my parents, and that’s not who I am. I feel like I’ve completely lost myself.

If anyone can relate, offer support, has words of wisdom, or can offer advice. It would be much appreciated. Thank you.

I was shocked. It just flowed out of me.
Is this how normal people puke?
i used to feel like my i’d get an aneurism from how much my whole body was straining to puke before. Puking is one of my biggest fears but this one wasn’t that bad! get botox!

Do they mean they were never able to burp after getting it, or they were able to burp for a period of time and then lost it again?
I’m about 5 weeks post Botox and I’ve been having the time of my life burping since the day after getting the Botox. I’m really afraid of losing it though because the healing was rough for me, and i still can’t eat a meal without having to drink water after every bite to help get it down, so I’m not sure i would go through it again if i lose it.
So did the Botox just never work for you, or it did for awhile until it wore off? And if the latter, how long did it take to lose it?

View Poll

So I deal with an absurd amount of trapped gas. However I can burp, but when I do it’s violent comes in clusters of at least four burps. It almost feels like I’m vomiting burps lol. I have tons of gurgling in my stomach. Gas will form and push up, and when it’s bad it will feel like a balloon is pushing into my chest. When this happens it feels like it messes with my heart and breathing as well. Sometimes causing it to beat slow, sometimes causing PVCs, and sometimes causing it to race. Also lots of air hunger and feeling like I can’t take a full breath. If it’s pushing into my chest and making my heart race taking deep breaths almost makes it worse. The trapped gas also causes extreme anxiety for me considering the location and how it can make my heart all funny and my chest feel weird. The area right below my sternum is always tight and tender. I’ll have random sharp pains all over (the reoccurring spot is under my right rib and shoulder simultaneously). These symptoms happen even if I don’t eat anything all day, however they are made worse after eating. Was just wondering if anyone here deals with these symptoms from trapped burps. While the underlying cause in my case is different I’m sure some symptoms do overlap. Thanks!

Hello friends! First of all, thank you to this community for pointing out the only specialist in the region who performs the throat Botox! Was so validating getting confirmation today that I wasn’t crazy and that I actually have RCPD.

Unfortunately, the treatment is not included under my health insurance and it will cost a significant amount of money to pay privately.

So to those who have paid out of pocket, is it worth it?

Any and all advice would be greatly appreciated it.
Thanks!

This is so stupid and embarrassing but I, like all of you, can’t burp. I was at my friend’s lakehouse, drinking and swimming around out in the sun for a few hours.

I burped one (1) time yesterday and I was so excited!!… then the hiccups started. Painful, full body hiccups. They were coming in waves. I was trying to hold my breath as long as I could because usually that helps. I got to the point that a girl I had just met told me to hold my breath and she would pull my ears because that always worked for her.

She pulled my ears and within a second I passed out and hit my head on my friend’s car. Granted, the alcohol and the sun probably didn’t help with that, but the hiccups were SO BAD I was willing to try anything.

I feel ok right now but im scared!! Idk if anyone has any advice but I just wanted to vent somewhere!!!

Throat spasms. I know people have said they had one or two, but lucky me has had multiple, for days. On day 5 from Botox injection and Thursday and Friday I had at least 5 a day. They are starting to subside, but I still get it. If it’s not a spasm it just hard to breath. Did go to er on Friday, but nothing they can do. Am I just the lucky one, had this happened to anyone else?

I had no idea that could happen 😂 I've been doing most of my soda/fizzy water practice at home where I can open my mouth and belch loudly, but today I decided to see if I could burp more discreetly with a soda at a 4th of July party. I guess if you keep your mouth closed the air escapes through your nostrils. It was alarming to say the least but thankfully my partner was there to reassure me it's normal. I also had a burp where the air forced my mouth open which is a strange feeling. It's crazy to think this happens to normal burpers regularly when they drink soda. Burping in public has been challenging for me since getting Botox, but it is becoming easier and more natural every day. I must have burped 30 times at that party. Despite the weirdness of it all I'm grateful for every burp!

Got it done in March and by April I was burping! No more funny noises, bloating, pain, and excessive passing gas!!

Now four months later and Im starting to lose the ability to burp. I still can, kind of, but the bloat and gas is back which sucks. Glad the gurgling noise is still gone though.

I get tiny burps every few months and thats it. Never actually had a real burp. I'm 36, thought I'd just not learnt! Now looking for a UK doctor to give me botox (never thought I'd say that!) Does anything else actually help?

i am on day 9 post botox and i have been salivating more than usual. But the saliva isn’t watery it is more thick and mucus like. has anyone experienced this? is this acid reflux? i have to spit the saliva out multiple times a day and it makes my voice sound a little muffled too

I’ve had R-CPD for as long as I can remember. I haven’t vomited since I was four and only had roughly one microburp every one to two years going back as far as my memory allows. I’ve always known I couldn’t burp but I attributed it to never “learning”. I always thought the bloating and throat gargling were normal from eating too much. I always had to take pills with food, not beverages, or they’d get stuck in my throat. I passed gas so frequently my math teacher in middle school called me the Stanley Steemer and I developed an unwanted reputation. My mother thought it was lactose intolerance at first. The only benefit to this unwanted superpower was using it to torment my siblings when they were being nasty to me.

When I was a teenager, I caught norovirus and woke up one morning as my chest repeatedly seized up and caused me to wince so hard until I would violently cough. This happened about six times that day and never occurred again. I mentioned it to my doctor years later, but she was as stumped as I was. I brushed it off as respiratory issues from a bad cold or flu. I would learn only two months ago, when I caught norovirus again and experienced the very same terrifying and painful sensation for the first time in 22 years, that it was my body trying - and failing - to throw up. Interestingly, this happened shortly after I learned of the Botox procedure and had my operation scheduled for the following month. In my late 20s, I tried researching this condition, but at the time it didn’t have a name and there was no substantial info I could find.

It’s now been 24 days since my procedure (100 units, internal injection under anesthesia). The following day I felt normal, but the day after it got rough. The swallowing trouble was really hard in the first week and a half, and I didn’t get a microburp until the sixth day afterward. Three nights ago, I suddenly let out a manually-induced burp so long and loud that my wife overheard and asked if I was okay as I sat stunned and motionless in my chair for 20 seconds contemplating what just happened. Today I’ve managed to burp more times than my gassy younger brother probably does in a month. It leaves a horrendous taste in my mouth but damn if it doesn’t feel great. I still have to move my neck down sharply, push really hard, and turn to the side for any manually-induced burps but I’m thinking and hoping it may get easier and less laborious with time. Microburps are becoming more common and larger. Swallowing has been improving daily, but the changes are very gradual. Week three has been the most significant improvement.

I want to thank this community. A good friend of mine who is a nurse and, like all my friends, knew I couldn’t burp, stumbled upon this sub and forwarded it to me one day a few months ago (and I thank her endlessly). It was then that I learned about the procedure and found out using the interactive map that there was a doctor near me - the only one near me at the time of this post - who performed the procedure and was fortunately in my healthcare network. I wish I learned about this group earlier so I could have shared personal and learning experiences with everyone here.

I also want to thank Dr. McHugh and Dr. Diop for curing me and for their care, friendliness, and enthusiasm in helping people like me who dealt with this strange and rare condition. And a big thank you to my primary care provider, Dr. Quan, who has been my amazing endocrinologist for 19 years and gave me the much-needed referral.

And thank you to Dr. Bastian for his research, study, and raising awareness of this condition, and for educating so many doctors and patients on the expectations, side effects, and nuances of this procedure.

I never knew how much I was suffering, or that it could be fixed, without this sub. I’m so very grateful.

Unfortunately, my wife - who is genuinely happy for me - is also already starting to get tired of my burping. I think she preferred it when I only had one way to be gross instead of two.

Hi everyone I had balloon dilation in February which improved slightly. I’m not due to have balloon dilation with Botox. This is happening two weeks before my wedding should I postpone until after or do you think I will be ok

Thanks

Found this sub and thought id share on the off chance that this helps a fellow no burper out there. My entire post infant life I was unable to burp. No carbonation ever, constant gas pain, even went to the hospital a couple times in high-school just to learn, yeah that's just gas, heres some nausea meds, you'll be fine. Did my best to manage via diet but there's only so much you can do.

About a year ago I happened to have the tiniest burp, like undetectable by anyone but me tiny, while I was scrunched up on the couch. Was able to replicate it a couple weeks later by sitting in the same position, opening my mouth, and consciously relaxing everything whenever i felt the gurgles; those loud, base of the throat bubles that never come out. Over time with practice I think I have trained my body to let the air out, and can now burp maybe 60% of the time even in an upright position. Its glorious and i still get excited when it works.

The scrunch: sit on couch or floor with your back to the back of the couch or a wall and your knees up, feet close to your butt. Sit slouchy, c curve in the spine, mostly just shoulders touching the back of the couch or wall.​​ think "staring at your phone too long" relaxed slouch. Now lean right onto your elbow, stretching out your left side slightly. Tilt your face up and face the left shoulder slightly and relax the mouth open. I found everything must be relaxed, so adjust as needed for your body: pillow under the elbow, at lower back, under knees. It seems the idea is ​open up the left side and provide a straight path up from the left.

Sorry if this is an already known thing or unhelpful. Just hoping this works for someone out there and can provide relief. Good luck everyone!

Day three of Botox treatment and I have at least 4 spasms a day. Most at night. I can’t take this. Help

I am writing this nearly two years removed from the Botox treatment. I can burp like a normal person and it is seriously life-changing.

I want to know if anyone thinks the following symptom is tied to this surgery, and if so, what to do about it. If not, why?

July 2024, got the surgery. October 2024, got a common cold. Couldn't kick it, z-pack didn't work, but a 10-day antibiotic, prednisone worked. January 2025, common cold again. Didn't go to Dr, didn't kick the congestion. I figured it wasn't possible to get another sinus infection so soon. I was very wrong -- because I was in Georgia and am from NJ, I attributed it to allergies. Was told I maybe had them, maybe had asthma, and then eventually that no, the whole time it was a sinus infection that turned into walking pneumonia by early March.

Cleared that through two weeks of antibiotics and steroids. Congestion remained. I had multiple sinus infections after this, nose was always irritated. Certainly my fault for not going to the Dr back in January, but also was misdiagnosed when I did go.

Through May, I went to an allergist and two ENTs, who recommended deviated septum surgery. I was told it was only slightly deviated, but because of how enflamed my mucosa/nasal passages/sinuses were, it was necessary to breathe and allow drainage. They couldn't even fit the camera because of how inflamed it had gotten.

I eventually got the surgery 10/1/2025, had infections after, got my immunology results as in perfect health and allergy results coming back negative, cleared up by January 2026 and felt amazing. Could breathe very well, sometimes had postnasal drip but never anything too bad. Sinus rinses went from daily to rare.

The first cold I got again was end of April. I kicked the cold but congestion lingered. From then until today, it has lingered, and has varied between nasal congestion, sinus infection, and sore throats due to postnasal drip.

My deviated septum surgery had a great result, nasal passages wide open and can breathe, but the one symptom I've had since the onset is my ears clicking, when blowing nose it feels like a balloon is blowing up but not popping, and can feel mucus in the back of my throat more often than not.

The connection to R-CPD for me is that I have had a harder time swallowing, takes more effort to spit out mucus, and the one consistent symptom has been back of throat/eustachian tube area dysfunction. I think I have a heightened sense of that whole area now that it works better from the surgery, but I was curious if anyone has had a similar experience, since I never had issues like this until after the surgery.

Happy to go into more detail on any of this. I want to reiterate how incredible the surgery has been for what it was meant to do, and that there may be no connection whatsoever, so anyone considering it should not be discouraged. Thanks for following along.

So I've always been known for being able to eat a bunch of food and I've never had any issues with eating. I had a lot of anxiety (unrelated to rcpd) last week and wasn't able to eat because of anxiety stomach, but the rcpd just makes things soooo much worse. Now my anxiety is gone but I still can't eat much. I'll eat a few bites and then suddenly the food I'm eating seems disgusting, I feel nauseous, and I can feel the air trying to come out. I spend my entire day starving my fucking ass off but I can't seem to eat more than a few bites lately. I love eating, it's the one thing that's always there to make you feel better. But I can't even enjoy that.

There apparently isn't a single fucking doctor in the entire state of Nevada that knows or cares about rcpd. Whenever I try to explain it to a doctor they never listen and say its acid reflux. I'd love to go to Karla O'Dell in California but my insurance makes things extremely difficult as I have to see a PCP doctor in California for a referral to see her because it's not in Nevada. But every PCP I've gone to in California is completely fucking useless and refuse to give me a referral because they don't believe me. I cussed out a doctor once because he wouldn't listen to me and basically said I'm delusional. I'm so fucking tired of this I just want to live a normal life where I'm not fucking suffering 24/7.

3 days post Botox and the mucus in my throat is my worst symptom right now. Is this a normal side effect? I feel like I have a wad of mucus just sitting there.

Hey! I’m looking for some advice from anyone who’s had Botox for RCPD. I had my first Botox injection on 28th May, so I’m now around 5 weeks post procedure.

In the first couple of weeks, I had the expected side effects (slow swallowing, hiccups and some regurgitation), which have now settled.

Since the procedure, I’ve had a partial response. I now get occasional small burps that happen spontaneously, but I have no control over them. Some days I don’t get any at all, while on other days I might have a few. The main issue is that when I feel the need to burp, I can feel the air rise right up into my throat, but it just won’t come out as a proper burp. It feels like it’s stuck at the top of my throat, so I don’t get any pressure relief.

My throat gurgles also seem to have moved higher up than they were before the Botox, but I’m still experiencing throat tightness, bloating and many of my usual symptoms.

I’ve booked a second Botox injection for September, but I’m interested to know if anyone else had a similar experience after their first injection. If you had a second injection, did it make a big difference?

I’d really appreciate hearing about other people’s experiences. Thank you!