u/dracostartrek

PPPD + Neck Symptoms

Hey everyone. I've been dealing with PPPD for 2 years now. A doctor diagnosed me with PPPD but he wasn't very sure. My symptoms are heavily connected to my neck and shoulders, especially the base of my skull, and I wanted to know if anyone else here experiences similar things.

  1. Tightness / pressure at the base of the skull (suboccipital area), sometimes feeling like pulling or guarding.

  2. Dizziness triggered by moving my arms and consequently the suboccipital muscles guarding and spasming even harder.

  3. After driving when I stop, I feel floaty/dizzy and there's pressure at the base of the skull.

  4. Looking at screens can make the base of my skull tense up or spasmic.

  5. Shoulder tightness and shaky/shivering shoulders during endurance exercises, along with upper trap tension.

I also get visual-triggered dizziness, light sensitivity, eye fatigue, and swaying while standing still, so I’m wondering if this is all connected through PPPD/visual-vestibular issues.

Does anyone else here have strong neck/suboccipital involvement like this?

Especially dizziness that seems connected to neck tension, driving, screens, or movement?

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u/dracostartrek — 3 days ago